Tysabri joint pain

Common Questions and Answers about Tysabri joint pain

tysabri

Avatar f tn I also had a headache and joint pain right after the infusion. Will Tysabri help with tiredness after a few infusions?
10624661 tn?1414900629 I just wish the government was more understanding and give back what I have paid in all the years I was able to work without giving me the run around and putting us through unnecessary stress. I can relate to the joint pain, the mobility and balance, unfortunately we have had to get another potty seat to fit over our potty because they are so low and its harder to get up and down as well as a walker for stability. My husband donated mine when he thought I was going to get better..
Avatar n tn Oops hit the wrong button there. I think that is how it is spelt all I know is it is severe joint pain that I have had for years and neuros keep telling me that it is not an MS thing it is probably a disk problem which I have had MRI's for the disk but nothing so then off to physcial therapy who says it's not disk. I know it sounds really bad but I am actually hoping that it is this RA because my pain is gone and all I do for it is iv steriods.
1458012 tn?1285582530 my concerns with Tysabri are the other side effects like joint pain, increased depression, and weakened immune system. I work in healthcare in an outpatient lab and draw blood from ill people daily. Last year a co worker contracted H1N1 quite possibly from another patient. Are my risks MORE being in healthcare??
294425 tn?1288528395 I have heard of the joint pain with Tysabri. I also had that when I used to take Avonex. I could always relate it to my injection. Are your doctors willing to give you something to help combat any side effects from your injection? When you say that this pain seems to get bad after your injection and last for days, tells ME that I DO believe it IS caused from your injection. I wish I had some better answers to your plight.
294425 tn?1288528395 He said none of his other Tysabri patients have had joint pain, and he looked kind of perplexed and troubled......I just laughed, and told him my body never does anything the normal way, so he might as well get used to it, lol. We talked a bit about the newest case of PML here in the USA. It hasn't changed his feelings about Tysabri, and he said that he feels there will be more cases popping up as we go along.
4848471 tn?1372238752 There is an alogirthm for the chances of contracting PML while on tysabri. I believe it is on the tysabri website among other places. I will see if I can find it for you and report back.
294425 tn?1288528395 Hi Guys, Sorry it's taken me so long to update things. It has been kind of a rough month on my end.. :) Fair warning - this is kinda long, lol. My last infusion was Nov. 4th. Two days later I got a wicked virus, and it took 5 days before I felt better. I got sent home from work 2 days in a row cause I was so sick. Two days after I got over that, the pain in my hip started again. This time, after a few days, it also went down my thigh and into my knee.
739070 tn?1338603402 This morning , after sleeping 15 hours , I wake up to severe muscle aches and joint pain; so is it a relapse, drug reaction, Tysabri reaction or whatever? Anybody come close with the flu -like symptoms or are they a pseudo-relapse from the UTI and stress. Anybody? Already have plans to call neuro and PCP Monday.
294425 tn?1288528395 s are VERY common - everyone I have talked to has had a problem with them to one degree or another. Several have also had joint pain - one other woman also in her hip, which also was hideous pain for a while, just like me. I just try to be aware of all these things, but not obsess over them, you know? This month showed me that Tysabri was already starting to make a difference for me, so to me, the risks are worth it. There's really nothing else out there for me right now anyway...
Avatar f tn I have had MD for 18 years. Been on Avonex, Betaseron, Tysabri, and now Tecfidera. Unfortunately, I'm also on lots of other medications, mostly due to terrible central pain. My neurologist made me stop the Tysabri after 24 infusions because of safety concerns. I felt my overall best while on Tysabri and have asked him if and when I might be able to go back on the monthly infusions. He does not have an answer for me at this point.
1760800 tn?1406753451 He feels that Tysabri is the way to go. I know that there are others here on it or used to be. I would love some insight on what to expect, how long it takes, etc... Thanks!
1088527 tn?1425313375 It started with a very bad uti antibiotics doing its job but slowly. 6 month tysabri follow up with neuro told her bout increase in pain in legs and some other problems. We decided on baclofen half tab at bedtime then increase to 3 tines a day . I held of on taking it last week because of the uti. I took half tab on thurs night within an hr I was itchy few red bumps looked like mosquito bites didnt think of anything else.
1896537 tn?1381900009 Hello all, It just suddenly occurred to me that I hadn't logged in here for ages so I thought I'd see how everybody is getting on. Also, for those of you who knew I was not on a treatment for a long time, I have started Tysabri! My second infusion is on Thursday & I'm daring to feel very positive. I was very surprised by the first infusion.
645390 tn?1338555377 Thanks all! I do have to admit I am tired at the moment, had an additional 5 boys here today, ALL day, and I am pooped. Why I do this to myself, I don't know. Need to be more careful and not push it. Still learning how to care for me, anyway... Ren, last time I wrote it all down what they do in the ER to fix it. 1st I get the "cocktail" of anti nausea med mixed with pain med. The pain med does nothing for me, but the anti nausea med is great.
Avatar f tn I have a new symptom where my feet and sometimes my hands have a shooting or pulsing pain where it feels like the pain you have if they have gotten very cold and are warming up. Any ideas?
233622 tn?1279334905 s like having sand paper rubbed on them. I did ask for meds to help with the pain, but his answer was Tysabri will take care of that!!! So I just have to suffer. I suppose I'm lucky it's still hot here and I don't have to wear anything on my legs. I can touch them, but if anyone else does I shoot through the roof!
1637739 tn?1371688706 He asked me whether I was interested in being in the Tysabri study. I am only 37 and have only had one relapse. I know I will be deciding on a treatment and not sure what direction to go. This neuro is big in research and he spent a lot of time talking with me about MS. He mentioned a JC Virus and took my blood to look for it. If I don't, I would be a good candidate for Tysabri. It has 67% reduction in relapses but also risks getting PML.
Avatar f tn t last long either because my doctor found legions on my spine and told me he thought tysabri would be the best option and I needed to make my decision quick. I did do my research on tysabri but I don't think I want to be on this for the rest of my life. I know the pros and cons of this infusion process still being that this is all new to me I don't want to later find out along with MS I have this blood disease. I really need to deal with one illness at a time.
1475492 tn?1332884167 Hi SS - Congrats on your move to Portlandia. Even bigger congrats on getting back in your running shoes! Keeping our bodies as strong as we can is really important. As to Tysabri's healing powers I'm not so sure. I am sure that it is effective at dramatically slowing the progress of MS. I'v had 18 infusions and Tysabri is the only DMD I've used. Since starting Tysabri I've seen no appreciable worsening of my MS. If I can stay where I am now I'll be very happy.
Avatar f tn relapse/flair, whatever. It was 9 days of no fun. They even refused my Tysabri last week because I had a fever of 99.0. Am still on antibiotics for a UTI that I didn't know I had, which I think was really cystitis. Anyway, I have 3 more days of Ciptro and Tysabri is tomorrow. Will make sure I take aspirin to keep any fever down. I've been 6 weeks off Tysabri now.
645390 tn?1338555377 I am having a side effect from , I think, from my 1st Tysabri infusion 3 days ago. About 15 minutes into the infusion, I became extremely nauseous. It got really bad, and I needed a bucket. Got better, and has been coming in waves ever since. I spoke with NP at neuros office yesterday. Called in an anti-nausea medication. That is giving me a bad bad headache. The NP told me she had never heard of nausea as a side effect. She thinks it is coincidental. Has anyone here experienced that?
Avatar m tn I just finished my first go at IV solu-medrol two weekend ago. I had similar, what the home nurse called "side effects" immediately beginning treatment similar to your sisters (joint pain, mainly). This, and many more "tolerable" side effects are normal. So I wouldn't be alarmed. I was found to have a few more severe, negative side effects throughout the dosing such as steroid induced psychosis and trouble breathing.