Tysabri ms support

Common Questions and Answers about Tysabri ms support

tysabri

1475492 tn?1332884167 Someone said that Jose who died from PML were taking more than one MS medication. Is that more than one DMD or treatment for symptoms?
Avatar f tn Today (11/21/2013) had an MRI done, got it on a disc and took it straight up to my docs office and we sat and reviewed it. Looks like my MS, remind you I just got diagnosed August this year with symptoms starting in June of this year, has become aggressive and my MRI showed a lot of signals in my spinal cord. So now he wants to take me off of the Copaxone, I have been on for a month and a half, and put me on Tysabri.
Avatar f tn Hi. I'm new to MS and Tysabri. I was just diagnosed in July of this year. I basically had no symptoms. Maybe a little fatigue and dizziness but it was always "explainable". I wouldn't even have gone to the doctor then if it weren't for numbness/tingling in my hands. I work on a computer all day so it was very annoying and I broke down and went. And after a few MRIs and other tests this is where I am.
5681139 tn?1372268736 He reiterated that point yesterday. There are pluses and minuses to all MS meds. For me a big Tysabri plus is that I only have to deal with it once every 4 weeks. The thought of daily or weekly self injections was not all that appealing to me. Right before I saw my neuro yesterday I saw my naturopathic doc. Her office is two doors down from his, in the same MS practice. They work together and each is aware of what is being discussed with the other.
Avatar f tn I was recently diagnosed with MS, Feb 2015, and am looking for support, help, advice, laughter and encouragement. My family and friends have been a great support system, but I still need to talk to ones who are going through what I am. I want to help people to the best of my ability: whether it's advice, encouragement, a smile, or just lend an ear. We can do and beat this! Blessings!
Avatar f tn They found out the reason people contracted PML was because they were taking Avonex/and the other MS medications with Tysabri. I think the Tysabri has given me a second chance at helping slow my disease progress, but with out it I would be on no MS medications to slow the disease. I did alot of research before I decided to start the medication and the one resource that helped me make my decision was reading the Tysabri diaries on line. www.msrc.co.uk/index.cfm?
1115136 tn?1258778476 Before Tysabri, she was taking Rebif, and her MRI was showing advance in lesions. I think Tysabri has helped to slow down her MS, and if you ask my sister whether or not Tysabri has made a difference, she would most certainly say it had. For those of us with MS that have a more aggressive disease course, it's nice to still have an option available for us.
Avatar m tn I've been JC+ since BEFORE I started Tysabri. I've been on it 3 years and will continue until my levels reach a danger point. Tysabri has done a wonderful job and my neuro says my MS is now stable, I've had no relapses in a year. ess has given you some good advice, everything has a side effect. Call Tysabri and talk with them, they are wonderful people and very supportive.
216354 tn?1262871346 However, she was also told that if she were to stop tysabri she was pretty much guaranteed to have an attack of the MS. She has an agressive form of MS and other medications don't seem to work. We haven't seen much improvement with tysabri, but at least she hasn't had anymore attacks while on it. Can anyone shed more light on this for me? I was hoping to gather more information on this if anyone has it. Please let me know! Thanks!
Avatar f tn I'm not on Tysabri, but want to bump this up so that your message doesn't get lost. My sister is on Tysabri, which she's been on for two years now. Her MS is not behaving like someone that has RRMS, as her MS is more like a train that keeps barreling down the tracks and is unable to be stopped. She was on Rebif for a year and she experienced a sharp decline over the course of the year. She started Tysabri, and her disease has slowed, but it's by no means stable.
Avatar n tn However, I will try to provide you with some information regarding rituximab in MS. I will say though that as you know, the goal of therapies for MS is to prevent relapses and accumulation of lesions in the brain and spine. While being off medications for a few weeks or even months is probably not detrimental, in the long term, it is optimal for patients who can tolerate the side effects of MS medications to be on them.
1831849 tn?1383228392 The research side of my MS Practice has identified a CSF biomarker for disease activity. The research is featured on the cover of this month's Multiple Sclerosis Journal. http://tischms.org/news/tisch-ms-breakthrough-biomarker-research-featured-cover-article-october-2013-issue-multiple I'm a beneficiary of this discovery. I had been on Tysabri for 20 months. At 18 Months I converted to JCV +, and we discussed switching from Tysabri to Tecfidera.
1337734 tn?1336234591 Hi, I was diagnosed with MS in 2005. I have been through 4 different treatments including Tysabri and Gilenya. I was on Tysabri for 4 years before I was able to take the JC test in which I was positive for the antibodies, so they have now switched me to Gilenya. I am on the fence at the moment of whether or not to change to a different medication. I have fatigue and or wobbly left leg after I go for a walk.
Avatar f tn I do not have typical ms, but a variant that is still clinically not diagnosed. I have a great neuro @ Stanford & he is recommending I start on Tysabri ASAP. I read up about the JC virus, and regardless plan to begin treatment next week. I don't know anyone with ms or ms variants so I want to know more about Tysabri from people who are on it or have used it. What is your experience? Pros/cons? I have read about side effects but I want to hear your thoughts & how it made you feel.
1168718 tn?1464983535 t be hard on yourself for feeling down. You are dealing with a lot. Sorry the MS Dx is now offical. I know the MS Dx takes time to come to terms with, I still working on it now.... almost 2 years after Dx. Remember to be kind to yourself, its ok to fall apart and to feel down. We are always here to offer support.
Avatar f tn I hope you will take the time when you feel up to it and post some details about your MS and treatment with Tysabri. It could be helpful to others. Again, welcome!
462771 tn?1358355843 all the trial patients), and review all of the Safety Data so that they could resubmit Tysabri to the FDA for approval once again (Tysabri is only the second drug to be reapproved by the FDA). I was one of the MS patients that spoke before the FDA AC (via videotape) in March 2006 in an effort to bring Tysabri back to the market. I'm so very grateful that we all succeeded!
Avatar f tn Recently diagnosed with MS (November) and they are starting me with the drug Tysabri. Trying to find out what to expect and if it is helping others with their symptoms? All new to this, really have no idea what I need to know or ask? Just looking for someone with some insight on what I will experience.
5993128 tn?1384747803 Hi BL- Welcome to Our Merry Band :-) I was diagnosed 2 years ago, at age 51, with SPMS. My first, and up until a week ago my only, DMD was Tysabri. When I was diagnosed we were able to connect seemingly random events over the previous 20 years. What seemed completely unrelated was related. All were symptoms of MS. Because I'd had MS for so long my doc thought I was out of reach of the injectables. At the time the orals were just starting to come on the market.