tysabri ms medicine

side effects for each other medicine and now this with tysabri. Has anyone else been on tysabri and developed c. Diff from it? If so, what did they do to help it? Stop tysabri? Any information would be greatly appreciated.

I have to change my medication and I'm not sure what medicine I should go on. I'm left with 4choices Rebif, Betaseron, Tecfidera, and tysabri.

My sister, who has MS, is having the Tysabri infusions. I believe she said that her medicine and infusions costs are $7,000 a month. This medicine is quite expensive, and is usually not the first drug of treatment when diagnosed with MS. Typically, the other disease modifying drugs have not worked before this one is prescribed. As far as taking shots for the rest of my life, I really doubt it. What I understand is that a new oral medicine, Fingolimod, will be available next year.

I'm just starting my first medicine soon, I'm 18 and not sure which medicine to choose. I have narrowed it down to Copaxone and Tysabri, but am not sure which one to choose. I have a phobia of needles that I have been trying to overcome so giving myself a shot wouldn't be optimal but I could manage. I was also worried about developing PML with Tysabri but my doctor made it seem as if he would check my bloodwork regularlly and it wouldnt be an issue.

Hi I was diagnosed with MS in May of 2001. My neurologolist wants to me to try Tysabri. I have already tried the shots for ms and they don't work to well with me. But I already have most of the side of effects that go with tysabri. Please help me.

my husband has has ms since 2004. he has been on betaseron for 2 years, ivig for 2 years and tysabri for 2 years. he has not ben on any meds since aug 2010. he is now on steroids and has to decide what med to go on. he had to stop the tysabri because he was building up antibodies against the medicine. he former doctor suggested he go off it and consider the oral medince. since then his doctors prtice closed and now we are seeing a new doctor. we are very confused. does any one have any advice?

Hi there and welcome to the forum! I agree that this does sound like overkill. I am newly diagnosed in Canada too and my neuro only recommended Avonex, Copaxone, Betaseron, Rebif (Tecfidera was not yet available at the time of my RRMS dx). I chose Rebif. Based on the information on the MS Society of Canada's website, Tysabri is usually presribed when other DMD's are not tolerated or don't work for an individual.

I just saw a MS neuro at OSU hospital. He asked me whether I was interested in being in the Tysabri study. I am only 37 and have only had one relapse. I know I will be deciding on a treatment and not sure what direction to go. This neuro is big in research and he spent a lot of time talking with me about MS. He mentioned a JC Virus and took my blood to look for it. If I don't, I would be a good candidate for Tysabri. It has 67% reduction in relapses but also risks getting PML.

Hello, I am a caretaker of my friend who has MS. Over the last 12 years he has been on all the ABC drugs. Now he is completing the 2 year mark of using Tysabri. Dr Appointment in 2 weeks assume he will stop infusions. I wonder what is next???? How are others doing after all these treatment and now what do they take???

Well, MS neuro called today, and said no more Tysabri. I have had 5 infusions so far, and unfortunately have been dealing with an awful vocal box issue(s). From having my immune system lowered, I developed a terrible problem with my vocal chords. It was so bad when they 1st looked, they had a hard time differentiating what was going on. There was thrush, ulcers. lesions and huge amounts of swelling. I have not had ANY voice for over 3 weeks! I was also not allowed to try to talk either.

I was on Tysabri for only four months but I am here to tell you it is by far the most amazing medicine there is for ms. I got my life back the day after my second infusion. I would be on it today had I not developed a severe allergy to it after my fourth infusion. Leave it to my body to go in to anaphylaxis from the one medicine that helped me lead a normal life. The pain reduced, balance improved, memory improved, no need for walker, and I actually had energy.

I am on year three of Tysabri after almost three on Copaxone. It's hard to believe I have been doing this for several years.

if my ms medicine stopped working will it start to work again I have been on it for 6 years and had no lesions but my last MRI showed the lesions are active and showed more lesions

This is in response to the post about the new medince that recently was approved for treatment of MS. I basically posted that I probably couldn't take the medicine because of having responded to a TB test (Mantoux test). A dear forum member responded, and here's my reply on a new thread because I didn't want to hijack the other thread with negativity when it is such encouraging news for people with MS who have to take medicine that has to be injected.

The rheumatologist wants to figure out a drug that will cover both the lupus and the ms. My neuro started talking about tysabri. It scares the **** out of me. I just looked it up. Rheumie says I can't use any of the interferons for ms since I have lupus. When I told neuro that, he was just kind of like, yeah that's right. Then looking at tysabri, that wouldn't work, either, because I'll probably be on steroids at times. Also neuro talked about steroids for ON.

However, she was also told that if she were to stop tysabri she was pretty much guaranteed to have an attack of the MS. She has an agressive form of MS and other medications don't seem to work. We haven't seen much improvement with tysabri, but at least she hasn't had anymore attacks while on it. Can anyone shed more light on this for me? I was hoping to gather more information on this if anyone has it. Please let me know! Thanks!

I'm not on Tysabri, but want to bump this up so that your message doesn't get lost. My sister is on Tysabri, which she's been on for two years now. Her MS is not behaving like someone that has RRMS, as her MS is more like a train that keeps barreling down the tracks and is unable to be stopped. She was on Rebif for a year and she experienced a sharp decline over the course of the year. She started Tysabri, and her disease has slowed, but it's by no means stable.

However, I will try to provide you with some information regarding rituximab in MS. I will say though that as you know, the goal of therapies for MS is to prevent relapses and accumulation of lesions in the brain and spine. While being off medications for a few weeks or even months is probably not detrimental, in the long term, it is optimal for patients who can tolerate the side effects of MS medications to be on them.

The research side of my MS Practice has identified a CSF biomarker for disease activity. The research is featured on the cover of this month's Multiple Sclerosis Journal. http://tischms.org/news/tisch-ms-breakthrough-biomarker-research-featured-cover-article-october-2013-issue-multiple I'm a beneficiary of this discovery. I had been on Tysabri for 20 months. At 18 Months I converted to JCV +, and we discussed switching from Tysabri to Tecfidera.

MS is different for each of us, but if you are familiar with the 5 stages of death, MS runs along the same parallel, but we can go in and out of them and not in any particular order. Denial is my favorite when I am feeling good and have been good for awhile. My latest neuro thinks I've had MS since 1981 (no MRI then) and I went thru 3-4 before finding this one, 3 states away, and won't give him up for anything.

I do not have typical ms, but a variant that is still clinically not diagnosed. I have a great neuro @ Stanford & he is recommending I start on Tysabri ASAP. I read up about the JC virus, and regardless plan to begin treatment next week. I don't know anyone with ms or ms variants so I want to know more about Tysabri from people who are on it or have used it. What is your experience? Pros/cons? I have read about side effects but I want to hear your thoughts & how it made you feel.

I hope you will take the time when you feel up to it and post some details about your MS and treatment with Tysabri. It could be helpful to others. Again, welcome!

Recently diagnosed with MS (November) and they are starting me with the drug Tysabri. Trying to find out what to expect and if it is helping others with their symptoms? All new to this, really have no idea what I need to know or ask? Just looking for someone with some insight on what I will experience.

Hi BL- Welcome to Our Merry Band :-) I was diagnosed 2 years ago, at age 51, with SPMS. My first, and up until a week ago my only, DMD was Tysabri. When I was diagnosed we were able to connect seemingly random events over the previous 20 years. What seemed completely unrelated was related. All were symptoms of MS. Because I'd had MS for so long my doc thought I was out of reach of the injectables. At the time the orals were just starting to come on the market.

You might find this of interest- I have always wondered why we startt out wit hthe weakest drugs to treat our MS instead of going at it as agressively as possible - Biogen Idec and Elan Submit Applications for First-Line Use of TYSABRI in anti-JCV Antibody Negative Patients with MS http://tinyurl.

Tysabri ms medicine

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