tysabri ldn

Does anyone take LDN for their MS? and what do you think about it? Any info. would be appreciated.

I have a friend who is in a wheelchair from MS and she actually went off Tysabri and on to LDN. She hoped it would get her out of a wheelchair. But it has not. What it has done is similar to what it has done for Craig. Made her feel better emotionally. I have read about LDN and how it can improve autoimmune diseases, and autoimmune thyroid disease in particular.

I am looking into LDN. My current Neurologist will not see me if I am not on a DMD but I am not sure what to do anymore. I have to be able to function in life! Tysabri was fine but I was sleepy a lot and when I would get the stomach flu I would end up in the E.R. every time for fluids. I tried Tecfedera for 6 months and it was wonderful but I developed an allergy. =( My doctor gave me information on Gilenya and Plegridy.

Hi there! I hope your week went well, and you can have a relaxing weekend. Mine has been crazy, and I don't want a repeat next week! First there was huge drama over moving my parents- and that one is continuing on through this weekend. Not much I can actually do, except be there when people come by to pick things up, etc. Next thing that happened is that the owner of the condo I live in wants to sell, now that the market where I live is picking back up.

Now, based on the last MRI, he has officially diagnosed me and is recommending that I go on Tysabri infusions. From what I can tell on this forum, it seems like he's hitting an ant with a sledgehammer. It seems very unusual for people to be prescribed Tysabri right off the bat. I am very confused as to what drug to go on, if any. His first choice for me is Tysabri, followed by Gilenya, followed by Copoxone.

s while on Tysabri, She went off the Tysabri six weeks ago since she was getting alot of new lesions on her spine and wanted to try LDN. Now that she is off the Tysabri, she is having pain for the first time with MS. She is not getting very good effects from the LDN and may end up back on Tysabri. I'll catch up with you later!!

The injections only work 33% if started at the beginning stages of Relapsing Remitting MS. There is Tysabri an infusion and their are drug trials for oral medications. Sometimes they can even use chemo but it is rough stuff. Unfortunately to date these are the only proven treatments. Some people go to other countries to get stem cells. The problem is stem cells can't repair damage they can only in some cases slow future damage but usually only for awhile.

I'm not on LDN but just want to welcome you too. I think I've heard that you can't do LDN with the interferons, but Copaxone is okay. Is that right? You seem to have a lot of symptoms, based on your meds, but it sounds as if they are reasonably well-controlled. Or am I wrong? Do you consider yourself disabled? Do you work, and if not, is that because of MS? I ask because of your sister's situation.

Hi Sam, I have such fatigue that I actually take two provigil a day. It's a life saver. I don't believe I could get up and make it through the day without it. My insurance co. wouldn't approve it at first and I had to go through their hoops (luckily I used to limbo so it wasn't too hard) and take OTHER STUPID stuff first before they approved it. I took Ritalin, Adderall, and one other "ADD medicine" before they approved the Provigil.

My neuro decided to send me to UCSF to see if Tysabri would work for me. We had a LOOONNNNGGG talk about the risks and the specialist gave me the impression that the risks were MUCH lower than they are. He also gave me the impression that if I tested negative for the JC virus antibodies that my risks were almost nil..

In the three real studies that have looked at LDN objectively it is not at all clear that LDN can improve MS at all. In one test there was not even any clear evidence that it even improved the Quality of Life while letting the disease march on. To my knowledge these are still the only truly evidence-based studies that have been concluded. Here are summaries of those studies: http://www.medhelp.org/health_pages/Multiple-Sclerosis/Low-Dose-Naltrexone-LDN---Three-Studies/show/1096?

BTW, when I first started LDN, LDN gave me dry mouth relief, in just 8 days. I am still a strong believe in LDN and just hope that it continues to work for me on SS and IC. Any comment is appreciated.

Someone mentioned as to whether or not you have considered LDN. I have been using LDN since the middle of march and just within the last two weeks have been feeling better. I mean, I am having more good days then before. The following information is written by a medical doctor Dr. Bob Lawerence, who himself has MS and uses LDN. What is Low Dose Naltrexone? Naltrexone is a drug called an opiate antagonist.

I would love to see more studies done on LDN and not just anecdotal evidence. When I search clinicaltrials.gov to trials on LDN, there are 16 current clinical trials listed. Unfortunately not a single one of them relates to MS. Lala, was this person an MS patient or a different type of disease? Just wondering.

My neuro said the exact same thing last week, about not necessarily doing MRI's and that he treats patients, not MRI's! They must teach them that line in neuro school. db ps: you mentioned being out of the country in May. Are you going anywhere fun?

Is anyone on the forum taking LDN?? If so, what are your opinions about it and did the neuro prescribe it or another doctor?

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