tysabri infusions

My neurologist made me stop the Tysabri after 24 infusions because of safety concerns. I felt my overall best while on Tysabri and have asked him if and when I might be able to go back on the monthly infusions. He does not have an answer for me at this point. Has anyone out there ever gone back on Tysabri after taking a "holiday" from it in order to clear your body?

Some people do not like infusions. I like infusions. I had a situation for cancer when I could take pills instead of infusions. I had to take 16 large pills a day. I was so glad to get back on infusions. The scary part of starting a disease modifying drug is it makes MS real not theoretical. If you were diagnosed in November this is still really new for you. Especially with the holidays. Your doctors have been busy with the holidays.

Hope everyone is well. I just wanted to give an update. I had my first Tysabri infusion this morning and I experienced no side effects so far at all. Over the last 2 months I have had some improvment. I still have all my symptoms but they're less intense. So here's hoping for the best. Hoping this medication works at seriously slowing this beast way down. How are things with everyone? I truly hope everyone has been well or well as can be expected.

Rituxan is administered in two infusions, two weeks apart, with infusions taking as long as 6 hours. The 2 infusions are repeated every 6, 9 or 12 months, My second course was 9 months after the first.

HI Rita, My friend on Tysabri that you spoke to always got frequent UTI's while on Tysabri, She went off the Tysabri six weeks ago since she was getting alot of new lesions on her spine and wanted to try LDN. Now that she is off the Tysabri, she is having pain for the first time with MS. She is not getting very good effects from the LDN and may end up back on Tysabri. I'll catch up with you later!!

I also had a headache and joint pain right after the infusion. Will Tysabri help with tiredness after a few infusions?

s the official story. Many Tysabri users report a performance boost just after infusions and a drop off in performance just before the next infusion. I received 20 Tysabri infusions and didn't really feel much of either one. The good news was that I did not feel any obvious progression of my MS. Secondary Progressive MS is the eventual landing spot for 85% of people diagnosed with RRMS. I am among them.

Over the last 12 years he has been on Avonex, Betaseron, Copaxone drugs. Now he is completing the 2 year mark of using Tysabri. Dr Appointment in 2 weeks assume he will stop infusions. I wonder what is next???? How are others doing after all these treatment and now what do they take???

Hi everyone- My fiancé lives in Germany (German citizen) and I live in the US (US citizen). He has received monthly Tysabri infusions for two years. We really want to see if it’s feasible for him to move here vs. me moving there for a multitude of reasons. However, I am nervous that he would somehow end up with a doctor here that wouldn’t extend his monthly Tysabri...I’ve read multiple accounts of people getting 6 infusions or so, but he is indefinitely on Tysabri for RRMS.

Hello, My doctor wants to put a port in for my Tysabri infusions. Does anyone have a port? Any downside to having a port? It is becoming more difficult to get an IV started because my veins do not hold up even though they look good. Thanks!

He feels that Tysabri is the way to go. I know that there are others here on it or used to be. I would love some insight on what to expect, how long it takes, etc... Thanks!

I've had 10 infusions of Tysabri. I can say that I'm stable and have had no new flairs or progression on top of what I've had. My MDs want me to take a 3 month vacation from it after my 12th infusion. I'm going to take it after my 11th just to save myself $4000 in co-pay/MOOP. I'm OK with this, as it lessens my chances of getting PML. The infusions aren't painful (other than the IV start), and I've never had any kind of reaction.

Hi, My friend was on Avonex but she was not going well on it so she changed to Tysabri. She seems to be doing ok but has only had around 3 infusions so far. She prefers Tysabri so far and said it is heaps better than Avonex. I saw my neuro recently and asked about Tysabri and what he thought. He doesnt seem to like it, he said it has had some very negative side effects and is too in its early stages. I have been on Rebif for 6 years and think that works great.

My insurance finally approved Tysabri!! Both neuros recommended it, but we've had issues getting approval. My new one was willing to fight for me. I have my first infusion Monday morning. My son graduates on Wednesday so I'm hoping all goes well!

Yes just for the infusions I have crappy veins and it was getting difficult to start a line

Know others have worse problems, but I'd just love a vacation without Tysabri side effects. I diligently took my Prilosec for the 5 days, and wouldn't you know, on the 6th day, I was back in ER that night, hooked up to IV and fluids. They had to give me a bolus bag before they could draw blood for the labs, guess I was dehydrated. I love it when they make regular rounds with WARMED blankets!

I have MS, and recently switched from Copaxone shots (on for 5 1/2 yrs) to Tysabri infusions (I've had three) due to slow decline. I have a flu shot every fall and was wondering if I should have one this year since I'm on a new med.

I've been on tysabri for over a year and developed a bad itchy rash the past 3 months. Thanks so much for your input and I will check back with her posting. Good luck to you too!

Hi T- Did you have any reaction to the first 11 Tysabri infusions? I=Did you also have the IV Solumedrol each time? Generally speaking things like rashes are not associated with MS. I wonder of you had some reaction to the steroids.

Hi - Next month I will have Tysabri infusion #12. I have had no side effects from the drug. In fact, my infusions are a complete non-event. I have not had any relapses since starting Tysabri. It's the only DMD I have ever taken.

Tysabri infusions

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