Tysabri fatigue

Common Questions and Answers about Tysabri fatigue

tysabri

Avatar f tn The fatigue may not be the result of the Tysabri itself, but the result of your particular disease course. Tysabri is not, at present, a typical first line treatment, so is it correct to assume your MS and test results pointed to a more aggressive approach being warranted? It can take a few months to separate disease activity from treatment side-effects unless its something obvious like Copaxone welts.
738075 tn?1330575844 It's so amazing - I still get grinding, overwhelming spells of fatigue, but over the last week or so, I've had some renewal of energy! I think the Tysabri, is finally starting to work! I have gotten amazing fatigue these past two months about a week and a half before my infusion. In May, after the infusion, the fatigue seemed to lighten up slightly, and this month, after June's infusion, I feel better than I have in months in the energy department.
6738741 tn?1384288433 For me, after 28 doses, some infusions make me more tired than others. For some, I am actually fine without the fatigue! Love those times but the norm is fatigue that slowly wanes and my energy levels return. Hope things go smoothly for you!
572651 tn?1530999357 On the right side panel you can read the summary comments that explain the data presented. I was just reading P07.081 Nataluzimab reduces fatigue (Tysabri - TYNERGY study).
Avatar f tn while on Tysabri. Any news would be appreciated. Also, does anyone report increased fatigue while on Tecfidera? I am over all of the flushing and gastro upset. Just very fatigued - way more than ever before. I am taking Nuvigil and could not make it through the day without it! Be well and try to stay positive everyone.
Avatar f tn relapse/flair, whatever. It was 9 days of no fun. They even refused my Tysabri last week because I had a fever of 99.0. Am still on antibiotics for a UTI that I didn't know I had, which I think was really cystitis. Anyway, I have 3 more days of Ciptro and Tysabri is tomorrow. Will make sure I take aspirin to keep any fever down. I've been 6 weeks off Tysabri now.
1168718 tn?1464983535 I am new to here, but wanted to chime in on your question. I have had 5 Tysabri infusions so far. No major concerns, fatigue the day of and day after. Recently I have gotten little red bumps on my face and hands, which after reading a bunch, I have found might be related to Tysabri. I was scared at first about the JC virus and PML, but I was able to talk to my doc about it, and he said he would be extra careful with me if I wanted. Extra blood tests and monitoring for the virus/PML.
Avatar f tn had my Tysabri last week, after being off 2 months and have done nothing but sleep all day since. They drew blood (going to Oncology Clinic) and my WBC was high as was 2 other values but no one said anything about it. Considered a UTI but leukocytes high but nitrates? normal and no s/s. Feeling a bit better today, but sure hoping next dose in June will make me feel better. Figure extreme fatigue but this much this long is new for me.
Avatar f tn I also had a headache and joint pain right after the infusion. Will Tysabri help with tiredness after a few infusions?
2063887 tn?1337829746 After being on the ivsm, i still have significant balance, numbness and fatigue issues. They both suggested Tysabri would be the most beneficial for me, but my insurance felt otherwise being the specialists that they are LOL! Copaxone gave me nasty migraines so neuro two decided to try again. This time i am learning to look into other options if they won't approve it!
Avatar f tn My lesions were increasing and I still had the fatigue that went along with MS. Ive been on Tysabri for almost 4 years with no flare ups. For having MS, I feel great. I used to get monthly blood work to check for PML and would take 2 to 3 month "holidays", just so my body wouldn't be over exposed to the Tysabri. (It lasts in your system for up to 3 months). I recommend Tysabri to anyone that has MS. It beats daily self injections, and its only once a month.
Avatar f tn Recently diagnosed with MS (November) and they are starting me with the drug Tysabri. Trying to find out what to expect and if it is helping others with their symptoms? All new to this, really have no idea what I need to know or ask? Just looking for someone with some insight on what I will experience.
Avatar f tn I have also heard of the rebound effect after coming of tysabri. So far ive noticed my fatigue is worse and my balance is off again but not like it was. Before tysabri I had a cane and walker now I use nothing and would like to keep it that way. I started doinf volunteer work for hospice and love it. I would hate to go back to what I was before tysabri. I am seeing ms specialist dec 31st to see what my options are for dmd. I wont go back to shots and not happy with side effect profile from tec.
Avatar f tn I was changed to Tysabri and had my first infusion yesterday and everything went great, no reactions or side effects. However, I could swear I have more energy today. I have not been shopping for months and today I was able to go shopping. Is this my imagination? Just a rare good day? Or could the med already be having an effect on my fatigue? FYI, all other symptoms are pretty much the same.
5993128 tn?1384747803 Hi BL- Welcome to Our Merry Band :-) I was diagnosed 2 years ago, at age 51, with SPMS. My first, and up until a week ago my only, DMD was Tysabri. When I was diagnosed we were able to connect seemingly random events over the previous 20 years. What seemed completely unrelated was related. All were symptoms of MS. Because I'd had MS for so long my doc thought I was out of reach of the injectables. At the time the orals were just starting to come on the market.
382218 tn?1341181487 I was on tysabri for 9 months till my liver decided it didnt like it anymore but I loved the drug went from using a cane to nothing. I just started gilenya yesterday so jury still out on that. Its been 7 months since being off therapy and feel like crap the fatigue is overwhelming and my balance is bad dragging foot again so should be using cane again just not mentally ready for it. if your jc neg I would go for the tysabri as long as insurance covers it 1 hr a month and done so easy.
1475492 tn?1332884167 Hi SS - Congrats on your move to Portlandia. Even bigger congrats on getting back in your running shoes! Keeping our bodies as strong as we can is really important. As to Tysabri's healing powers I'm not so sure. I am sure that it is effective at dramatically slowing the progress of MS. I'v had 18 infusions and Tysabri is the only DMD I've used. Since starting Tysabri I've seen no appreciable worsening of my MS. If I can stay where I am now I'll be very happy.
Avatar n tn I am wondering how long of a timeframe you have experienced to get over a flare? I know this is a strange disease and no two people are ever the same so one can never tell. I was diagnosed almost 4 years ago-my first initial symptoms were left leg weakness/heaviness, being very tired , facial numbness and tingling in my rt arm. I started avonex and the flare lasted about 3 months.
198419 tn?1360242356 HI Rita, My friend on Tysabri that you spoke to always got frequent UTI's while on Tysabri, She went off the Tysabri six weeks ago since she was getting alot of new lesions on her spine and wanted to try LDN. Now that she is off the Tysabri, she is having pain for the first time with MS. She is not getting very good effects from the LDN and may end up back on Tysabri. I'll catch up with you later!!
Avatar f tn I was complaining about extreme fatigue at my last Tysabri infustion. They did a urinalysis and bloodwork. My neuro-dept said to go ahead and do the infusion. (My dr.was not on duty that day) A MONTH later I had an appt w/ my Dr. "You did know you had a urinary tract infection, didn't you?" NNOOOO I didn't!!!!! So I had an infection DURING the infusion. I was angry. (Plus not feeling like I had an infection. Not good.
572735 tn?1217201019 t do because of my kidneys. Then he suggested tysabri. My choice is not to attempt tysabri because of the chance of brain infection with my body making interferon and on the advice of someone dx'd with MS and living with MS for the past 30 years. So, now we are possibly looking at sandimmune or cellcept. Both anti-rejection drugs. Allergic? perhaps slightly to copaxone, sensitive to the side effects of others. What if you're allergic to beta?