tysabri hair loss

I did experience a bad headache after #3 and started losing a lot of hair after the 3rd infusion. My hair loss has started to slow down this past month. At my 3 month blood work my test for tysabri antibodies came back postive. My dr says that sometimes people will inially test positive and then later negative. He urged me to continue for 3 more months and then to retest. If the test is positive again then I will need to change to another therapy.

I there a chance of weight changes with the Tysabri. I read that nausea sometimes happens, so I would think then that loss was imminent .... but, I also gained some weight wit the Aubagio, and have had a craving for "SWEET" things. I don't usually eat stuff like that, but the last 6 months I have been almost out of control .... Going to talk to my GP about this one. Thank you all again, and hoping we will get to know each other on here.

Hello, I just finished #12 of tysabri. they did a 5 day infusion of Solmedrol,after that I noticed my scalp was itchy and I had little bumps ALL over my head. anybody else??? it is driving me CRAZY. IAM TO START a pill soon.

Hi Kelly, I'm on Gilenya about 2.5 months now. So far so good, too early to say re: efficacy. Symptoms stable and MRI scheduled for March 2015. Was a bit headachy at the beginning but this side effect dissipated pretty quickly. No other side effects, no hair loss that I've noticed. Just did my follow up eye exam and all was fine. Will do some blood tests at the three month mark to check liver enzymes, lymphocytes, etc.

My son had been taking Tysabri for 3 1/2 years. During that time he’s had at least 3 blackouts where he has had very bizarre behavior but does not remember any of it. The neurologist said it wasn’t caused by the Tysabri, I disagree. This past June he went off of Tysabri and in August started taking the pill Tecfidera. Last week he had another blackout! Again the neurology office said it wasn’t the med that he should call his PCP. I really think it’s these medications causing the blackouts.

They no longer talk about remissions. I will be on chemo the rest of my life. I am still riding and walking the dogs. The next chemo I go on in February is going to be rough and once a week. I will lose my hair again. I have liked having hair. People can't tell I am sick. I am hoping for five years. It will be four in May.

Hi SS - Congrats on your move to Portlandia. Even bigger congrats on getting back in your running shoes! Keeping our bodies as strong as we can is really important. As to Tysabri's healing powers I'm not so sure. I am sure that it is effective at dramatically slowing the progress of MS. I'v had 18 infusions and Tysabri is the only DMD I've used. Since starting Tysabri I've seen no appreciable worsening of my MS. If I can stay where I am now I'll be very happy.

Hi Calliesue - Welcome to our group. I had 20 infusions worth of Tysabri. I swited to Rituxan because it stopped working for me. While I was getting Tysabri I had no ill effects what so ever. I loved the 'convenience' of monthly infusions v. daily or weekly injections. There are many folks here who have been gatting Tysabri for years with good results.

Hi, I was diagnosed 2 years ago in September. I have been taking Aubagio for almost 2 years. For about the first 6-8 months I had mild diahreha (sp?), and hair thinning. It all leveled out and my hair grew back! I don't have any side effects now and I'm glad I stuck with it. Good luck!

The first week most of us feel really fatigued but this does lessen or go away. About 6 weeks, there are some of us (myself included) that experienced some hair loss. Others on Gilenya say that this stops around month 5. Another side effect that seems common and I've experienced is some acne around month 2.

I chose to stop Copaxone due to significant hair loss. If it was the only choice I would have accepted the hair loss but thankfully there are many choices. I had a newer blood test for biomarkers and my Neuro said the betasaron should be effective for me. So I am currently giving it a second chance. If it does not work my next step is Gilenya. But it would be temporary, my Neuro does not like to keep her patients on it for more than a year.

I have been on Aubagio, the new pill, for 1 month and have not had any problems. I emptied my hair brush the first day to see if I would have hair loss, which there is nothing out of the ordinary. I will get tested for liver functions every month to make sure if everything is ok. And the best of all is no injections!! I don't know about you but I find this to be a new easier less scary treatment. My other new find is Ampyra. This is the new walking ms drug.

t know numbers yet, as nurse wants Neuro to tell me) There was apparently a note on my file that if it was positive that I was not to go on Tysabri. We never discussed this with her, and if the numbers are high of course I would not try it. , but, I know of people who are positive and low numbers and have done very well on Tysabri. I just want o give it a shot. I have to wait now till Wed. when my neuro is in and the nurse will chat with her as to what to do.

I have read on here by several members, that they have not considered Tysabri or Gilenya because their MS is not that aggressive. What does that mean? I was dx Jan 2010, MRI showed approximately 10 lesions, I had a real hard time accepting my dx....I really wasn't sure I had MS, so I refused a DMD. Then in Oct 2010, I had a new MRI that showed an additional 5 lesions. My Neuro said that we needed to get aggressive and he suggested Tysabri and/or Gilenya.

He decided it was time to try Tysabri. So last June he sent me to UCSF to check if I could go in the program and I got in right away. I saw my regular neuro again in July and his attitude was like...well they have control of your meds now so what do you want me to do for you?? HHHMMMM you scheduled a follow up appt, so I came. So he did reschedule me for 6 months out anyway. I went to UCSF to get a brain MRI and check up on Jan 5th. Brain MRI looks like no changes...

Low iron levels can cause hair loss. You might want to get that checked.

I'm losing hair too. Not in clumps but I clog the drain once a week from my hair loss. And all my friends said their hair was so full and healthy during pregnancy and after lost some. I get a ball of hair during evey wash and its not normal for me also my scalp itches like crazy and I don't have bugs lol o had my husband check lol!

It started freaking me out so my hubby looked it up and said the number one cause of hair loss in women is pregnancy...

I lost a ton my first pregnancy. I was taking OTC prenatals. This time around my doc recommended prescription prenatals and I haven't had any hair loss or breakage this time. And bonus, the prescription prenatals are free with Affordable Healthcare Act!

Especially after combing my hair,there is a ton of hair in the sink. However my hair seems to be growing as fast as it falls out so I have thickness still. Someone told me to drink more milk and I find on the days that I do I see less shedding.

It makes me depress everytime i see how plenty of hair i loss. I tried every hair fall shampoo but none of those worked. I don't wanna comb my hair anymore.

Is Anyone experiencing hair loss during pregnancy I thought I was Going to have this really beautiful hair but is not working out that way does it mean that I'm going to have a girl?

Tysabri hair loss

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tysabri