tysabri effects

Sorry to hear that you are having Tysabri side effects. I've had 4 infusions and no ill effects at all.

My sister has been using tysabri for 10 months and is doing extremely well! I can ask her any questions you want.

m about to start Tysabri. I know there are some risks, side effects etc, but I trust my new Guru.

( . How long also does it take to notice the drug is working for you .

there is talk about the neuroregenerative effects of these DMD's - there just isn't the proof. Tysabri probably plays a large part in your feeling better, but the life style changes are probably also a player in the big picture. Whatever the reason, I am so glad you are feeling more like the old you. That is what I'm hoping for, too.

I'm on my 5th year of Tysabri, and have no side effects. Like Kyle mentioned, I do kind of "crash" about 4 days before my next infusion. I was diagnosed RRMS, but I wouldn't be surprised if I were SPMS in this stage of the game. Tysabri is approved for use with patients with SPMS.

It is taken, not because of my MS, but because of my reaction to the Tysabri. I have side effects and the Decadron takes care of that nicely. So, that said, the steroid is not treating the MS, it is treating the side effects. Hope that helps explain what I originally said......sometimes cog fog gets in the way.

They found out the reason people contracted PML was because they were taking Avonex/and the other MS medications with Tysabri. I think the Tysabri has given me a second chance at helping slow my disease progress, but with out it I would be on no MS medications to slow the disease. I did alot of research before I decided to start the medication and the one resource that helped me make my decision was reading the Tysabri diaries on line. www.msrc.co.uk/index.cfm?

Recently diagnosed with MS (November) and they are starting me with the drug Tysabri. Trying to find out what to expect and if it is helping others with their symptoms? All new to this, really have no idea what I need to know or ask? Just looking for someone with some insight on what I will experience.

s a side effect of the Tysabri could be possible, there are other MSers talking about hives as well as other side effects, below are some i found on a google search... http://multiplesclerosis.net/?s=Tysabri+&submit=Go www.tysabri.com/about/side-effects http://www.nationalmssociety.org/Treating-MS/Medications/Tysabri-%C2%AE Hopefully someone who's on Tysabri will chine in... Cheers.....

If you have been on tysabri, please share your experience with me. Did you have similar side effects? Did they go away over time? How much time? I have MRIs scheduled on Friday to check for changes and I'm hoping that will help me make some decisions. Thanks in advance for your experienced!

side effects for each other medicine and now this with tysabri. Has anyone else been on tysabri and developed c. Diff from it? If so, what did they do to help it? Stop tysabri? Any information would be greatly appreciated.

Friday I called my neuro to find out if they want me to do a washout period on Tysabri, as they are considering me for the new drug out in March. I've ben on Tysabri almost a year and JC+ from the start The nurse told me my test showed 1.03. which means nothing to me. Anyone know anything about this test?

Hey All! New here to posting, but have been reading quite a bit! Great info! My question is, I had a relapse over the summer, major numbness/weakness on my right side, pain (allydonia) all over, my arm felt cold when it wasn't, major sensory issues. This eventually resolved with the help of Soulmedrol and time. This was my 3rd relapse in a year and a half, so my doc started me on Tysabri in the fall. I have had 5 infusions so far.

Hard to answer your question without more information. Why do you have only those four choices? Avonex (which I’ve used for 11 years) and others are notably absent from your list. Avonex, Rebif, and Betaseron have been around longest and have the strongest safety profiles. If your MS is more aggressive, then you may be more inclined to consider Gilenya, Tecfidera, Aubagio, or Tysabri. All of the DMDs are discussed from a neutral perspective at the link below: http://www.nationalmssociety.

I am 65 been on Tysabri for one year, tell me in my age group how long does most people stay on the drug?

Hope everyone is well. I just wanted to give an update. I had my first Tysabri infusion this morning and I experienced no side effects so far at all. Over the last 2 months I have had some improvment. I still have all my symptoms but they're less intense. So here's hoping for the best. Hoping this medication works at seriously slowing this beast way down. How are things with everyone? I truly hope everyone has been well or well as can be expected.

I too have young children, and I do worry about the side effects of Tysabri. However, I decided I am more worried about my mobility worsening day by day, and I am hopeful the Tysabri helps. Good luck to you, and I would really ask your neuro why he wants to start with Tysabri being your 1st med, besides research. I would really expect a better answer than research.

Found out yesterday that I have to take 50,000 units of vitamin d to bring that number up. And I'm starting Tysabri. Really don't know what to expect. I would appreciate, anyone who has been on Tysabri, let me know what to expect while on it????

The cardiotoxicity of Novantrone is scary to me, not that Tysabri is without its serious side effects, as you point out. You are definitely not being silly to have such concerns. For now I am holding steady since going on Copaxone three months ago. Prior to that I had a short and unsuccessful run at Rebif. Had to discontinue Rebif after only 8 weeks due to elevated liver enzymes. Since you only started Copaxone 6 weeks ago, it really hasn't had a chance to do its thing.

Tysabri effects

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