tysabri medicine

side effects for each other medicine and now this with tysabri. Has anyone else been on tysabri and developed c. Diff from it? If so, what did they do to help it? Stop tysabri? Any information would be greatly appreciated.

Hi I was diagnosed with MS in May of 2001. My neurologolist wants to me to try Tysabri. I have already tried the shots for ms and they don't work to well with me. But I already have most of the side of effects that go with tysabri. Please help me.

I have to change my medication and I'm not sure what medicine I should go on. I'm left with 4choices Rebif, Betaseron, Tecfidera, and tysabri.

he has been on betaseron for 2 years, ivig for 2 years and tysabri for 2 years. he has not ben on any meds since aug 2010. he is now on steroids and has to decide what med to go on. he had to stop the tysabri because he was building up antibodies against the medicine. he former doctor suggested he go off it and consider the oral medince. since then his doctors prtice closed and now we are seeing a new doctor. we are very confused. does any one have any advice?

I'm just starting my first medicine soon, I'm 18 and not sure which medicine to choose. I have narrowed it down to Copaxone and Tysabri, but am not sure which one to choose. I have a phobia of needles that I have been trying to overcome so giving myself a shot wouldn't be optimal but I could manage. I was also worried about developing PML with Tysabri but my doctor made it seem as if he would check my bloodwork regularlly and it wouldnt be an issue.

I am on year three of Tysabri after almost three on Copaxone. It's hard to believe I have been doing this for several years.

if my ms medicine stopped working will it start to work again I have been on it for 6 years and had no lesions but my last MRI showed the lesions are active and showed more lesions

My sister, who has MS, is having the Tysabri infusions. I believe she said that her medicine and infusions costs are $7,000 a month. This medicine is quite expensive, and is usually not the first drug of treatment when diagnosed with MS. Typically, the other disease modifying drugs have not worked before this one is prescribed. As far as taking shots for the rest of my life, I really doubt it. What I understand is that a new oral medicine, Fingolimod, will be available next year.

He asked me whether I was interested in being in the Tysabri study. I am only 37 and have only had one relapse. I know I will be deciding on a treatment and not sure what direction to go. This neuro is big in research and he spent a lot of time talking with me about MS. He mentioned a JC Virus and took my blood to look for it. If I don't, I would be a good candidate for Tysabri. It has 67% reduction in relapses but also risks getting PML.

Well, MS neuro called today, and said no more Tysabri. I have had 5 infusions so far, and unfortunately have been dealing with an awful vocal box issue(s). From having my immune system lowered, I developed a terrible problem with my vocal chords. It was so bad when they 1st looked, they had a hard time differentiating what was going on. There was thrush, ulcers. lesions and huge amounts of swelling. I have not had ANY voice for over 3 weeks! I was also not allowed to try to talk either.

Could you give us a little background on what meds you've tried and for how long? I'm sure you've mentioned it before but I have a hard time keeping track of so much.

Now, based on the last MRI, he has officially diagnosed me and is recommending that I go on Tysabri infusions. From what I can tell on this forum, it seems like he's hitting an ant with a sledgehammer. It seems very unusual for people to be prescribed Tysabri right off the bat. I am very confused as to what drug to go on, if any. His first choice for me is Tysabri, followed by Gilenya, followed by Copoxone.

Over the last 12 years he has been on all the ABC drugs. Now he is completing the 2 year mark of using Tysabri. Dr Appointment in 2 weeks assume he will stop infusions. I wonder what is next???? How are others doing after all these treatment and now what do they take???

This is in response to the post about the new medince that recently was approved for treatment of MS. I basically posted that I probably couldn't take the medicine because of having responded to a TB test (Mantoux test). A dear forum member responded, and here's my reply on a new thread because I didn't want to hijack the other thread with negativity when it is such encouraging news for people with MS who have to take medicine that has to be injected.

I know it's been awhile since I've been on here, but wanted to tell all the great people who gave me their support THANK YOU from the bottom of my heart. I could say thanks and all the nice things in the world but it wouldn't do the way I feel for you all justice. Life has turned around for the most part for me. Other than missing my kids everything else has changed drastically in life.

Has anyone taking tysabri having any side effects such as jerking of the hands and legs? And extreme weakness of he legs?

I went for my 6 month followup on copaxone and post dx. The good news is that the copaxone seems to be "doing its job" cause no new lesions. Bad news is that I was dx'd pretty advanced with a bunch of lesions. They told me the damage I already have isn't going away. The rheumatologist wants to figure out a drug that will cover both the lupus and the ms. My neuro started talking about tysabri. It scares the **** out of me. I just looked it up.

SarahL asked for a good list for patient medicine assistance sites. I came across pparx and tried it out. Type the name of your medicine you need help in the box (link should bring you to page with a box - I typed in Provigil in the search term using drug name), and it brought up the company's program, and I also tried it with Avonex.... Quicker than linking a whole host of individual websites! http://www.pparx.

Not to mention, that I will soon run out of good sites. I am a bit afraid of the Tysabri. Though she says there have 6 or so episodes of PML, some were Europe where they don't have the Touch program and pt are not followed as closely. She says 83% of users have no flairs in a 2 year study. She will see me monthly or sooner of course if necessary.

They found out the reason people contracted PML was because they were taking Avonex/and the other MS medications with Tysabri. I think the Tysabri has given me a second chance at helping slow my disease progress, but with out it I would be on no MS medications to slow the disease. I did alot of research before I decided to start the medication and the one resource that helped me make my decision was reading the Tysabri diaries on line. www.msrc.co.uk/index.cfm?

I have had MD for 18 years. Been on Avonex, Betaseron, Tysabri, and now Tecfidera. Unfortunately, I'm also on lots of other medications, mostly due to terrible central pain. My neurologist made me stop the Tysabri after 24 infusions because of safety concerns. I felt my overall best while on Tysabri and have asked him if and when I might be able to go back on the monthly infusions. He does not have an answer for me at this point.

Are any of you on Tysabri? My doctor has suggested that I consider starting Tysabri treatment. His neurology practice runs a TOUCH infusion center. I've been on Copaxone for four years and have just had my first flareup. My recent MRI shows progression of MS with T2 hyperintense white matter lesions in the pons of the brainstem and the frontal lobe. Several of the older lesions have increased in size. Five years ago I was on Avonex. I had multiple flare-ups the whole year on this med.

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