Tysabri good bad

Common Questions and Answers about Tysabri good bad

tysabri

Avatar f tn I saw my neuro on Friday and in the course of a fairly long appointment and discussion, I asked a lot of questions. One in particular had to do with oral meds, which we've been told for years are right around the corner. He says yes, they'll definitely be available very soon, but prescribing them will be difficult because of their side effects. Only select patients will get them. I asked if this included those who couldn't tolerate or just didn't do the injections.
Avatar f tn Will Tysabri help me if I can't walk very good at all? It's everyday all day,I think I have progressed from RRMS to Secondary progressive.
294425 tn?1288528395 I hope the week of feeling yucky fades as your body gets used to the Tysabri. Three good weeks are pretty darn good, like you say, but I'm greedy when it comes to feel-good days for my friends and forum family! Hope things are going fairly smoothly at home (my Fluffy is driving me crazy; he might need a change in meds). I think of you fairly often, and hope you're doing well. Do keep checking in and keep us posted.
252144 tn?1227422620 The third, fourth, fifth and sixth infusion all went well. I still had some problems just not as bad as before the Tysabri. After the sixth infusion I had my first post-Tysabri MRI. Now remember, I have had MS since 1995 and have had MRI's every year sometimes twice a year....and each one got worse and worse. My newest MRI showed improvement! The Tysabri was working!! I was in so much shock I couldn't believe it.
1831849 tn?1383228392 It involves only one patient so far, and that patient is still alive. Despite ahving not used tysabri, they had used an interferon just before Gilenya, and steroids both before and during the Gilenya treatme t. Worth keeping an eye on this story, for sure.
Avatar f tn Hi there! Good to hear from you and it is fabulous that you have started your treatment and that you are starting to understand your new normal. Important steps in your journey to be sure, congrats!
Avatar f tn I've been on Tysabri since 2012 and tested + before I started. Some months I feel better, some I don't.
294425 tn?1288528395 I just feel that it is important that we all know as much as possible about ANY of our potential treatments, both good and bad. We all need to be our own advocates, and we need to be as knowledgable as possible, to make informed choices about our treatments and medications. Hope you all have a good week....
Avatar f tn I will be having my first MRI in a few weeks since I started the Tysabri. My last MRI was really bad, so I would not be surprised if there is no change. I feel like it helps me. There is a serious disease PML related to Tysabri. The medication was taken off the market several years ago due to three people dying of PML- Progressive Multifocal Leukoencephalopathy. They found out the reason people contracted PML was because they were taking Avonex/and the other MS medications with Tysabri.
1760800 tn?1406753451 He feels that Tysabri is the way to go. I know that there are others here on it or used to be. I would love some insight on what to expect, how long it takes, etc... Thanks!
Avatar f tn I know the dangers of researching medical conditions online (seem to always find the bad stuff) so its nice to hear some good stuff. I of course am worried about PML especially since I am currently on Prednisone & also revieved Rituxan less than 4 months ago. The reason I don't have clinical ms is because I have lung involvement, ms never leaves the CNS & never effects lungs. I have also met with a NMO specialist and while although quite similar to my disorder, still not it.
Avatar f tn Thank you,Kyle. I appreciate your response.
645390 tn?1338555377 too bad the tysabri didn't work out. some folks in our groups here have had great results. like you though, some had to stop it for other weird issues/reactions. i get the ulcers/sores in my mouth ever since my MS started. have no idea why they showed up. one doc said it could be due to my gastro issues. VA gives me a herpe medicine to take for 5 days when they show up. i get em so often yearly, beats me. sorry it didn't work out and here's hoping something does, and soon.
Avatar f tn relapse/flair, whatever. It was 9 days of no fun. They even refused my Tysabri last week because I had a fever of 99.0. Am still on antibiotics for a UTI that I didn't know I had, which I think was really cystitis. Anyway, I have 3 more days of Ciptro and Tysabri is tomorrow. Will make sure I take aspirin to keep any fever down. I've been 6 weeks off Tysabri now.
Avatar f tn I have been on Tysabri for almost two years now and have been very happy with it. There have only been a couple of times that I'm really tired after and go to bed early that night. I think it's really kept me from having another bad flare. Stress used to wreak havoc on me and since I've been on Tysabri I haven't had any major issues. Usually about a week before I realize that I' m ready for the next one. Hopefully that helps!