Tysabri headache

Common Questions and Answers about Tysabri headache

tysabri

Avatar n tn Hi I was diagnosed with MS in May of 2001. My neurologolist wants to me to try Tysabri. I have already tried the shots for ms and they don't work to well with me. But I already have most of the side of effects that go with tysabri. Please help me.
Avatar f tn I was diagnosed with MS in 2007 and used rebif for 7 years. I was doing well until late 2012. I started having problems with spasticity in my legs. At first I was able to control with baclofen but it continued to get worse and I started having weakness also. My MRI showed that there were no changes in 3 years, my antibodies test to rebif was negative but I continued to feel worse. In March my dr started talking about tysabri. I was freaked out but desperate to feel better.
645390 tn?1338555377 I am having a side effect from , I think, from my 1st Tysabri infusion 3 days ago. About 15 minutes into the infusion, I became extremely nauseous. It got really bad, and I needed a bucket. Got better, and has been coming in waves ever since. I spoke with NP at neuros office yesterday. Called in an anti-nausea medication. That is giving me a bad bad headache. The NP told me she had never heard of nausea as a side effect. She thinks it is coincidental. Has anyone here experienced that?
1760800 tn?1406753451 He feels that Tysabri is the way to go. I know that there are others here on it or used to be. I would love some insight on what to expect, how long it takes, etc... Thanks!
Avatar f tn I work full time and am now a single parent after husband passed away due to heart attack. I also had a headache and joint pain right after the infusion. Will Tysabri help with tiredness after a few infusions?
1088527 tn?1425313375 Took my first dose of gilenya today heart rate drop to 50 so had to stay an extra hour but home now. Hoping this works since I failed rebif, tysabri, tecfidera we shall see what happens.
470613 tn?1207312671 Last week I started my 3rd significant relapse this year, my specialist nurse is now talking about Tysabri. I was on Rebif for about 15 months and wasnt getting on with the side effects so I switched to Copaxone 6 weeks ago, which I'm quite happy with. I looked up Tysabri when I got home and all I got was all the bad news about the PML patients. They say that theres a 1/1000 chance of getting it, that seems quite high to me.
Avatar f tn The nurse almost missed the loomingly large IV site and then pushed the Decadron too fast, giving me weird symptoms, and then I got a headache from the Tysabri (perhaps because the Decadron was pushed too fast?) and was over 12 hrs shaking that one, but eventually shook it with a pharmaceutical cocktail.
294425 tn?1288528395 I had one Tysabri treatment on Nov. 1, 2011. Felt great for 2 days. On day 3 I awoke with a bad headache and bumps the size of mosquito bites all over my face and neck, plus a huge, dark red circle on my right cheek. The Dr. stopped the treatment forever for me because of the extreme reaction. I was diagnosed with MS 20 years ago. Been on Avonex, Betasaron, Rebif, Copaxone, Tysabri, and now, Copaxone again. I tested negative for the JC virus, but scheduled for an MRI very soon.
645390 tn?1338555377 ) Think I am sticking with Tysabri for now, seeing neuro as well tomorrow and I know I will get a good report. Having a great summer with my boys... Just a quick update. I haven't been on the boards for some time, not too much extra time right now. I imagine September I will be back more often. (It is strange, i rarely think of MS anymore. I would love for that to stay.0 The only thing that has been increasing is Migraines.
645390 tn?1338555377 Enough...I restarted Tysabri 2 months ago. I have had almost a constant migraine since, now asthma flairing up, coughing, and I am getting hoarse. The reason I stopped it, was I totally lost my voice. my vocal chords were a mess. still having trouble w my voice. I am going for 3 days infusion, starting tomorrow w my headache neuro. It is a 6 hour day :( The good thing is I lost over 10 pounds from being nausea w this unending migraine. I called MS neuro, told here I am DONE w Tysabri.
1088527 tn?1425313375 I just had my fifth one and this is the first time I had a mild headache after. Nothing bad and I was feeling stress from other areas of my life so it could very well have been that and not the infusion. Good luck with that wasp sting! My son is allergic to honey bees and after ending up in the hospital a couple of times we got allergy shots for him. So far he hasn't had a bad reaction so hopefully they worked!
333672 tn?1273792789 Cosmobirdy (Rita) is having her first Tysabri infusion tomorrow. Please keep her in your thoughts.
Avatar f tn Cardio visit yesterday, only have to go once a year now. CPAP working better, have dissolvable zofran at bedside, as I wake up either with a headache (from straps too tight) or nausea, so grab one of those; they work almost instantly. So am sleeping better and with Adderall and better rest, am feeling much better. Can I wish away the summer heat/humidity? Not sure I will get the invite for Lemtrada as medicare requires that you have been on two other drugs at least.
Avatar f tn They found out the reason people contracted PML was because they were taking Avonex/and the other MS medications with Tysabri. I think the Tysabri has given me a second chance at helping slow my disease progress, but with out it I would be on no MS medications to slow the disease. I did alot of research before I decided to start the medication and the one resource that helped me make my decision was reading the Tysabri diaries on line. www.msrc.co.uk/index.cfm?
Avatar f tn I have had MD for 18 years. Been on Avonex, Betaseron, Tysabri, and now Tecfidera. Unfortunately, I'm also on lots of other medications, mostly due to terrible central pain. My neurologist made me stop the Tysabri after 24 infusions because of safety concerns. I felt my overall best while on Tysabri and have asked him if and when I might be able to go back on the monthly infusions. He does not have an answer for me at this point.
Avatar f tn Are any of you on Tysabri? My doctor has suggested that I consider starting Tysabri treatment. His neurology practice runs a TOUCH infusion center. I've been on Copaxone for four years and have just had my first flareup. My recent MRI shows progression of MS with T2 hyperintense white matter lesions in the pons of the brainstem and the frontal lobe. Several of the older lesions have increased in size. Five years ago I was on Avonex. I had multiple flare-ups the whole year on this med.
Avatar m tn I would like some information/details from anyone who has had (or seen) the rash you can get from Tysabril and/or PML?? I have been on Tysabri 10 years so far without any major issues. I was outside after my treatment for 10 minutes or so. After taking my shirt off, my husband gasped and asked what was wrong with my back.
572651 tn?1530999357 I've been tested twice in the last year, and they were both negative. Since you can acquire JCV at any time, I opt to have my status tested once a year since I'm on Tysabri. There is also a Tysabri antibody titre available, now. I plan on doing that once a year, too, although development of Tysabri antibodies is relatively rare.
1827617 tn?1317703371 My new neuro suggested Tysabri based on increased lesions on Interferon (Rebif). Any persons out there on Tysabri that could share their experience?
1088527 tn?1425313375 I will start tecfidera in 3 months I hope I dont have the rebound effect I have heard about after stopping tysabri. Tysabri has really changed the way I feel was using a walker now nothing and I do Zumba too. I hope I stay like this but having doubts. anyone using tecfidera? How was your experience.?
Avatar f tn So now he wants to take me off of the Copaxone, I have been on for a month and a half, and put me on Tysabri. I started the application process and now waiting for them to call me and get the ball rolling on that. Now he mentioned that this is the top of the line MS medication so that does give me some relief. P.S. I did test negetive for the JC Virus. Any thoughts, experiences etc on this Tysabri??!!
1831849 tn?1383228392 The research side of my MS Practice has identified a CSF biomarker for disease activity. The research is featured on the cover of this month's Multiple Sclerosis Journal. http://tischms.org/news/tisch-ms-breakthrough-biomarker-research-featured-cover-article-october-2013-issue-multiple I'm a beneficiary of this discovery. I had been on Tysabri for 20 months. At 18 Months I converted to JCV +, and we discussed switching from Tysabri to Tecfidera.