Tysabri infusions treatment

Common Questions and Answers about Tysabri infusions treatment

tysabri

Avatar m tn Rituxan is administered in two infusions, two weeks apart, with infusions taking as long as 6 hours. The 2 infusions are repeated every 6, 9 or 12 months, My second course was 9 months after the first.
Avatar f tn Hope everyone is well. I just wanted to give an update. I had my first Tysabri infusion this morning and I experienced no side effects so far at all. Over the last 2 months I have had some improvment. I still have all my symptoms but they're less intense. So here's hoping for the best. Hoping this medication works at seriously slowing this beast way down. How are things with everyone? I truly hope everyone has been well or well as can be expected.
10624661 tn?1414900629 I do know that my depression has gotten worse due to the fact that I am feeling no better and the Tysabri is approximately $10,000 per treatment. Thankfully we have good insurance and the drug company offers financial assistance since I can no longer work. I just wish the government was more understanding and give back what I have paid in all the years I was able to work without giving me the run around and putting us through unnecessary stress.
Avatar f tn My neurologist made me stop the Tysabri after 24 infusions because of safety concerns. I felt my overall best while on Tysabri and have asked him if and when I might be able to go back on the monthly infusions. He does not have an answer for me at this point. Has anyone out there ever gone back on Tysabri after taking a "holiday" from it in order to clear your body?
Avatar f tn Hi everyone- My fiancé lives in Germany (German citizen) and I live in the US (US citizen). He has received monthly Tysabri infusions for two years. We really want to see if it’s feasible for him to move here vs. me moving there for a multitude of reasons. However, I am nervous that he would somehow end up with a doctor here that wouldn’t extend his monthly Tysabri...I’ve read multiple accounts of people getting 6 infusions or so, but he is indefinitely on Tysabri for RRMS.
198419 tn?1360242356 HI Rita, My friend on Tysabri that you spoke to always got frequent UTI's while on Tysabri, She went off the Tysabri six weeks ago since she was getting alot of new lesions on her spine and wanted to try LDN. Now that she is off the Tysabri, she is having pain for the first time with MS. She is not getting very good effects from the LDN and may end up back on Tysabri. I'll catch up with you later!!
1831849 tn?1383228392 I have failed rebif and my liver didnt tolerate tysabri after 10 infusions. I really didnt like the side effect profile from tecfidera and was hoping this was gonna get approved.
Avatar f tn Some people do not like infusions. I like infusions. I had a situation for cancer when I could take pills instead of infusions. I had to take 16 large pills a day. I was so glad to get back on infusions. The scary part of starting a disease modifying drug is it makes MS real not theoretical. If you were diagnosed in November this is still really new for you. Especially with the holidays. Your doctors have been busy with the holidays.
1842804 tn?1319756311 It seems to be that most folks on tysabri find a noticeable increase in energy and decrease in symptoms after 3-4 infusions. I've also read that the benefits of the tysabri wear down a bit and you may feel not so great the week right before your next treatment. I hope it goes well for you and the tysabri makes a difference.
Avatar f tn m aware of who had a port implanted to receive Tysabri infusions. It was done when the monthly hunt-stick-miss-hunt again-stick again method of inserting a temporary line became too painful and burdensome to bear. I've never had a med-port but my sister had one placed for chemotherapy treatments - twice. She said the surgery itself was more uncomfortable than her (partial) mastectomy - not terrible, mostly just took her by surprise.
Avatar m tn I have been taking Tysabri for about 10 years now. After my treatment yesterday, we stopped at a house we own and worked in the yard about 10-15 minutes. After taking my shirt off when we got home, my husband told me to go look in the mirror at my back. They looked like bug bites, yet we've worked in that yard for about a week and I have not been bothered. I then began to wonder...did this happen because of my treatment....or are they just bug bites of some sort?
Avatar f tn I also had a headache and joint pain right after the infusion. Will Tysabri help with tiredness after a few infusions?
Avatar f tn s the official story. Many Tysabri users report a performance boost just after infusions and a drop off in performance just before the next infusion. I received 20 Tysabri infusions and didn't really feel much of either one. The good news was that I did not feel any obvious progression of my MS. Secondary Progressive MS is the eventual landing spot for 85% of people diagnosed with RRMS. I am among them.
407361 tn?1202070890 My sister, who has MS, is having the Tysabri infusions. I believe she said that her medicine and infusions costs are $7,000 a month. This medicine is quite expensive, and is usually not the first drug of treatment when diagnosed with MS. Typically, the other disease modifying drugs have not worked before this one is prescribed. As far as taking shots for the rest of my life, I really doubt it. What I understand is that a new oral medicine, Fingolimod, will be available next year.
645390 tn?1338555377 My Dr really would like me to continue on Tysabri as oppposed to switching to an oral treatment since apparently Tysabri is working and my risk of danger is very low. You are welcome to send me a message and we can talk more. I can tell u that I too am afraid that my MS is progressing to far and that is why the Drs have moved on to Tysabri, but the Drs won't discuss it and insist I am still labeled RRMS, and just am not having luck with the other meds. Everyone is different.
Avatar n tn Due to onging panceatitis, I am no longer on interferons and most other ms drugs(steroid infusions and such). Are there any medications available to indivuals with this issue? I am now developing new lesions mostly in the spine.
Avatar f tn At the end of July 2008, it was revealed that there were 2 new cases of PML in Europe - in people who were on Tysabri as their only treatment. In Europe, the program to oversee Tysabri is not as stringent as the TOUCH program is here in the US, and that may play into the scenario. There are a number of details that have yet to come out. One of the patients in Europe is recovering pretty well at this point, and one of them is doing very poorly.
1394601 tn?1328032308 I will be having my fourth Tysabri infusion on Monday. I have been keeping a journal ...It is called "Hoping for a Miracle"...lol...At any rate, I had my first infusion a bit too late and landed in the hospital for thirty days. The day I was released I had my second. Now infusion two and three seemed to give me three weeks of great hope.