tysabri how it works

I've been on tysabri for over a year and developed a bad itchy rash the past 3 months. Thanks so much for your input and I will check back with her posting. Good luck to you too!

t usually give it although some docs will try. Perhaps he said RRMS ? Tysabri works well there. There are some of us that are JC+ and still take Tysabri........perhaps he thought it over after you left? They are expanding Tysabri for types other than RRMS but as Tysabri tells me, its all up to the doc.

I never got nauseous on Tysabri. After 8 months on it, I started getting skin lesions, and my skin was REALLY dry. Much drier than usual. I still love the stuff, though. I will probably go back on it by the end of the summer.

I started on Tysabri. After 20 infusions I converted to JCV +. It was also determined at that time that Tysabri was no longer working. I switched to rituximab.

Call Tysabri, and talk with them they will talk to you even tho you are not a pt yet.

When I went to Tysabri my doctor took me off IVIG and now my Neuropathy is worse, my feet and legs are on fire. Does any one know if it is safe to be on Tysabri and IVIG at the same time? My doctor said she would need to consult with other doctors before she would add IVIG to my treatment.

I recently had my 9th infusion. I've noticed a fiery joint pain in my knees 3-5 days after my infusion for the past few months. It eases after a week or so but doesn't go away completely. My doc doesn't think it is Tysabri because only my knees were effected. As time goes on I feel like more joints are involved. After my last infusion (5 days) I'm experiencing the same "fiery" feeling in my toes and stiffness in my hands.

I'm not sure how they are going to work that one out. They certainly won't admit it I am guessing. I know when I was searching for "gap" insurance, the big thing with them was kidney dialysis. However if you are on meds already, not sure how they can change it. As long as you have no coverage gaps, and I don't remember where, but for example, there are studies that Tysabri is now being used (along with another drug but can't rememer that name) for progressive MS.

Whatever you have to do to slow the progression has led to a drug that many of us hope never to have to turn to, but thankfully it is available if and when it is needed. My neuro said Tysabri is the best drug out there right now for MS so know that if your neuro is suggesting it, he/she wants the best for you. Take good care and I hope you find peace of mind in your decision.

I wish you all the best luck on Tysabri, and I hope it does as well for you as it has for me. 5 years without a relapse...it was an amazing time!

Thanks for posting about Tysabri. I know little about it but may need to learn a lot more real soon, at the rate I am going. I was dx'ed with MS 8 months ago, and have had 2 relapses with a 6 month period (Sept 07 and Mar 08). My symptoms are sensory, fatigue, and double vision. My neuro is considering switching me from Rebif to either Tysabri or Novantrone.

Best of luck to those whom it works, but I have heard too many dodgy stories about this little pill to give me the confidence to try it. I wish you all the best.

They say there is may be one or two days the feel flu like but then they feel fine. I hope your insurance will cover it. The beauty of it is it the oldest MS drug around.

of prednisone being ordered at the time of tysabri due to the action by way tysabri works, and the steriod combo. But, I have not read it. This is one of those things where a doctors orders are called for. Are you scheduled to start infusions?

No kidding. I have no idea how much a doctors visit or an MRI costs. I was shown a CRAB "price list" (it was stuck in between the pages of the info/CRAB comparison booklet i was given at the MS clinic) let's just say that but for universal health care, i don't think i would be able to begin the treatment i know i need.

Now even though the above are strikes against biogen in my opinion... if it were me, I think I would still take the tysabri if faced with these types of options. I am older, my kids are grown, and I don't have near the responsbilities I had when I was younger. Its a risk I would take to keep the MS from progressing. But I am a strong believer in quality over quantity of life. Doing nothing really isn't an option, and in some instances tysabri is the only option left.

I believe you could slip by for the Tysabri if you qualified with SPMS. It seems odd the age span isn't higher for that one since it so often indicates years of disease. Maybe this is why we're sometimes told we are "too old" to be diagnosed. They wouldn't know what to do with us post diagnosis? Or maybe they just mean too old - period. Actually just wanted to bump this up but thanks so much for sharing your observations.

ve talked about the Tysabri risks around here more than once. Quix and I both are on the side that if it were our next option, we would definitely take it. But we're also in different stages of our life . You'll have to discuss the risk vs benefit with the doctor - it sounds like she is really on top of this. And definitely ask your hubby to go with you--- he needs to be a part of this conversation and the decisions.

I am still a little hesitant to encourage the switch... Is anyone out there taking it? How do you like it? Are there, or what are the side effects your experience? Are we nuts to switch already? I encourage any input, thoughts, or props from anyone!

Tysabri how it works

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