tysabri given

Hi I was diagnosed with MS in May of 2001. My neurologolist wants to me to try Tysabri. I have already tried the shots for ms and they don't work to well with me. But I already have most of the side of effects that go with tysabri. Please help me.

They found out the reason people contracted PML was because they were taking Avonex/and the other MS medications with Tysabri. I think the Tysabri has given me a second chance at helping slow my disease progress, but with out it I would be on no MS medications to slow the disease. I did alot of research before I decided to start the medication and the one resource that helped me make my decision was reading the Tysabri diaries on line. www.msrc.co.uk/index.cfm?

I know there are alot of bad things being said about Tysabri, but I love it. It has given me back 6 months of a semi-normal life. All I can say, " IS PRAISE GOD" miracles do happen. I was telling my new friend Cosmobirdy that: I knew it was a great risk, and it could still come back one day to bite me in the butt......I went with my gut feeling on this even though my family & friends thought I was crazy.

My mom has battled MS for over 20 years now and is now wheelchair bound. She has been on every medication available with little results, and has now been on tysabri for almost two years. Last week when she went to the doctor, she was informed that patients who has been on the tysabri infustion for over two years have a greater chance of developing the brain infection PML. I believe she was told the odds went up to 1 in 800.

Recently diagnosed with MS (November) and they are starting me with the drug Tysabri. Trying to find out what to expect and if it is helping others with their symptoms? All new to this, really have no idea what I need to know or ask? Just looking for someone with some insight on what I will experience.

So the question has to asked of your neuro. Tysabri is only given under the surveillance of the TOUCH program. One of the requirements is no other immune-suppressing or modulating meds are to be used. High dose steroids are VERY immune suppressing, but I don't know the specific rules. So, your neuro has to check this out and decide. I suspect you cannot have them within a few weeks of the Tysabri infusion. I am not 100% sure of all this, but it should be checked out.

Switching already? Is it too soon? Have we not given Avonex a fair shake? From what I have read Tysabri seems to be the "big guns" or "last ditch effort." It makes me nervous to switch to that already...MS is still so new. I have speculations that I am not sure are valid. After all I was absent from school the day they passed out medical degrees... His MS was found at 29, accidentally...and he had SEVERAL (10+) lesions at that time...

Which (CRAB/Tysabri) medication do think has the least side affects? Please vote because this poll is for an individual trying to make a serious decision, and the doctor told this person to choose their own treatment.

My neuro told me that there has been no one who got the infection during the first year, and I am positive for the JC virus. The only people so far who got the infection were those on more than one DMD simultaniously. If you don't like needles, Tysabri is given every 28 days with a #26 pediatric needle, no worse than a misquito bite! Yes, they will check your blood on a regular basis. Ultimately it will be your decision but wondering why Tysabri was suggested as a first line drug.

Go for it, for the past 5 years, Tysabri has given me my life back ...can't imagine my life without it. My life is worth the risk of PML...before Tysabri, I existed, not lived!

My first DMD drug was Tysabri and I have been on it almost 2 yrs, and was JC+ from the start. Tysabri is very good at lowering relapses, but of course, does not correct anything already there. You may continue to have relapses or attacks, it is not 100%, but does a good job. It is not usually a first drug, as you have been told, but your doctor had a good reason or he would not have put you on it As Kyle said, let your doctor know…….

I will be having my fourth Tysabri infusion on Monday. I have been keeping a journal ...It is called "Hoping for a Miracle"...lol...At any rate, I had my first infusion a bit too late and landed in the hospital for thirty days. The day I was released I had my second. Now infusion two and three seemed to give me three weeks of great hope.

Now, based on the last MRI, he has officially diagnosed me and is recommending that I go on Tysabri infusions. From what I can tell on this forum, it seems like he's hitting an ant with a sledgehammer. It seems very unusual for people to be prescribed Tysabri right off the bat. I am very confused as to what drug to go on, if any. His first choice for me is Tysabri, followed by Gilenya, followed by Copoxone.

Only Tysabri has shown the abilty to cut relapses and lesions by 2/3s. Tysabri is relatively new and is still has some issues. In fact no one knows what it does after 2 years. The more std. MS drugs, which are primarily interferons by the names of Avonex, Rebif and Betaseron cut MS activity by about 1/3. And thats if you have Relapsing Remitting MS. The drugs are all injected. A new drug that is oral "finglomod" is in phase 3 clinical trials.

t last long either because my doctor found legions on my spine and told me he thought tysabri would be the best option and I needed to make my decision quick. I did do my research on tysabri but I don't think I want to be on this for the rest of my life. I know the pros and cons of this infusion process still being that this is all new to me I don't want to later find out along with MS I have this blood disease. I really need to deal with one illness at a time.

I have had MD for 18 years. Been on Avonex, Betaseron, Tysabri, and now Tecfidera. Unfortunately, I'm also on lots of other medications, mostly due to terrible central pain. My neurologist made me stop the Tysabri after 24 infusions because of safety concerns. I felt my overall best while on Tysabri and have asked him if and when I might be able to go back on the monthly infusions. He does not have an answer for me at this point.

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tysabri