tysabri holiday

The nurse almost missed the loomingly large IV site and then pushed the Decadron too fast, giving me weird symptoms, and then I got a headache from the Tysabri (perhaps because the Decadron was pushed too fast?) and was over 12 hrs shaking that one, but eventually shook it with a pharmaceutical cocktail.

) Since the IVSM last week my energy levels have been great, but what to do with this energy is another story.

Are any of you on Tysabri? My doctor has suggested that I consider starting Tysabri treatment. His neurology practice runs a TOUCH infusion center. I've been on Copaxone for four years and have just had my first flareup. My recent MRI shows progression of MS with T2 hyperintense white matter lesions in the pons of the brainstem and the frontal lobe. Several of the older lesions have increased in size. Five years ago I was on Avonex. I had multiple flare-ups the whole year on this med.

I'm just curious .... For any of you who are on Tysabri, I was wondering if your neuros had changed their treatment plans or recommendations because of all the new PML cases and the acknowledgement by Biogen and the FDA that risk goes up after 24 months. I hear some are now pulling their patients at 18 or 24 months. I saw my neuro yesterday, and we discussed it in detail .... we are staying the course at this point, which made me very happy. (I go for #18 in a couple of weeks.

At the moment I am having lots of MS troubles, although I have been pushing myself too much the past few days. We had out of town guest, and a holiday which we hosted. The family all helped, but the stress was high, and my body is low. It seems my voice tends to be worse, when I am doing worse. I could hardly get off the couch today, and I have very minimal voice. I go back to the ENT at the end of the month, but am wondering if this whole vocal cord issue, set of some new MS symptom.

Could you give us a little background on what meds you've tried and for how long? I'm sure you've mentioned it before but I have a hard time keeping track of so much.

Glad your Tysabri went well. Not so glad on no sleep! Let's hope that is a one night stand! Good for you!

I will be glad when tomorrow is though. I go for my 1st Tysabri infusion Tuesday, although really truly thinking about canceling again. We will see, I am just so scared to do it. The houseguest go home that day, and I would like to just lay on the couch all day, in my jammies...aahhh. that sounds so good right now. Thursday I am going back to the "pain" neuro for my 3 month shots in my head. I LOVE those. Have had some great relief from the pain. I will stop rambling.

For his project, which is kind of like a good deed, he collected items for the holiday bags deliver through our local chapter of the MS society. The holiday bags are delivered to people with MS, who are either homebound or in nursing homes. He enclosed a really nice note in his invitation asking friends and family to bring an item to his party to donate. He recieved 752!! items, which we delivered to the society that week. I am so proud of him.

Hello, all! I was originally diagnosed with primary progressive multiple sclerosis in May 2007, when I was 26 years old. That diagnosis was changed to progressive relapsing multiple sclerosis in October 2007, when I had an exacerbation. My neurologist has never been completely comfortable with my diagnosis, because I don't display "typical" MS in many ways. My first MRI showed more lesions along my cervical spine than in my brain, but my spinal tap displayed (?

Not much here, having my first Tysabri infusion since my 2 months "holiday" and with new supplimental drug, if this works, then we are good to go and the old symptoms were MS not Tysabri......

Hey, Fuel, Sorry to pop in so late. I've been on Tysabri for 8 months, now, and I'm having a good experience. I get quite the burst of energy about 4 days after my infusion. This goes on for another 2 weeks, and then I start to crash (more fatigue, spasticity, etc.). My neuro is already suggesting a "holiday" from Tysabri at 12 months.

I was off on Tuesday to make the Tysabri run to Columbus. Unlike poor Sarah, the Tysabri seems to be good for me with none of the dreaded side effects. Here's to a good week for everyone!

a couple of days in Brugge then return to Brussels where we will be until Friday when we head back to Canada. Awesome holiday that is passing far too quickly!

They found out the reason people contracted PML was because they were taking Avonex/and the other MS medications with Tysabri. I think the Tysabri has given me a second chance at helping slow my disease progress, but with out it I would be on no MS medications to slow the disease. I did alot of research before I decided to start the medication and the one resource that helped me make my decision was reading the Tysabri diaries on line. www.msrc.co.uk/index.cfm?

I would like some information/details from anyone who has had (or seen) the rash you can get from Tysabril and/or PML?? I have been on Tysabri 10 years so far without any major issues. I was outside after my treatment for 10 minutes or so. After taking my shirt off, my husband gasped and asked what was wrong with my back.

I've been tested twice in the last year, and they were both negative. Since you can acquire JCV at any time, I opt to have my status tested once a year since I'm on Tysabri. There is also a Tysabri antibody titre available, now. I plan on doing that once a year, too, although development of Tysabri antibodies is relatively rare.

Tysabri holiday

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