Tysabri good

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tysabri

Avatar f tn I saw my neuro on Friday and in the course of a fairly long appointment and discussion, I asked a lot of questions. One in particular had to do with oral meds, which we've been told for years are right around the corner. He says yes, they'll definitely be available very soon, but prescribing them will be difficult because of their side effects. Only select patients will get them. I asked if this included those who couldn't tolerate or just didn't do the injections.
1831849 tn?1383228392 It involves only one patient so far, and that patient is still alive. Despite ahving not used tysabri, they had used an interferon just before Gilenya, and steroids both before and during the Gilenya treatme t. Worth keeping an eye on this story, for sure.
572651 tn?1530999357 Don't you just hate them catch 22 good news things. Sad to hear you are in a relapse. However that didn't seem much a vent.
1831849 tn?1383228392 I had my 5th Tysabri improvement last Sunday. Since then I have noticed a major improvement in the way my legs feel and work. I mean a major improvement. My legs have not felt this good in a very long time. I have also been exercising regularly for the last month and have lost a bunch of weight. I'm trying to determine to what I can attribute the improvement. Is it the Ty infusion? The exercise? the weight loss? I'm kinda hoping it's the Tysabri.
1831849 tn?1383228392 the big rush we get at ECTRIMS time with all these new thoughts and projects is always a thrill to me. I'm skimming through the releases, abstracts and poster presentations and finding lots of good stuff. I didn't see the correlation of the test between Tysabri and Tecfidera efficacy and will have to go back and read it in detail. I say we all go to ECTRIMS next year when it is in Boston....
1638868 tn?1309542428 I tested negative for the JC virus, and was reassured my chances for PML are almost nil. I have met quite a few people on Tysabri, and have heard nothing but good things about it. People seem to do really well and feel good while taking it. Good luck to you and your decisions. For me it wasn't an easy decision. Get lots of information. I had a good friend who is a NP look over the inset given, and she said it seemed fairyl safe to her.
Avatar f tn I have had MD for 18 years. Been on Avonex, Betaseron, Tysabri, and now Tecfidera. Unfortunately, I'm also on lots of other medications, mostly due to terrible central pain. My neurologist made me stop the Tysabri after 24 infusions because of safety concerns. I felt my overall best while on Tysabri and have asked him if and when I might be able to go back on the monthly infusions. He does not have an answer for me at this point.
Avatar f tn They found out the reason people contracted PML was because they were taking Avonex/and the other MS medications with Tysabri. I think the Tysabri has given me a second chance at helping slow my disease progress, but with out it I would be on no MS medications to slow the disease. I did alot of research before I decided to start the medication and the one resource that helped me make my decision was reading the Tysabri diaries on line. www.msrc.co.uk/index.cfm?
1637739 tn?1371688706 I just saw a MS neuro at OSU hospital. He asked me whether I was interested in being in the Tysabri study. I am only 37 and have only had one relapse. I know I will be deciding on a treatment and not sure what direction to go. This neuro is big in research and he spent a lot of time talking with me about MS. He mentioned a JC Virus and took my blood to look for it. If I don't, I would be a good candidate for Tysabri. It has 67% reduction in relapses but also risks getting PML.
Avatar f tn Friday I called my neuro to find out if they want me to do a washout period on Tysabri, as they are considering me for the new drug out in March. I've ben on Tysabri almost a year and JC+ from the start The nurse told me my test showed 1.03. which means nothing to me. Anyone know anything about this test?
Avatar m tn I was offered Gilenya when I had problems with Tysabri (which turned out to be something other than Tysabri that caused it) and after reading the cardiac warnings and other side effects, chose not to take it. Tysabri has a wonderful financial support program. They fully donated my first 4 months of Tysabri until I could get an insurance program in place. Tysabri is considered an "outpatient" procedure and under my insurance, is paid for now at 100%.
Avatar f tn I've been on Tysabri since 2012 and tested + before I started. Some months I feel better, some I don't.
Avatar f tn Hi, Cammie, I failed Rebif after 2 back-to-back flairs. It also gave me hives. I started Tysabri in February, and had my 2nd infusion 2 weeks ago. I haven't noticed a big difference, yet. I have quite a bit of fallout from my last flair, namely, my inability to play my guitar for more than about 20 minutes. I've had to quit performing for the time being. I have a crazy strong immune system, and therefore not at huge risk for PML.
5993128 tn?1384747803 For 2 years it seemed to be doing a very good job. Following a recent LP. my CSF showed signs of disease activity. This meant that Tysabri was not being as effective as it should be. So I've switched to rituximab. I had no problems with insurance paying of either Tysabri, in spite of the fact that I had no prior DMD history. Also, I was unaware of the "avoid sick people" thing. It never came up in the two years I was on Tysabri.
Avatar m tn I hope you realize I wasn't trying to 'panic' anyone for any reason. I simply said that I am at the 'highest risk' for PML, cause I've HAVE had other meds for MS than just Tysabri in the past. I HAVE tested positive for JCV and I've been on Tysabri for over 3 years. Those are the facts.
Avatar f tn Will Tysabri help me if I can't walk very good at all? It's everyday all day,I think I have progressed from RRMS to Secondary progressive.