tysabri experience

does anyone have any experience with Tysabri and having surgery? I've bee on Tysabri for 10 months and am now scheduled for major neck surgery. Not any articles about it. any help would be appreciated.

I will start tecfidera in 3 months I hope I dont have the rebound effect I have heard about after stopping tysabri. Tysabri has really changed the way I feel was using a walker now nothing and I do Zumba too. I hope I stay like this but having doubts. anyone using tecfidera? How was your experience.?

Hi all, I haven't logged in for ages but hope one of you will be able to answer a question for me. I've had eight infusion's so far of Tysabri and am doing really well on it. I'm coming up for a whole year with no relapses and I don't feel bad after my infusion. However, I have started to notice a couple of issues. The first is that around a week after infusion I develop big hives if I sit in the sun (not such a problem in the UK since it's rarely sunny!

If you have been on tysabri, please share your experience with me. Did you have similar side effects? Did they go away over time? How much time? I have MRIs scheduled on Friday to check for changes and I'm hoping that will help me make some decisions. Thanks in advance for your experienced!

I've been on tysabri for over a year and developed a bad itchy rash the past 3 months. Thanks so much for your input and I will check back with her posting. Good luck to you too!

I was on Copaxone and rebif prior and had flares. 2 years on Tysabri And no real side effects, just the wearing out a few days before next infusion. My neuro loves the "juice" so I imagine he will keep me on. I used to be a NP now on disability and I can't totally understand my MRI results. Just frustrating. I am only getting tested once a year for JCV. I have been taking my health a lot more seriously and just lost 50 pounds.

Hi all, I recently went from 143lbs to 119lbs.... In a very short space of time, probably from so many relpases and probaly from the stress of a diagnosis. Shortly after Christmas my neurologist discontinued Copaxone becuase the injection sites almost as if it was not being absorbed. I had incredibly angry looking itchy patches. I stayed off a DMD for almost 3 months and thats how long it took for this flair up to go down.

Hopefully they will share their experience. I was on Tysabri for 20 months. THen I converted to JCV+. My doc is a cautious souls, so we switched to Rituxan.

He feels that Tysabri is the way to go. I know that there are others here on it or used to be. I would love some insight on what to expect, how long it takes, etc... Thanks!

I wanted to cheer for you, when I read about the running! As for the tysabri, I don't yet have any personal experience with it, but I have a few friends locally that have had very good success with it. There is some evidence that it helps to stabilize, and even to repair some of the damage. Of course, not all patients will experience the same results.

I've been on Tysabri since 2012 and tested + before I started. Some months I feel better, some I don't.

m 18 and not sure which medicine to choose. I have narrowed it down to Copaxone and Tysabri, but am not sure which one to choose. I have a phobia of needles that I have been trying to overcome so giving myself a shot wouldn't be optimal but I could manage. I was also worried about developing PML with Tysabri but my doctor made it seem as if he would check my bloodwork regularlly and it wouldnt be an issue. I just wanted to know anyones personal experience or opinions on the two.

t know anyone with ms or ms variants so I want to know more about Tysabri from people who are on it or have used it. What is your experience? Pros/cons? I have read about side effects but I want to hear your thoughts & how it made you feel.

Does anyone have information on Tysabri? I haven't been told much on it, although I have been told by 3 different doctors I should take a look at it. I would like to know what others on it experience or experienced while on it?

Hi, has anyone had experience with going on to Tysabri after prolonged usage of Pregnesone or similar. My main concern is the adverse effects listed on various sites regarding the combined usage but there is nothing about the use of Tysabri following extended use of other drugs.

I am on year three of Tysabri after almost three on Copaxone. It's hard to believe I have been doing this for several years.

Only Tysabri has shown the abilty to cut relapses and lesions by 2/3s. Tysabri is relatively new and is still has some issues. In fact no one knows what it does after 2 years. The more std. MS drugs, which are primarily interferons by the names of Avonex, Rebif and Betaseron cut MS activity by about 1/3. And thats if you have Relapsing Remitting MS. The drugs are all injected. A new drug that is oral "finglomod" is in phase 3 clinical trials.

Hi - I just wanted you to get input from someone who had a bad experience with Tysabri. I would NOT start with this. In the United States it doesn't give you the most bang for your buck - my copay for Avonex for 3 months was something like $60. My Tysabri cost, after Medicare and United Health Care AND getting Tysabri assistance for the drug (I could get it for $10) ended up being over $600 PER INFUSION.

Does anybody have any experience with Tysabri? I just tested positive for the JC virus and my doc still wants to put me on it for 6 months. He says that the risk of getting the brain infection is very low since I will only be on it for a short period of time. My other option is to go on Gilenya, I am not sure what to do.

Tysabri experience

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