Tysabri linked care

Common Questions and Answers about Tysabri linked care

tysabri

294425 tn?1288528395 Plus, at that time, the thinking was that PML was linked to Tysabri being used in conjunction with other MS treatments, especially interferon. And for 2 years, that seemed to be the case, and everyone was just starting to breathe a sigh of relief... :) Novantrone scares me more, too. The cardiac toxicity is a major thing, and my neuro doesnt like to use it for that reason. But there are people who have used it and said it helped.
5681139 tn?1372268736 Thanks Corrie! I'm told Tysabri is often not covered by drug plans (both private and provincial) unless you've been on one of the DMD's prior and that is why it is not usually given as an initial drug. I guess I'm lucky in that my husband's plan allows me to go straight to Tysabri or Gilenya without having to try one of the other DMD's.
382218 tn?1341181487 Some encouraging developments in MS research: Number of Genes Linked to MS More than Doubles 8/11/2011 http://www.msfacts.org/news-details.aspx?newsID=188 The largest-ever gene study of MS has identified 29 new genetic variants associated with the disease, confirmed 23 previously known genetic links, and suggested five more genes that may contribute to the disease.
Avatar f tn Hope everyone is well. I just wanted to give an update. I had my first Tysabri infusion this morning and I experienced no side effects so far at all. Over the last 2 months I have had some improvment. I still have all my symptoms but they're less intense. So here's hoping for the best. Hoping this medication works at seriously slowing this beast way down. How are things with everyone? I truly hope everyone has been well or well as can be expected.
Avatar m tn It is taken, not because of my MS, but because of my reaction to the Tysabri. I have side effects and the Decadron takes care of that nicely. So, that said, the steroid is not treating the MS, it is treating the side effects. Hope that helps explain what I originally said......sometimes cog fog gets in the way.
488198 tn?1493875092 And even if Tecfidera ultimately was directly connected to PML, know that Tysabri is too, and yet the vast majority of patients use it safely every month. It's something to be aware of, but no reason to throw out the Tecfidera yet. http://www.foxbusiness.
470613 tn?1207312671 Last week I started my 3rd significant relapse this year, my specialist nurse is now talking about Tysabri. I was on Rebif for about 15 months and wasnt getting on with the side effects so I switched to Copaxone 6 weeks ago, which I'm quite happy with. I looked up Tysabri when I got home and all I got was all the bad news about the PML patients. They say that theres a 1/1000 chance of getting it, that seems quite high to me.
2063887 tn?1337829746 I finally figured out that the Copaxone was causing me to have severe migraines so we had to change our plan of action. They wanted me to decide which way to go, but sort of led the discussion towards Tysabri. My original neurologist wanted to start with that as well, but after appealing to the insurance several times they wouldn't approve it. This doctor actually took the time to talk and write down facts about my situation to back up the need.
645390 tn?1338555377 too bad the tysabri didn't work out. some folks in our groups here have had great results. like you though, some had to stop it for other weird issues/reactions. i get the ulcers/sores in my mouth ever since my MS started. have no idea why they showed up. one doc said it could be due to my gastro issues. VA gives me a herpe medicine to take for 5 days when they show up. i get em so often yearly, beats me. sorry it didn't work out and here's hoping something does, and soon.
1088527 tn?1425313375 My MS doc always gives a small dose of Solumedrol, which is much larger than a usual prednisone dose, to his new Tysabri patients. They get the IVSM in the first hour. Then they get the Tysabri in the next hour. His experience says that the mini-dose of IVSM helps the Tysabri get to work faster by cutting any inflammation in our system. He does that for the first three Tysabri doses when just beginning this therapy. I hope you are less itchy today and can reach your doctor in the morning.
Avatar f tn t last long either because my doctor found legions on my spine and told me he thought tysabri would be the best option and I needed to make my decision quick. I did do my research on tysabri but I don't think I want to be on this for the rest of my life. I know the pros and cons of this infusion process still being that this is all new to me I don't want to later find out along with MS I have this blood disease. I really need to deal with one illness at a time.
294425 tn?1288528395 I'm just curious .... For any of you who are on Tysabri, I was wondering if your neuros had changed their treatment plans or recommendations because of all the new PML cases and the acknowledgement by Biogen and the FDA that risk goes up after 24 months. I hear some are now pulling their patients at 18 or 24 months. I saw my neuro yesterday, and we discussed it in detail .... we are staying the course at this point, which made me very happy. (I go for #18 in a couple of weeks.
921312 tn?1351077913 I have never heard of a brain infection related to Gilenya … perhaps the doctor was referring to Tysabri, although a doctor should know the difference. Tysabri also may be worth a try. Yes, it has shortcomings, but like Gilenya, many people tolerate it well and have good results. I don’t know anything about gabapentin, other than that it is not a disease-modifying drug interchangable with Gilenya, Tysabri, Copaxone, Avonex, Rebif, and Betaseron.
Avatar f tn I also had a headache and joint pain right after the infusion. Will Tysabri help with tiredness after a few infusions?
1475492 tn?1332884167 Hi SS - Congrats on your move to Portlandia. Even bigger congrats on getting back in your running shoes! Keeping our bodies as strong as we can is really important. As to Tysabri's healing powers I'm not so sure. I am sure that it is effective at dramatically slowing the progress of MS. I'v had 18 infusions and Tysabri is the only DMD I've used. Since starting Tysabri I've seen no appreciable worsening of my MS. If I can stay where I am now I'll be very happy.
Avatar f tn relapse/flair, whatever. It was 9 days of no fun. They even refused my Tysabri last week because I had a fever of 99.0. Am still on antibiotics for a UTI that I didn't know I had, which I think was really cystitis. Anyway, I have 3 more days of Ciptro and Tysabri is tomorrow. Will make sure I take aspirin to keep any fever down. I've been 6 weeks off Tysabri now.
1638868 tn?1309542428 Could you give us a little background on what meds you've tried and for how long? I'm sure you've mentioned it before but I have a hard time keeping track of so much.
738075 tn?1330575844 My symptoms all magnified, and getting through a day of work was monumental. I guess it was all a matter of time before I flared. My last Tysabri infusion was on 11/2/13, and it took my new neuro and new infusion site two months to get their stuff together. The day before yesterday (1/8), I finally got a Tysabri infusion - Halleluiah!!! Hopefully, this flare will subside soon. I'm not one to go for IVSM unless I absolutely have to.