tysabri infusion side effects

So I just finished my 2nd infusion about a week ago and was wondering what people's side effects were from that. My body felt like I had a severe flu for like 3 days :( . How long also does it take to notice the drug is working for you .

If you have been on tysabri, please share your experience with me. Did you have similar side effects? Did they go away over time? How much time? I have MRIs scheduled on Friday to check for changes and I'm hoping that will help me make some decisions. Thanks in advance for your experienced!

Hi - Next month I will have Tysabri infusion #12. I have had no side effects from the drug. In fact, my infusions are a complete non-event. I have not had any relapses since starting Tysabri. It's the only DMD I have ever taken.

Hope everyone is well. I just wanted to give an update. I had my first Tysabri infusion this morning and I experienced no side effects so far at all. Over the last 2 months I have had some improvment. I still have all my symptoms but they're less intense. So here's hoping for the best. Hoping this medication works at seriously slowing this beast way down. How are things with everyone? I truly hope everyone has been well or well as can be expected.

I just wish I knew if these are reactions/side effects? I could not find anxiety written anywhere as a side effect, however, on the NMSS forum site, someone else posted almost my exact reactions of a shaking, internal tremor, increased heart rate feeling.

s a side effect of the Tysabri could be possible, there are other MSers talking about hives as well as other side effects, below are some i found on a google search... http://multiplesclerosis.net/?s=Tysabri+&submit=Go www.tysabri.com/about/side-effects http://www.nationalmssociety.org/Treating-MS/Medications/Tysabri-%C2%AE Hopefully someone who's on Tysabri will chine in... Cheers.....

Tysabri is a tightly controlled drug because of its black box warnings - that means some people have died from tysabri side effects. You absolutely have to take it at an infusion center. Good luck with the transfer.

The latest date I've seen for an FDA ruling is March 28. Of course this could change. The pricing info I've seen is "in line with other treatments", somewhere around $50,000/year. It may be a new MS drug, but they have been using it in Germany to treat psoriasis for about 10 years. Its safety record is well documented. The risk/side effect profile is substantially better than Tysabri's. I've just tested JCV+ and may have to come off Tysabri.

I'm on my 5th year of Tysabri, and have no side effects. Like Kyle mentioned, I do kind of "crash" about 4 days before my next infusion. I was diagnosed RRMS, but I wouldn't be surprised if I were SPMS in this stage of the game. Tysabri is approved for use with patients with SPMS.

I was changed to Tysabri and had my first infusion yesterday and everything went great, no reactions or side effects. However, I could swear I have more energy today. I have not been shopping for months and today I was able to go shopping. Is this my imagination? Just a rare good day? Or could the med already be having an effect on my fatigue? FYI, all other symptoms are pretty much the same.

I am having a side effect from , I think, from my 1st Tysabri infusion 3 days ago. About 15 minutes into the infusion, I became extremely nauseous. It got really bad, and I needed a bucket. Got better, and has been coming in waves ever since. I spoke with NP at neuros office yesterday. Called in an anti-nausea medication. That is giving me a bad bad headache. The NP told me she had never heard of nausea as a side effect. She thinks it is coincidental. Has anyone here experienced that?

Has anyone had an experience where Tysabri triggered old symptoms to return, or had side effects similar to this? I looked up the side effects and it sounds sort of similar, but it's just odd that what I am feeling is exactly the same as my previous relapse, just way worse. Is this a relapse? Side effects? Something I'm stuck with now? Any thoughts would be helpful! Looking forward to reading more!

Had my first Tysabri infusion this morning! I wasn't sure it was ever going to happen, but it finally did! The nurse had me take Tylenol and Benadryl. Is that something you have to continue to do every time? I don't mind, just wondering. So far I'm not having any issues, but it might be because I took the meds.

I also had a headache and joint pain right after the infusion. Will Tysabri help with tiredness after a few infusions?

My sister had her first Tysabri infusion today and all went well! I was so anxious for her, but for no reason--she sounded great. She had to start the Tysabri because she was getting this terrible-looking, itchy rash which hurt which her neuro (actually our neuro) had said was probably a reaction to her Rebif. She also was progressing in her disease.

I had my first infusion on Thursday after a month of going back and forth with insurance, etc. it went fine...no problems or side effects just yet. This is my first DMD so we'll see how it goes. I'm hoping to start feeling better soon.

I had my first one yesterday and no side effects at all . the nurse was able to get the iv started first try and it didn't even hurt I hope the rest of my infusions go like this one did.

It is taken, not because of my MS, but because of my reaction to the Tysabri. I have side effects and the Decadron takes care of that nicely. So, that said, the steroid is not treating the MS, it is treating the side effects. Hope that helps explain what I originally said......sometimes cog fog gets in the way.

That is when I asked my Dr. about Tysabri. This is a monthly infusion that last 1 hour. My first infusion made my heartbeat a little fast, but I was nervous. I went straight home after the infusion because I expected to be sick. I wasn't! As the day went on I started to feel like I had more energy, but I was afraid if I got up and started doing things I might end up sick so, I just rested that day. The next day I woke up feeling great...

I am glad to hear that other people are researching Tysabri and not just shying away from the drug due to the possible side effects. All medications have terrible side effects and if we read about every medication we took....then we probably would not take anything. I believe the Tysabri has started to give me my life back and I pray that the longer I take it - the better things will get. Someone had asked about UTI's.

No two people have the same experience. Our bodies are all different. All you can do is give it a try. Have the side effects in mind but know that you will probably not get most of them. By law they have to list them. Some people do not like infusions. I like infusions. I had a situation for cancer when I could take pills instead of infusions. I had to take 16 large pills a day. I was so glad to get back on infusions.

Tysabri infusion side effects

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