tysabri ms attack

Hi SS - Congrats on your move to Portlandia. Even bigger congrats on getting back in your running shoes! Keeping our bodies as strong as we can is really important. As to Tysabri's healing powers I'm not so sure. I am sure that it is effective at dramatically slowing the progress of MS. I'v had 18 infusions and Tysabri is the only DMD I've used. Since starting Tysabri I've seen no appreciable worsening of my MS. If I can stay where I am now I'll be very happy.

However, she was also told that if she were to stop tysabri she was pretty much guaranteed to have an attack of the MS. She has an agressive form of MS and other medications don't seem to work. We haven't seen much improvement with tysabri, but at least she hasn't had anymore attacks while on it. Can anyone shed more light on this for me? I was hoping to gather more information on this if anyone has it. Please let me know! Thanks!

For me, Tysabri was more effective then Copaxone, but if you have MS and are thinking of switching, Tysabri is a very dangerous drug, inform yourself before making the decision.

Hi. I'm new to MS and Tysabri. I was just diagnosed in July of this year. I basically had no symptoms. Maybe a little fatigue and dizziness but it was always "explainable". I wouldn't even have gone to the doctor then if it weren't for numbness/tingling in my hands. I work on a computer all day so it was very annoying and I broke down and went. And after a few MRIs and other tests this is where I am.

I work full time and am now a single parent after husband passed away due to heart attack. I also had a headache and joint pain right after the infusion. Will Tysabri help with tiredness after a few infusions?

We raced off to see his neuro who was not pleased that he was having another attack only 6 months after beginning treatment with Avonex. His recent MRI from last week showed "significant improvement" lots of the lesions he had were not visible and the ones that are were much lighter than his first MRI. And he only had 1 new very small enhancing lesion... His neuro told us he would like us to consider switching to Tysabri! Switching already? Is it too soon?

t do because of my kidneys. Then he suggested tysabri. My choice is not to attempt tysabri because of the chance of brain infection with my body making interferon and on the advice of someone dx'd with MS and living with MS for the past 30 years. So, now we are possibly looking at sandimmune or cellcept. Both anti-rejection drugs. Allergic? perhaps slightly to copaxone, sensitive to the side effects of others. What if you're allergic to beta?

Okay, I've had MS for 13 years. I was just taken off Tysabri in July, I was on that for almost 5 years. I now have to go on Gylena in January, but before I start the new drug...I have to do 6 months of iv steroids. 3 days every month with NO taper! I have just finished my second round...and I'm ready to through in the towel. The side affects of the steroids are at this point almost not worth doing. They are trying to prevent a relapse since I am not on any MS therapy.

Immi has given you valuable insight. There are cases in which the initial diagnosis is Secondary Progressive Multiple Sclerosis (SPMS). I am one of these cases. GIven the length of time I'd had MS when I was diagnosed my doctor determined I had moved into Phase 2 of MS, SPMS. At that time he also told me I was likely beyond the help of first line treatments like Copaxone. He suggested TYsabri and I agreed. Tysabri is safe.

Here are some of the drugs that are used to treat MS. All of them have some problems and are not completely effective. You can learn more about these on the WebMD site. Interferon Drugs for Multiple Sclerosis (Avonex, Betaseron, Rebif)Interferon beta drugs help control the immune system, which helps control MS. Glatiramer Glatiramer helps prevent the body's immune system from attacking nerve fibers. Novantrone Novantrone slows disability and reduces the relapse rate.

To look at me you would never know I had MS as most people with this disease. I am now on Gabapentin and Tysabri. I am a little scared about my future, but trusting God knows what is right for me. Is anyone out there taking Tysabri and what is your experience? I've had 2 infusions, the first one no reaction. The second I was sick for 2 days, which is better than being sick all the time on Rebif. Please and Thank you!

Before Tysabri, she was taking Rebif, and her MRI was showing advance in lesions. I think Tysabri has helped to slow down her MS, and if you ask my sister whether or not Tysabri has made a difference, she would most certainly say it had. For those of us with MS that have a more aggressive disease course, it's nice to still have an option available for us.

Hi and welcome. I can't say anything about Tysabri side effects as I've never been on Ty, but quite a lot of others here have been, and some of these will be able to comment on this through their experiences. I can say, though, that the bumps/rash are very likely to be a reaction to something or other, and in themselves are not an MS symptom. Now as to why you're having more MS problems, I'd say it's because this is a genuine relapse.

I'm not on Tysabri, but want to bump this up so that your message doesn't get lost. My sister is on Tysabri, which she's been on for two years now. Her MS is not behaving like someone that has RRMS, as her MS is more like a train that keeps barreling down the tracks and is unable to be stopped. She was on Rebif for a year and she experienced a sharp decline over the course of the year. She started Tysabri, and her disease has slowed, but it's by no means stable.

However, I will try to provide you with some information regarding rituximab in MS. I will say though that as you know, the goal of therapies for MS is to prevent relapses and accumulation of lesions in the brain and spine. While being off medications for a few weeks or even months is probably not detrimental, in the long term, it is optimal for patients who can tolerate the side effects of MS medications to be on them.

The research side of my MS Practice has identified a CSF biomarker for disease activity. The research is featured on the cover of this month's Multiple Sclerosis Journal. http://tischms.org/news/tisch-ms-breakthrough-biomarker-research-featured-cover-article-october-2013-issue-multiple I'm a beneficiary of this discovery. I had been on Tysabri for 20 months. At 18 Months I converted to JCV +, and we discussed switching from Tysabri to Tecfidera.

MS is different for each of us, but if you are familiar with the 5 stages of death, MS runs along the same parallel, but we can go in and out of them and not in any particular order. Denial is my favorite when I am feeling good and have been good for awhile. My latest neuro thinks I've had MS since 1981 (no MRI then) and I went thru 3-4 before finding this one, 3 states away, and won't give him up for anything.

I do not have typical ms, but a variant that is still clinically not diagnosed. I have a great neuro @ Stanford & he is recommending I start on Tysabri ASAP. I read up about the JC virus, and regardless plan to begin treatment next week. I don't know anyone with ms or ms variants so I want to know more about Tysabri from people who are on it or have used it. What is your experience? Pros/cons? I have read about side effects but I want to hear your thoughts & how it made you feel.

You don't just pick Tysabri. Tysabri is a big deal, not only from an insurance $$ standpoint, but also from a health standpoint. You have to be tested for JC virus first. If you're positive, it adds another twist to the choice to be on it or not, because with JC positive comes the real chance of PML, and that you do NOT want. You're doctor is not likely to prescribe it for you if you are JC positive, at least not for your first try of a DMD.

He reiterated that point yesterday. There are pluses and minuses to all MS meds. For me a big Tysabri plus is that I only have to deal with it once every 4 weeks. The thought of daily or weekly self injections was not all that appealing to me. Right before I saw my neuro yesterday I saw my naturopathic doc. Her office is two doors down from his, in the same MS practice. They work together and each is aware of what is being discussed with the other.

I hope you will take the time when you feel up to it and post some details about your MS and treatment with Tysabri. It could be helpful to others. Again, welcome!

Recently diagnosed with MS (November) and they are starting me with the drug Tysabri. Trying to find out what to expect and if it is helping others with their symptoms? All new to this, really have no idea what I need to know or ask? Just looking for someone with some insight on what I will experience.

Hi BL- Welcome to Our Merry Band :-) I was diagnosed 2 years ago, at age 51, with SPMS. My first, and up until a week ago my only, DMD was Tysabri. When I was diagnosed we were able to connect seemingly random events over the previous 20 years. What seemed completely unrelated was related. All were symptoms of MS. Because I'd had MS for so long my doc thought I was out of reach of the injectables. At the time the orals were just starting to come on the market.

I've been on Avonex for the past two months. The side effects have been minimal for me. My problem is now my liver enzymes are elevated. Dr. said I may have to try something else if my elevated liver enzymes continue. I don't like the idea of a daily shot with Copaxone, but I'm also concerned about the side effects of the oral medications. I won't consider Tysabri at this point because my MS diagnosis is fairly new and I want to try other treatments first.

Tysabri ms attack

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