tysabri knee pain

09 and I have since switched to Tysabri. With tysabri, all of my symptoms, (tingling, numbness, and pain) are all but gone. For me, Tysabri was more effective then Copaxone, but if you have MS and are thinking of switching, Tysabri is a very dangerous drug, inform yourself before making the decision.

Well, after long bouts of coughing and not breathing well and knee pain (the 2 are not related, just having a couple things at once.) The breathing issue is very bad asthma. Thank goodness no pneumonia, but I do have bronchitis which brought on the nasty asthma. So, new antibiotic, inhaler, nebulizer med, and STEROIDS. I am thinking about passing on the steroids, as it for make the Tysabri infusion another month out. We will see, although I couldn't have the Tysabri being sick either.

My right leg has the spasticity in my knee and part of the thigh but now I feel it in my left knee and thigh. I thought Friday I was feeling it but ignored it. Now I know I feel it. What's weird is how I'm getting symptoms on the same side. I thought that wasn't typical of MS.

Just flew to Pa and back, not having flown since 2007 (boy the TSA changes) and experienced extreme ear pain upon descent and landing and for several hours afterwards. Tried peppermints, gum, swallowing, you name it………. Could it be one of those quirky little symptoms that come and go on those occasions (not looking forward to that again…..

I was off on Tuesday to make the Tysabri run to Columbus. Unlike poor Sarah, the Tysabri seems to be good for me with none of the dreaded side effects. Here's to a good week for everyone!

) He urged me to get a second opinion, which I did- and that neurologist agreed with him- definitely "not typical", but "what else could it be?". We had already ruled out motor-neuron disease, because they stuck a bunch of needles in me and said that "it is not motor neuron disease.". After my first exacerbation in October 2007- when they changed my diagnosis to progressive relapsing MS- my doctor put me on Novantrone, which is a type of chemotherapy.

Her sympthoms are dissappeared, but after she left the hospital, she experienced some problems, like knee pain, spinal pain, she feel her legs overburdened, and she complained yesterday, when she washed her hands in hot water she feels some tinglings. These sympthoms sound like a new relapse, but it would be so uncommon, because the steroid worked well (double vision, mild swallowing problems disappeared). So is it a side effect of steroid?? What do you think?

I have had MD for 18 years. Been on Avonex, Betaseron, Tysabri, and now Tecfidera. Unfortunately, I'm also on lots of other medications, mostly due to terrible central pain. My neurologist made me stop the Tysabri after 24 infusions because of safety concerns. I felt my overall best while on Tysabri and have asked him if and when I might be able to go back on the monthly infusions. He does not have an answer for me at this point.

He feels that Tysabri is the way to go. I know that there are others here on it or used to be. I would love some insight on what to expect, how long it takes, etc... Thanks!

He said none of his other Tysabri patients have had joint pain, and he looked kind of perplexed and troubled......I just laughed, and told him my body never does anything the normal way, so he might as well get used to it, lol. We talked a bit about the newest case of PML here in the USA. It hasn't changed his feelings about Tysabri, and he said that he feels there will be more cases popping up as we go along.

It started with a very bad uti antibiotics doing its job but slowly. 6 month tysabri follow up with neuro told her bout increase in pain in legs and some other problems. We decided on baclofen half tab at bedtime then increase to 3 tines a day . I held of on taking it last week because of the uti. I took half tab on thurs night within an hr I was itchy few red bumps looked like mosquito bites didnt think of anything else.

Hi Guys, Sorry it's taken me so long to update things. It has been kind of a rough month on my end.. :) Fair warning - this is kinda long, lol. My last infusion was Nov. 4th. Two days later I got a wicked virus, and it took 5 days before I felt better. I got sent home from work 2 days in a row cause I was so sick. Two days after I got over that, the pain in my hip started again. This time, after a few days, it also went down my thigh and into my knee.

Anyway, went on to have EEG then Tysabri after 3 hours of off and on searching for a site. Finally asked for some pain med, even Advil for my worn out body. At least my left knee was protected by by brace from the ER. It's always something......

Hello all, It just suddenly occurred to me that I hadn't logged in here for ages so I thought I'd see how everybody is getting on. Also, for those of you who knew I was not on a treatment for a long time, I have started Tysabri! My second infusion is on Thursday & I'm daring to feel very positive. I was very surprised by the first infusion.

Thanks all! I do have to admit I am tired at the moment, had an additional 5 boys here today, ALL day, and I am pooped. Why I do this to myself, I don't know. Need to be more careful and not push it. Still learning how to care for me, anyway... Ren, last time I wrote it all down what they do in the ER to fix it. 1st I get the "cocktail" of anti nausea med mixed with pain med. The pain med does nothing for me, but the anti nausea med is great.

I have a new symptom where my feet and sometimes my hands have a shooting or pulsing pain where it feels like the pain you have if they have gotten very cold and are warming up. Any ideas?

Hey Guys, Just wanted to give you all a heads up, in the interest of us all being informed patients... :) I saw this article this morning, and here's the crux of it: "New Case of PML Confirmed in U.S. A new case of PML, or progressive multifocal leukoencephalopathy, has been confirmed in the U.S., in a patient receiving Tysabri for the treatment of MS. After 14 treatments, the patient reported a change in health status, and the patient’s physician began testing for PML.

We had another post about that very thing, and try not to compare yourself with other people with MS, cause we are all so very different, and react to different pain tolerances, and such, some people do well, and some not so well. Kinda like giving birth. Some people breeze through it, and some go through hell.............. MS is very much like that. sO, be yourself, and just concentrate on you and your symptons at the time. They will tell you what to do, don`t let it be everyone else.

Hello, I was wondering if I took tysabri with having MS also RSD because with having the rsd it does weakend my immune system, I don't believe this would be a very wise decision do you?

He asked me whether I was interested in being in the Tysabri study. I am only 37 and have only had one relapse. I know I will be deciding on a treatment and not sure what direction to go. This neuro is big in research and he spent a lot of time talking with me about MS. He mentioned a JC Virus and took my blood to look for it. If I don't, I would be a good candidate for Tysabri. It has 67% reduction in relapses but also risks getting PML.

Question for you - are you injecting high in your thigh? If so, the better spot would be lower, not as low as your knee, but higher than the knee and lower than high thigh. Hip is less hip and more love handle. So, if you place the palm of your hand on your butt cheek then come straight up and then over to the left or the right. And, that hunk of skin there takes injections well. The charts they provide are definitely off in my opinion.

Tysabri knee pain

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