tysabri label

Will Tysabri help me if I can't walk very good at all? It's everyday all day,I think I have progressed from RRMS to Secondary progressive.

This report is from the NASDAQ ******* business site - tracking key issues on the stock market - Biogen's stock fell Friday on heavy trading with the release of this news about their star drug ...... it is astonishing to think they make $1 BILLION dollars a year on this drug. - Lulu 4th UPDATE: EU Reviewing Biogen, Elan's Tysabri; Cites PML (Updates with FDA comments, beginning in the third paragraph.

One idea is Rituximab ( if my medical will accept off label). My doc has patieints on it, they are doing well on it. Who ouut there on foum has taken it?

Only Tysabri has shown the abilty to cut relapses and lesions by 2/3s. Tysabri is relatively new and is still has some issues. In fact no one knows what it does after 2 years. The more std. MS drugs, which are primarily interferons by the names of Avonex, Rebif and Betaseron cut MS activity by about 1/3. And thats if you have Relapsing Remitting MS. The drugs are all injected. A new drug that is oral "finglomod" is in phase 3 clinical trials.

HI Candy, So sorry to hear of the new developments! I hope that your lipoma is just a lipoma. The bladder/vaginal wall surgery does NOT sound like fun. My sympathies and good wishes that all goes smoothly! As for status of SPMS, Tysabri has been known to help with stage per my neuro. Has it been considered? Remember that it's just a label and you are who you were before the label. Keep ightiing! You a strong one!!!

Dear Mrs Davies, I am really shocked that you could argue about any consideration concerning gender. A doctor cares about his patients regardless any particular or personal point either gender or religion or origin. You just CANNOT write and even think about that. I perfectly explained to you the importance of the new lesions in the spinal cord. These lesions are at high risk of developping paraplegia in the following months.

He decided it was time to try Tysabri. So last June he sent me to UCSF to check if I could go in the program and I got in right away. I saw my regular neuro again in July and his attitude was like...well they have control of your meds now so what do you want me to do for you?? HHHMMMM you scheduled a follow up appt, so I came. So he did reschedule me for 6 months out anyway. I went to UCSF to get a brain MRI and check up on Jan 5th. Brain MRI looks like no changes...

my doctor had me try an incontinence drug that was designed for men with enlarged prostates. Obviously that problem doesn't apply to me so my use was off-label. My insurance questioned it but eventually allowed me to try it (btw, it didn't help!). I'm wondering if dmd's could also be rx'd for PPMS patients? The thing is there is no proof that they would work. Sorry, but I am just thinking in words here ... this might make no sense at all.

Food for thought for those on, or conteplating, Tysabri. Blood antibody testing for JCV may not be enough. http://www.medpagetoday.com/Neurology/MultipleSclerosis/39649?

Janine, Wishing you well with the new oral med. Like Daisy girl, I was given the options for Tysabri and Gilenya. I will be doing Tysabri, for 1 year. If not doing what it "should" be doing, I will then most likely start Gilenya.

As of March 2008, more than 26,000 patients were on Tysabri® worldwide. Since the re-launch of Tysabri in July 2006, no new cases of progressive multifocal leukoencephalopathy (PML) have been reported. PML is an often-fatal viral infection of the brain. Data from the PLEX study suggest that plasma exchange may be an effective procedure for accelerating the removal of Tysabri from the blood if PML infection is suspected.

Hi MBHB - Having MS is not cheap! Even with pretty good insurance It can be very expensive. I'm on Rituan. MS is an off label use of rituxan, so most insurance won't pay. Mine does pay and my out of pocet for rituxan alone is close to $5,000/year! I'm hearing a lot of insurance company push back on the new dosing of Copaxone. Hopefully they will cover the old dose. It looks like Teva has some co-pay assistance programs, which I'm sure you've researched.

RITOXIN WILL BE AVAILABLE IN OUR AREA IN FEBUARY,THE CLINIC TRIALS ARE PROMISING. MANY IN ARE AREA ARE LOOKING FORWARD TO IT.

They found out the reason people contracted PML was because they were taking Avonex/and the other MS medications with Tysabri. I think the Tysabri has given me a second chance at helping slow my disease progress, but with out it I would be on no MS medications to slow the disease. I did alot of research before I decided to start the medication and the one resource that helped me make my decision was reading the Tysabri diaries on line. www.msrc.co.uk/index.cfm?

I have had MD for 18 years. Been on Avonex, Betaseron, Tysabri, and now Tecfidera. Unfortunately, I'm also on lots of other medications, mostly due to terrible central pain. My neurologist made me stop the Tysabri after 24 infusions because of safety concerns. I felt my overall best while on Tysabri and have asked him if and when I might be able to go back on the monthly infusions. He does not have an answer for me at this point.

Are any of you on Tysabri? My doctor has suggested that I consider starting Tysabri treatment. His neurology practice runs a TOUCH infusion center. I've been on Copaxone for four years and have just had my first flareup. My recent MRI shows progression of MS with T2 hyperintense white matter lesions in the pons of the brainstem and the frontal lobe. Several of the older lesions have increased in size. Five years ago I was on Avonex. I had multiple flare-ups the whole year on this med.

I would like some information/details from anyone who has had (or seen) the rash you can get from Tysabril and/or PML?? I have been on Tysabri 10 years so far without any major issues. I was outside after my treatment for 10 minutes or so. After taking my shirt off, my husband gasped and asked what was wrong with my back.

I've been tested twice in the last year, and they were both negative. Since you can acquire JCV at any time, I opt to have my status tested once a year since I'm on Tysabri. There is also a Tysabri antibody titre available, now. I plan on doing that once a year, too, although development of Tysabri antibodies is relatively rare.

My new neuro suggested Tysabri based on increased lesions on Interferon (Rebif). Any persons out there on Tysabri that could share their experience?

Hi All. I've had MS for 12 years (was diagnosed in 1999 at 15 and am now 27) however I am new to this post. I've been on Avonex, Copxaone, Tysabri, and Gilenya...all of which either worked then stopped or just never worked. Being on Gilenya didn't work for me...I had about 3 flairs between March and June while I was on it plus activity on MRI's. I went to a different neuro who suggested Rituximab so I'm tryin to find some info on it.

Common Questions and Answers about Tysabri label

tysabri