tysabri infusion no 1

After waiting for insurance to approve and waiting for rebif to clean out of my body I had my first tysabri infusion on June 3rd, 2014. By the next day I could tell that it was easier to get up and my balance seemed better. I didn't notice anything else but was excited about what improvements I would have in the future. I felt the same after infusion #2 but was hoping for more. After my third infusion I had a bad headache for 2 days and didn't feel any improvements.

I was on Tysabri for 20 months. It was my first DMD. I had no negative reaction to it. The infusions typically took about an hour, once a month. Some infusion centers make you hang around for an hour after the infusion to make sure you're OK. Thankfully mine was not one of them :-) Your JC virus status will be monitored while you are getting Tysabri. This is done via blood test. The risk associated with being JCV + and getting Tysabri is PML. PML is a rather nasty little brain infection.

Sorry to hear that you are having Tysabri side effects. I've had 4 infusions and no ill effects at all.

Count me as one... :) Just the one infusion so far, 2 wks ago. No major change in symptoms. The bugs are crawling up and down my back again, and the buzzing in my pelvis is back again....they seemed to back off after the first infusion. Still having pain in my hip joint off and on. Now just found out I have a UTI - haven't had one in 20 or 25 yrs. Is it related to the Tysabri or just dumb luck?? I guess we will find out as time goes by...

That is when I asked my Dr. about Tysabri. This is a monthly infusion that last 1 hour. My first infusion made my heartbeat a little fast, but I was nervous. I went straight home after the infusion because I expected to be sick. I wasn't! As the day went on I started to feel like I had more energy, but I was afraid if I got up and started doing things I might end up sick so, I just rested that day. The next day I woke up feeling great...

I will hope along with you - may tysabri do good things for you. I have my 7th infusion on Monday. It will take a couple months before you feel the difference.

So you said no issues from the Tysabri infusion? That sounds wonderful to me since my list of allergies is up to 7 or 8. Why was the Tysabri chosen over the others, if you don't mind sharing? I almost but just almost, wish my neuro was firmer in his decisions. It took a lot of pushing to get his true feelings because with MS, ANYTHING can happen and after 30 + years in practice nothing in MS surprises him.

Does anyone have information on Tysabri? I haven't been told much on it, although I have been told by 3 different doctors I should take a look at it. I would like to know what others on it experience or experienced while on it?

Sometimes (not often, thankfully!), the nurse has a hard time starting my i.v.. This last infusion was one of them. I don't get Decadron with my Tysabri - I just take it neat. ;-) There will be bad days along with the good, like so many other repeated situations. Enjoy your holiday, and your new home in the woods! Cheers!

The day before yesterday (1/8), I finally got a Tysabri infusion - Halleluiah!!! Hopefully, this flare will subside soon. I'm not one to go for IVSM unless I absolutely have to. Using a stick full time, now, but still up for a bike ride as soon as this flare settles down. Anyone wanna ride?

From your question I am not sure if you are talking about the cost of the Tysabri or the cost of the infusion center (or wherever you get your monthly IV's done). Have you talked to the BioGen folks about assistance with this cost? You could also maybe apply to NORD, but I understand that is a time consuming process. Before you make a final decision, please go to your neurologist and have this discussion with your doctor.

m starting tysabri - first infusion tomorrow. After going through a nightmarish war with my insurance (you probably know that...) it was finally approved. So tomorrow if THE day. I think I'm slightly nervous after all (thought I wouldn't be). I'd love if you could share your post-infusion experiences - should I expect any awful side effects? If so, how long do they usually last?

I was changed to Tysabri and had my first infusion yesterday and everything went great, no reactions or side effects. However, I could swear I have more energy today. I have not been shopping for months and today I was able to go shopping. Is this my imagination? Just a rare good day? Or could the med already be having an effect on my fatigue? FYI, all other symptoms are pretty much the same.

Hope everyone is well. I just wanted to give an update. I had my first Tysabri infusion this morning and I experienced no side effects so far at all. Over the last 2 months I have had some improvment. I still have all my symptoms but they're less intense. So here's hoping for the best. Hoping this medication works at seriously slowing this beast way down. How are things with everyone? I truly hope everyone has been well or well as can be expected.

Ren, Good luck with Tysabri #1! I hope it will help you like it has helped me. I go for infusion #36 in a week or so, and so far so good. Still waiting to hear my JC virus antibody status. Did they test you for that? Hopefully the infusions will be as uneventful for you as they are for me.... :-) Keep us posted and let us know how it goes - PM me if there's any way I can help.

My neurologist told me that after the first infusion I would feel good and then the closer it got to the end of the month I would feel bad again. She after the third infusion I would have a level amount of Tysabri in my blood. I guess she was right because I don't feel sick any more after the infusion....just very sleepy. Hang in there and remember there are alot of people praying for you. Keep us updated on your prgress.

I am having a side effect from , I think, from my 1st Tysabri infusion 3 days ago. About 15 minutes into the infusion, I became extremely nauseous. It got really bad, and I needed a bucket. Got better, and has been coming in waves ever since. I spoke with NP at neuros office yesterday. Called in an anti-nausea medication. That is giving me a bad bad headache. The NP told me she had never heard of nausea as a side effect. She thinks it is coincidental. Has anyone here experienced that?

My question is I am on tysabri and know that prednisone dont mix next infusion in 2 weeks I am gonna call my neuro on mon and ask and tell her what happened with the baclofen and see what else we can do for pain I take lyrica and klonopin not much help she ordered new mri due to increase in symptoms and I got those results yesterday at the er there was some slight changes from last mri done 7/12 so dont know if she will want me to stay on tysabri or what will ask monday.

Hi - Next month I will have Tysabri infusion #12. I have had no side effects from the drug. In fact, my infusions are a complete non-event. I have not had any relapses since starting Tysabri. It's the only DMD I have ever taken.

It hurts when I take a deep breath. I call my doctor. He says no more tysabri for me and I agree. I assure him I am not having trouble breathing. He says to go to the ER if I do. He suggests putting me on copaxone in a month ( i was on rebif prior to my start of tysabri). Now...two days later: my chest still hurts. Old injection sights (like three months old!) are suddenly red again like I just injected my old drug.

Tysabri infusion no 1

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