tysabri ms side effects

Worth nothing is that the flu-like side effects of Avonex often are less troubling after the first few weeks or months, but I've never seen anyone suggest that the mood-related side effects dissipate.

Has anyone had an experience where Tysabri triggered old symptoms to return, or had side effects similar to this? I looked up the side effects and it sounds sort of similar, but it's just odd that what I am feeling is exactly the same as my previous relapse, just way worse. Is this a relapse? Side effects? Something I'm stuck with now? Any thoughts would be helpful! Looking forward to reading more!

m about to start Tysabri. I know there are some risks, side effects etc, but I trust my new Guru.

I'm on my 5th year of Tysabri, and have no side effects. Like Kyle mentioned, I do kind of "crash" about 4 days before my next infusion. I was diagnosed RRMS, but I wouldn't be surprised if I were SPMS in this stage of the game. Tysabri is approved for use with patients with SPMS.

If you would forget to take pills, for example, you need to be on an injectible. Consider the common side effects and which ones you can most readily live with. You may not even suffer the side effects, but you need to be prepared for them. I’m sorry you hadn’t had a response for 20 hours … ask questions anytime!

It is taken, not because of my MS, but because of my reaction to the Tysabri. I have side effects and the Decadron takes care of that nicely. So, that said, the steroid is not treating the MS, it is treating the side effects. Hope that helps explain what I originally said......sometimes cog fog gets in the way.

If you have been on tysabri, please share your experience with me. Did you have similar side effects? Did they go away over time? How much time? I have MRIs scheduled on Friday to check for changes and I'm hoping that will help me make some decisions. Thanks in advance for your experienced!

side effects for each other medicine and now this with tysabri. Has anyone else been on tysabri and developed c. Diff from it? If so, what did they do to help it? Stop tysabri? Any information would be greatly appreciated.

Recently diagnosed with MS (November) and they are starting me with the drug Tysabri. Trying to find out what to expect and if it is helping others with their symptoms? All new to this, really have no idea what I need to know or ask? Just looking for someone with some insight on what I will experience.

How are you feeling on it better? I know it has helped me.

I too have young children, and I do worry about the side effects of Tysabri. However, I decided I am more worried about my mobility worsening day by day, and I am hopeful the Tysabri helps. Good luck to you, and I would really ask your neuro why he wants to start with Tysabri being your 1st med, besides research. I would really expect a better answer than research.

I endured it for 4 months before my neurologist agreed with me that the side effects were worse than my MS symptoms. I NEVER got over the flu-like symptoms....as soon as they began to fade it was time for another dose. I also experienced severe fatigue while taking it. I've been taking Tecfidera orally for the last couple of years, and I'm much happier without the needles.

My neuro, who is a Tysabri and Avonex researcher says that about 50% of his Tysabri patients report something similar. I have had NO bad side effects. The main factor affecting the sole worrisome problem is whether or not you are positive for the JC virus. As long as you are negative there is only an infinitesimal chance of it. I have had only minor progression of one problem (appearance of pain in my face) and several brain lesions have shrunk or disappeared..

I am glad to hear that other people are researching Tysabri and not just shying away from the drug due to the possible side effects. All medications have terrible side effects and if we read about every medication we took....then we probably would not take anything. I believe the Tysabri has started to give me my life back and I pray that the longer I take it - the better things will get. Someone had asked about UTI's.

Sorry to hear that you are having Tysabri side effects. I've had 4 infusions and no ill effects at all.

I saw my neuro on Friday and in the course of a fairly long appointment and discussion, I asked a lot of questions. One in particular had to do with oral meds, which we've been told for years are right around the corner. He says yes, they'll definitely be available very soon, but prescribing them will be difficult because of their side effects. Only select patients will get them. I asked if this included those who couldn't tolerate or just didn't do the injections.

Just curios why would anyone use a medication with this possible side effect? I was diagnosed with PPMS in 2008... I am treated at Beth Israel Hospital in Boston, MA by a top MS specialist.

You don't just pick Tysabri. Tysabri is a big deal, not only from an insurance $$ standpoint, but also from a health standpoint. You have to be tested for JC virus first. If you're positive, it adds another twist to the choice to be on it or not, because with JC positive comes the real chance of PML, and that you do NOT want. You're doctor is not likely to prescribe it for you if you are JC positive, at least not for your first try of a DMD.

When I considered going off of Ty, I made a chart and put all of the DMD drugs side by side and blacked out the side effects I was unwilling to put up with, including the cost of the other drugs being Tier 4 with a 33% co-pay, and looked at what was left. I know where you are coming from! It was a scary thought to make the decision but there are risks to everything, particularly DMD drugs. Hang in there, we're all here to support you regardless of your decision!

Tysabri ms side effects

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