Tysabri for crohn's

Common Questions and Answers about Tysabri for crohn's

tysabri

645390 tn?1338555377 Was doing really well on it, from Jan 2010 until the summer when I lost my voice for 3 months. Tysabri was D/C then per Neuro. In case that was a side effect. I went back on Tysabri in Dec. My voice is still an issue. Neuro doesn't know still if side effect, and is leaving it up to me if I want to stay on. She would like me to stay on it, as there is no other alternative for me at the moment.
1831849 tn?1383228392 The research side of my MS Practice has identified a CSF biomarker for disease activity. The research is featured on the cover of this month's Multiple Sclerosis Journal. http://tischms.org/news/tisch-ms-breakthrough-biomarker-research-featured-cover-article-october-2013-issue-multiple I'm a beneficiary of this discovery. I had been on Tysabri for 20 months. At 18 Months I converted to JCV +, and we discussed switching from Tysabri to Tecfidera.
1637739 tn?1371688706 I just saw a MS neuro at OSU hospital. He asked me whether I was interested in being in the Tysabri study. I am only 37 and have only had one relapse. I know I will be deciding on a treatment and not sure what direction to go. This neuro is big in research and he spent a lot of time talking with me about MS. He mentioned a JC Virus and took my blood to look for it. If I don't, I would be a good candidate for Tysabri. It has 67% reduction in relapses but also risks getting PML.
645390 tn?1338555377 Has anyone here experienced that? The next day, I went to my pain neuro for the 5 injections in my head for all the Neuralgias I deal with. I doubt it is related to that, since it is my 4th time with the injections. (I go every 3 months.
572651 tn?1530999357 This release last week announced that Tysabri is now in Phase 3 studies for use in treating SPMS. That has to be good news for anyone following the ASCEND trial. You can read the details at - http://www.biogenidec.com/PRESS_RELEASE_DETAILS.aspx?ID=5981&ReqId=1653040#.TyFoJl4mTgY.
382218 tn?1341181487 With the recent addition of several new treatments, and as I ponder making a change, I'm curious as to how many here are on the various DMDs available. Also interested in those taking something not on the list (eg Novantrone), and whether you have been on more than one DMD and if so, why?
Avatar f tn So for those that don't know me, the short story is...I had a major flare in dec of '08 which led to my dx in feb of '09 . I am now on tysabri after many other dmd attempts. I finally found a dr that I love. I went into a flare n she let me take my tysabri anyway. I used to have to travel 215 miles to san fransisco every time I had a new symptom.
Avatar n tn Welcome to our Crohn's Community Barneypenny. As far as I am aware, Xifaxan is an antibiotic prescribed to treat "traveller's diarrhea", a bacterial infection in the intestines caused by E.coli, and the result of eating contaminated food or drinking untreated water, and is not prescribed with a fever or bloody stools, or when the diarrhea is not due to E.coli.
1831849 tn?1383228392 Good news for Lemtrada (alemtuzumab). The Peripheral and Central Nervous System Drugs Advisory Committee has recommended that the FDA approve alemtuzumab for the treatment of MS. As with any of our favorite concoctions there are serious risks, but the reduction in relapse rate seems to outweigh them. http://www.medpagetoday.com/Neurology/MultipleSclerosis/42899?
559187 tn?1330782856 I'm not sure how they are going to work that one out. They certainly won't admit it I am guessing. I know when I was searching for "gap" insurance, the big thing with them was kidney dialysis. However if you are on meds already, not sure how they can change it. As long as you have no coverage gaps, and I don't remember where, but for example, there are studies that Tysabri is now being used (along with another drug but can't rememer that name) for progressive MS.
Avatar f tn As for choosing your own, which seems to be normal these days, for the interferons, it is a matter of choosing your route and shedule. After a given length of time - about 6 months - they all work about the same. For the interferons Avonex is known to have the fewest side effects and the lowest incidence of creating neurtralizing antibodies.
572651 tn?1530999357 t do a lengthy washout period after stopping tysabri and I understand that patient had also been on tysabri for a longer period of time. How will they ever untangle is it was the Gilenya, the Tysabri or both that opened the door for PML to enter? Argh! Why aren't answers these days just clearly marked? I hate having all these unanswered questions about therapy that is so critical.
Avatar f tn Could I have Crohn's disease without the hallmark symptoms? Can bowel prep for colonoscopy cause mild inflammation and redness? I had a colonoscopy last week and the report says "localized inflammation, mild in severity and characterized by congestion (edema) and erythema in the terminal illeum." I have occasional loose stools, but not true diarrhea and not frequent.
Avatar f tn I have to call tysabri help line to get that straight I will certainly be looking more at tysabri myself. I will post my reasoning for choosing to go with it in a new thread hopefully tomorrow.
Avatar n tn I have had RR multiple sclerosis since I was 10 ish diagnosed (finally) in 2008. Had routine MRi of head and neck last month, everything is stable for 2 years now. Thank you Tysabri! My question is the impression of my mri stated T1 and T2 disease burden is at least moderate ( written for head and cervical MRI). Also JCV negative this whole time can I stay on Tysabri indefintely as long as I am negative?
572651 tn?1530999357 The screening test for the JC Virus for patients considering Tysabri as their tretment was officially approved by the FDA today. The test tells if the person has been exposed to the JC Virus or not. PML on tysabri has only occured in people who are JC positive. There has not been a single case of PML in JC negative people. You can read the release here- http://www.medpagetoday.
Avatar f tn My lesions were increasing and I still had the fatigue that went along with MS. Ive been on Tysabri for almost 4 years with no flare ups. For having MS, I feel great. I used to get monthly blood work to check for PML and would take 2 to 3 month "holidays", just so my body wouldn't be over exposed to the Tysabri. (It lasts in your system for up to 3 months). I recommend Tysabri to anyone that has MS. It beats daily self injections, and its only once a month.
Avatar f tn I have had MD for 18 years. Been on Avonex, Betaseron, Tysabri, and now Tecfidera. Unfortunately, I'm also on lots of other medications, mostly due to terrible central pain. My neurologist made me stop the Tysabri after 24 infusions because of safety concerns. I felt my overall best while on Tysabri and have asked him if and when I might be able to go back on the monthly infusions. He does not have an answer for me at this point.
294425 tn?1288528395 I'll start it off... I was diagnosed in Feb. 2008 Was on Rebif for 6 months prior to Tysabri. I have been on Tysabri since Oct. 2008 - will get infusion #37 next week. Both my neuro and I do feel it is helping. I still continue to have issues related to MS, and some have started while I've been on Tysabri, but we feel it has definitely slowed the rapid downhill slide I was on prior to starting it.