tysabri jaw pain

Hi and welcome to our little MS community, I really don't know what really would help your step mum, i would expect by now most things I know of would of been tried or considered already eg combination of muscle relaxant and neuropathic pain relief, botox, physiotherapy, routines of massage and gentle stretching though out the day etc To be honest, i'm concerned with the body positioning of her legs being bent and placed on either side of her body.

I have had MD for 18 years. Been on Avonex, Betaseron, Tysabri, and now Tecfidera. Unfortunately, I'm also on lots of other medications, mostly due to terrible central pain. My neurologist made me stop the Tysabri after 24 infusions because of safety concerns. I felt my overall best while on Tysabri and have asked him if and when I might be able to go back on the monthly infusions. He does not have an answer for me at this point.

He feels that Tysabri is the way to go. I know that there are others here on it or used to be. I would love some insight on what to expect, how long it takes, etc... Thanks!

He said none of his other Tysabri patients have had joint pain, and he looked kind of perplexed and troubled......I just laughed, and told him my body never does anything the normal way, so he might as well get used to it, lol. We talked a bit about the newest case of PML here in the USA. It hasn't changed his feelings about Tysabri, and he said that he feels there will be more cases popping up as we go along.

It started with a very bad uti antibiotics doing its job but slowly. 6 month tysabri follow up with neuro told her bout increase in pain in legs and some other problems. We decided on baclofen half tab at bedtime then increase to 3 tines a day . I held of on taking it last week because of the uti. I took half tab on thurs night within an hr I was itchy few red bumps looked like mosquito bites didnt think of anything else.

Hello all, It just suddenly occurred to me that I hadn't logged in here for ages so I thought I'd see how everybody is getting on. Also, for those of you who knew I was not on a treatment for a long time, I have started Tysabri! My second infusion is on Thursday & I'm daring to feel very positive. I was very surprised by the first infusion.

Thanks all! I do have to admit I am tired at the moment, had an additional 5 boys here today, ALL day, and I am pooped. Why I do this to myself, I don't know. Need to be more careful and not push it. Still learning how to care for me, anyway... Ren, last time I wrote it all down what they do in the ER to fix it. 1st I get the "cocktail" of anti nausea med mixed with pain med. The pain med does nothing for me, but the anti nausea med is great.

I have a new symptom where my feet and sometimes my hands have a shooting or pulsing pain where it feels like the pain you have if they have gotten very cold and are warming up. Any ideas?

Hey Guys, Just wanted to give you all a heads up, in the interest of us all being informed patients... :) I saw this article this morning, and here's the crux of it: "New Case of PML Confirmed in U.S. A new case of PML, or progressive multifocal leukoencephalopathy, has been confirmed in the U.S., in a patient receiving Tysabri for the treatment of MS. After 14 treatments, the patient reported a change in health status, and the patient’s physician began testing for PML.

Hello, I was wondering if I took tysabri with having MS also RSD because with having the rsd it does weakend my immune system, I don't believe this would be a very wise decision do you?

He asked me whether I was interested in being in the Tysabri study. I am only 37 and have only had one relapse. I know I will be deciding on a treatment and not sure what direction to go. This neuro is big in research and he spent a lot of time talking with me about MS. He mentioned a JC Virus and took my blood to look for it. If I don't, I would be a good candidate for Tysabri. It has 67% reduction in relapses but also risks getting PML.

t last long either because my doctor found legions on my spine and told me he thought tysabri would be the best option and I needed to make my decision quick. I did do my research on tysabri but I don't think I want to be on this for the rest of my life. I know the pros and cons of this infusion process still being that this is all new to me I don't want to later find out along with MS I have this blood disease. I really need to deal with one illness at a time.

Hi SS - Congrats on your move to Portlandia. Even bigger congrats on getting back in your running shoes! Keeping our bodies as strong as we can is really important. As to Tysabri's healing powers I'm not so sure. I am sure that it is effective at dramatically slowing the progress of MS. I'v had 18 infusions and Tysabri is the only DMD I've used. Since starting Tysabri I've seen no appreciable worsening of my MS. If I can stay where I am now I'll be very happy.

relapse/flair, whatever. It was 9 days of no fun. They even refused my Tysabri last week because I had a fever of 99.0. Am still on antibiotics for a UTI that I didn't know I had, which I think was really cystitis. Anyway, I have 3 more days of Ciptro and Tysabri is tomorrow. Will make sure I take aspirin to keep any fever down. I've been 6 weeks off Tysabri now.

I am having a side effect from , I think, from my 1st Tysabri infusion 3 days ago. About 15 minutes into the infusion, I became extremely nauseous. It got really bad, and I needed a bucket. Got better, and has been coming in waves ever since. I spoke with NP at neuros office yesterday. Called in an anti-nausea medication. That is giving me a bad bad headache. The NP told me she had never heard of nausea as a side effect. She thinks it is coincidental. Has anyone here experienced that?

Has anyone taking tysabri having any side effects such as jerking of the hands and legs? And extreme weakness of he legs?

I also had a headache and joint pain right after the infusion. Will Tysabri help with tiredness after a few infusions?

May I ask a question about spasms? I'd like to know if man of you have experienced a sudden spasm in your back? I started the day with a searing pain in my lower back as I was just standing chatting and I ignored the stiffness/soreness and walked into town and back (about two miles) and when I eventually got back I found I couldn't sit without pain and I can only have stand up as the pain is so much.

Hi everyone, I'm having a hard time doing my Copaxone injections since I've lost so much weight from my cancer (down to only 82 lbs now). I can't handle the pain from the injections anymore. I'm going in to talk to the PA of my neuro to see about maybe starting Tysabri or Gilenya. It seems my insurance, Aetna, may require me to try Rebif before I'm allowed to try one of these DMDs. Anyone else have the same issue?

I have recently been going through all the same sort of symptoms as you have listed, including the jaw pain. I think it is hormone related as I have heard of other people going through it too. I am currently getting tested and may be referred to an endocrinologist shortly to find out if my symptoms are due to early menopause. So if I find out anymore about it, I will let you know.

I woke up yesterday with horrendous jaw pain (mostly left side). Has anyone experience this? Any suggestions on how to relieve the pain? Or what may be causing it?

Tysabri jaw pain

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