tysabri health insurance

My insurance finally approved Tysabri!! Both neuros recommended it, but we've had issues getting approval. My new one was willing to fight for me. I have my first infusion Monday morning. My son graduates on Wednesday so I'm hoping all goes well!

Now I have a pre-existing condition. No new disability insurance or new health insurance or life insurance. If anything happens to me, I am basically screwed. If die, my dependents are screwed. This *****! I better live forever and never get any worse!

Hi Marie! I'm assuming you're newly diagnosed. I was diagnosed with MS in early February and started Copaxone in March this year. The medicines can be expensive if you don't have health insurance. My medicine is about $2000 a month without insurance. With insurance, it is $62.50 every 3 months for the Copaxone. However, this is the one drug. I take many other drugs to manage the symptoms, and none of them are for pain management.

I am now going in to get on the tysabri after trying all other meds. Just wondering if anyone has heard like I just heard. Not really scared but I was like what the hell else can I have now.

My Tysabri cost, after Medicare and United Health Care AND getting Tysabri assistance for the drug (I could get it for $10) ended up being over $600 PER INFUSION. I asked and asked and asked what the charge would be before I started - and they said after insurance probably $50-60. They would NOT give me a number. They didn't bill me for the first infusion until I had gotten 3. Therefore owing almost $2,000. HORRORS for someone on disability. Fighting it. Plus, I stopped taking it.

Everyone with MS is progressing, albeit some faster than others :-) My initial DX was SPMS. I was started on Tysabri right away. I'm not sure what was written on the insurance claim forms, as my Doc's office handled all of that. I do know that Tysabri seems to be keeping the wolf at bay. I have had no relapses since I started.

I've been lurking lately, trying to sort out my bumbling summer, the heat, my stitches on my thumb and dealing with Tysabri. In retrospect, the longer I am on Tysabri, the worse I feel, the more pseudo relapses I have and just darn feel crappy most of the time plus my emotions are now bouncing around on the walls. In trying to find a way to describe it to neuro in October, all I can come up with is that I feel like I am slowly being poisoned.

I had been on Tysabri for 22 month's and just recently stopped. I was wondering if any new info. is out there on the drug Rituxan for MS? I have SPMS with RRMS. I was in a study 3 yrs. ago at UCSF and did really well on Rituxan. However, Rituxan is not an approved drug for MS and at that time my insurance would not cover it so I had to discontinue taking it. Or should I just take a break for awhile and not take any ms med"s?

I just want everyone to know that for every good story about tysabri there is also some bad ones. And for those of you that don't know: there has been two more cases of PML ( a potentially lethal brain virus) from tysabri. I knew that risk when I took the drug, but after having such a bad reaction the word "risk" takes on a very REAL meaning. The risks are REAL. Be careful. Be educated. Be proactive about your own health because no one is going to look out for YOU as much as YOU.

Anyone on Medicare D have any experience with Gilenya? I'm starting to panic here, am now off Tysabri and headed for this drug but if I can't afford it, no sense going thru the motions and extra testing they are asking me to go thru prior to enrollment Just wondering!

00 and told me we needed to reschedule because they needed one more thing from insurance. This is the same thing that happened with my first insurance approval and then it was denied. I'm worried the same thing is going to happen this time. They had me reschedule for May 30th. I'm afraid to get my hopes up. I guess time will tell. I may end up looking at other options.

Like someone else said , the ONLY way to know how your insurance works and what is covered is to call your insurance and ask about your specific policy. I worked for a major health insurance company for years and the biggest mistake you can make is not calling them in advance. I also recommend finding out what options you have for permanent coverage for your baby.

Call your health plan provider. It's different with each state, I believe.

Hi, I just found out I do not have health insurance. We thought it would be until the end of the month but it's already done. I wad still under my moms plan and she was laid off last month. Well I had medical assistance through the state my last pregnancy but they dropped me when she was a month old because of my fiance's income. My daughter still has medical assistance.

Tysabri health insurance

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