Tysabri iris
Common Questions and Answers about Tysabri iris
tysabri
I was offered Gilenya when I had problems with Tysabri (which turned out to be something other than Tysabri that caused it) and after reading the cardiac warnings and other side effects, chose not to take it.
Tysabri has a wonderful financial support program. They fully donated my first 4 months of Tysabri until I could get an insurance program in place.
Tysabri is considered an "outpatient" procedure and under my insurance, is paid for now at 100%.
Iris color can be affected by trauma, if there was bleeding in the eye (hyphema) it can make the eye darker and also stain the cornea, or trauma can cause the pigment in the iris to fall out making it lighter in color.
They found out the reason people contracted PML was because they were taking Avonex/and the other MS medications with Tysabri. I think the Tysabri has given me a second chance at helping slow my disease progress, but with out it I would be on no MS medications to slow the disease. I did alot of research before I decided to start the medication and the one resource that helped me make my decision was reading the Tysabri diaries on line.
www.msrc.co.uk/index.cfm?
I have had MD for 18 years. Been on Avonex, Betaseron, Tysabri, and now Tecfidera. Unfortunately, I'm also on lots of other medications, mostly due to terrible central pain. My neurologist made me stop the Tysabri after 24 infusions because of safety concerns. I felt my overall best while on Tysabri and have asked him if and when I might be able to go back on the monthly infusions. He does not have an answer for me at this point.
Are any of you on Tysabri? My doctor has suggested that I consider starting Tysabri treatment. His neurology practice runs a TOUCH infusion center. I've been on Copaxone for four years and have just had my first flareup. My recent MRI shows progression of MS with T2 hyperintense white matter lesions in the pons of the brainstem and the frontal lobe. Several of the older lesions have increased in size. Five years ago I was on Avonex. I had multiple flare-ups the whole year on this med.
I would like some information/details from anyone who has had (or seen) the rash you can get from Tysabril and/or PML?? I have been on Tysabri 10 years so far without any major issues. I was outside after my treatment for 10 minutes or so. After taking my shirt off, my husband gasped and asked what was wrong with my back.
Question 1 - Has anyone been told or heard of light colored eyed people having more danger of damage to the iris during surgery/procedures? Maybe called a "thin" iris? Question 2 - Can someone with mild Fuchs Corneal Dystrophy wear contact lenses? I was told that if said damage to iris occurs a colored contact can be worn to offset the problem of glare.
97 cataract surgery). It was replaced with an anterior lens. In the process, the iris was torn to the extent that the new lens does not completlely cover my enlarged pupil, resulting in light "ghosts" to left of object light plus "ghosts of those ghosts" to right of object light. Vision 20-60, at best.
Regarding my "ghost" issue I've been told a LARGER (custom) lens is improbable due to extensive FDA approval process. Does FDA control SIZE of lens?
While feeding our 6 month old daughter yesterday, we noticed a lighter section of colour in her iris at the top right corner of her left eye. It takes up approximately 5% and goes from the white part of her eye (sclera) to the pupil. She has medium to dark blue eyes and this looks to be 30% - 40% lighter than the other sections (a lighter blue). This only shows when you look at it in a specific light, other wise, you would never notice it.
That would be incorrect. The pupil is the hole in the iris. The pupil is not always dark. Many photographs show a red pupil due to flash reflection.
(I have a bad habit of closing them tightly shut) If so can raised eye pressure from squeezing eyelids tightly shut effect the pigments in the iris resulting in hyperpigmentation? , basically does raised eye pressure effect the color of the iris?
I've always had this since birth, but my right iris is not perfectly round. It's almost like there is a small chunk missing. Whenever I've been to the opticians, they have taken rather a long time examining it and obviously find it interesting but I have no idea what it is??? It on the opposite side to my tear duct and doesn't have anything around it. My iris has a very clear line, there's just a bit missing?!?
Any information would be greatly welcomed!
From reading articles about blunt trauma to the eyeball,they say that trauma can change the color of the iris ,how does this happen? Does the whole of the iris change a different color ,like blue to brown or vice versa? Does it turn the iris color darker or lighter? Is this something to do with the pigments?
So now he wants to take me off of the Copaxone, I have been on for a month and a half, and put me on Tysabri. I started the application process and now waiting for them to call me and get the ball rolling on that. Now he mentioned that this is the top of the line MS medication so that does give me some relief.
P.S. I did test negetive for the JC Virus.
Any thoughts, experiences etc on this Tysabri??!!
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