Tysabri help

Common Questions and Answers about Tysabri help

tysabri

Avatar f tn Will Tysabri help me if I can't walk very good at all? It's everyday all day,I think I have progressed from RRMS to Secondary progressive.
1221035 tn?1301000508 I have read on here by several members, that they have not considered Tysabri or Gilenya because their MS is not that aggressive. What does that mean? I was dx Jan 2010, MRI showed approximately 10 lesions, I had a real hard time accepting my dx....I really wasn't sure I had MS, so I refused a DMD. Then in Oct 2010, I had a new MRI that showed an additional 5 lesions. My Neuro said that we needed to get aggressive and he suggested Tysabri and/or Gilenya.
1088527 tn?1425313375 I will start tecfidera in 3 months I hope I dont have the rebound effect I have heard about after stopping tysabri. Tysabri has really changed the way I feel was using a walker now nothing and I do Zumba too. I hope I stay like this but having doubts. anyone using tecfidera? How was your experience.?
Avatar f tn Hi Miche - Welcome to our group. This is a pretty old thread. It was last updated over a year ago and many of the posters no longer visit. I haven't seen cosmobirdy in quite a while. I just didn't want you to think she was ignoring you :-) As to Tysabri and JCV, there are some folks here whou are JCV + and on Tysabri. Perhaps they will be able to provide some insight. Personally, I had 20 Tysabri infusions before converting to JCV +.
Avatar n tn does anyone have any experience with Tysabri and having surgery? I've bee on Tysabri for 10 months and am now scheduled for major neck surgery. Not any articles about it. any help would be appreciated.
Avatar m tn I would like some information/details from anyone who has had (or seen) the rash you can get from Tysabril and/or PML?? I have been on Tysabri 10 years so far without any major issues. I was outside after my treatment for 10 minutes or so. After taking my shirt off, my husband gasped and asked what was wrong with my back.
4461995 tn?1357955108 Hi and thanks in advance. I got financial assistance from Tysabri, but after having 3 infusions, finally got an invoice for the first infusion. My responsibility is over $350. No way can I afford that every month. Avonex cost me around $25 a month. I was on that for 14 years. Not so sure about this whole thing yet. Does anyone have any ideas about the best way to get financial assistance: from the hospital where I get my infusions or directly from Tysabri?
Avatar n tn My sister has been using tysabri for 10 months and is doing extremely well! I can ask her any questions you want.
1760800 tn?1406753451 He feels that Tysabri is the way to go. I know that there are others here on it or used to be. I would love some insight on what to expect, how long it takes, etc... Thanks!
294425 tn?1288528395 The JC virus test was developed as part of a clinical trial to hopefully gather enough information from many people to be able to help stratify the risk for PML when on Tysabri. At this point, though, there are no hard and fast answers. The assumption is that if you are JC positive, you stand the CHANCE of developing PML - it certainly doesn't mean you will develop it.
Avatar f tn I do not have typical ms, but a variant that is still clinically not diagnosed. I have a great neuro @ Stanford & he is recommending I start on Tysabri ASAP. I read up about the JC virus, and regardless plan to begin treatment next week. I don't know anyone with ms or ms variants so I want to know more about Tysabri from people who are on it or have used it. What is your experience? Pros/cons? I have read about side effects but I want to hear your thoughts & how it made you feel.
Avatar m tn call the companies, I found that many offer financial assistance. Biogen and Copaxone do for Tysabri and I think the new oral pill does. Don't know which medications you refer to or if they are MS meds, but do contact the companies. It's worth a try, my first 2 years of Tysabri were free if I needed them.
1638868 tn?1309542428 Could you give us a little background on what meds you've tried and for how long? I'm sure you've mentioned it before but I have a hard time keeping track of so much.
1486292 tn?1291066898 Does anyone have information on Tysabri? I haven't been told much on it, although I have been told by 3 different doctors I should take a look at it. I would like to know what others on it experience or experienced while on it?
470613 tn?1207312671 Last week I started my 3rd significant relapse this year, my specialist nurse is now talking about Tysabri. I was on Rebif for about 15 months and wasnt getting on with the side effects so I switched to Copaxone 6 weeks ago, which I'm quite happy with. I looked up Tysabri when I got home and all I got was all the bad news about the PML patients. They say that theres a 1/1000 chance of getting it, that seems quite high to me.
Avatar f tn m 18 and not sure which medicine to choose. I have narrowed it down to Copaxone and Tysabri, but am not sure which one to choose. I have a phobia of needles that I have been trying to overcome so giving myself a shot wouldn't be optimal but I could manage. I was also worried about developing PML with Tysabri but my doctor made it seem as if he would check my bloodwork regularlly and it wouldnt be an issue. I just wanted to know anyones personal experience or opinions on the two.