Tysabri drug class

Common Questions and Answers about Tysabri drug class

tysabri

Avatar n tn I have been off and on the CRABs and tysabri for ? years. NO ONE can tell you what your particular outcome will be. In the early 90's the school of thought was no drugs until x happened. In early 00, school of thought was at first sign, get on copoxone. Now tysabri is the au courant drug of choice. I too was told I would be in a wheelchair at 19 and would just have to accept it. My right leg was paralyzed at time. Well, that doc lied, b/c I haven't been in a wheel chair since.
572651 tn?1530999357 If I were on a MS drug it would be $125 a month. I do not know about Tysabri. My Insurance has paid over $100,000 for my Cancer Clinical Trial . I owe about $4,000 so far this year. I have to pay $70 every time I go in which is 5 times at least every month. That does not count towards the $4,000 I owe. I qualify for no assistance from anyone. I spent over $10,000 on medical last year not counting my insurance premiums. I am glad to have insurance or I would be dead right now.
Avatar f tn Friday I called my neuro to find out if they want me to do a washout period on Tysabri, as they are considering me for the new drug out in March. I've ben on Tysabri almost a year and JC+ from the start The nurse told me my test showed 1.03. which means nothing to me. Anyone know anything about this test?
Avatar f tn Recently diagnosed with MS (November) and they are starting me with the drug Tysabri. Trying to find out what to expect and if it is helping others with their symptoms? All new to this, really have no idea what I need to know or ask? Just looking for someone with some insight on what I will experience.
1168718 tn?1464983535 MS progression is no joke. There is also Rituxan. It is a chemo drug but I would take it before Tysabri because my friends who are on it are doing well. You have a right to` be `scared. It is valid. I check out everything and then make up my mind. Sometimes I do not go with the doctor. It is your decision in the end. You are smart to get people's opinion.
Avatar n tn My sister started Tysabri about 2 months ago, and she had some tingling in her foot (the foot that has foot drop). I've heard really good things about this drug--things like 60% effectiveness rate (compared to the 30% rate of the ABC drugs). She's complained, so far, of having a headache on the day of her infusion and then it goes away. I've not heard any other complaints. She's wanting me to go on it, but I was just diagnosed and haven't given Copaxone a fair shake.
Avatar f tn Whatever you have to do to slow the progression has led to a drug that many of us hope never to have to turn to, but thankfully it is available if and when it is needed. My neuro said Tysabri is the best drug out there right now for MS so know that if your neuro is suggesting it, he/she wants the best for you. Take good care and I hope you find peace of mind in your decision.
Avatar n tn does anyone have any experience with Tysabri and having surgery? I've bee on Tysabri for 10 months and am now scheduled for major neck surgery. Not any articles about it. any help would be appreciated.
1637739 tn?1371688706 that said, I would really question why he would immediately want to jump to the big gun of Tysabri when you are drug naive to everything. Ty is almost always only used if the other stuff hasn't worked. The risks are really small when you consider the large number of people worldwide who have been on Tysabri, but that is absolutely no consolation to those patients who have contracted PML, for which there is no cure. The oral drugs also have side effects.
2047903 tn?1330187549 m still OK Tysabri wise speaking. My neuro likes to reevaluate Tysabri use at 24 months. I had infusion # 18 last week. He thinks I would be an excellent candidate for Tecfidera. He said that if DMD'd were ranked from 1-100, in terms of 'power' Tysabri would be 100 and Tecfidera would be 75/80. As my MS seems to be pretty well under control. I may have needed Tysabri to get it under control. but Tecfidera should be able to keep it under control.
Avatar n tn I had been on Tysabri for 22 month's and just recently stopped. I was wondering if any new info. is out there on the drug Rituxan for MS? I have SPMS with RRMS. I was in a study 3 yrs. ago at UCSF and did really well on Rituxan. However, Rituxan is not an approved drug for MS and at that time my insurance would not cover it so I had to discontinue taking it. Or should I just take a break for awhile and not take any ms med"s?
5681139 tn?1372268736 It seems very unusual for people to be prescribed Tysabri right off the bat. I am very confused as to what drug to go on, if any. His first choice for me is Tysabri, followed by Gilenya, followed by Copoxone. I have a Naturopath (who actually has MS) who is vehemently against all of the drugs and questions their efficacy. The neurologist says it's my decision but I feel completely unqualified to make such an important decision.
572651 tn?1530999357 I'm glad you are doing so well Kyle. I'm not sure however that you realize how different your diagnosis and treatment journey may have been if you were female. It's different for us. Really. No reason you shouldn't take advantage of what's been offered to you though. You are fortunate to have so few limiting symptoms despite the presumption of progression to SPMS. I hope Tysabri helps you continue to live well with MS. It's a good drug.
Avatar n tn I am 65 been on Tysabri for one year, tell me in my age group how long does most people stay on the drug?
1486292 tn?1291066898 Does anyone have information on Tysabri? I haven't been told much on it, although I have been told by 3 different doctors I should take a look at it. I would like to know what others on it experience or experienced while on it?
Avatar f tn I took Tysabri as my first drug, and was + from the beginning. I've been on it for almost 3 yrs and I think it has helped prevent future permanent flares. I have not heard that Tysabri can lead to more, its job is to help prevent more. It will not, however, reverse anything that has already happened or take away the pesky symptoms we often get. You can always go off of it but it sure is nice to only worry about it every 28 days!
572651 tn?1530999357 ) By Thomas Gryta Of DOW JONES NEWSWIRES NEW YORK -(Dow Jones)- A European panel has started a review of the controversial Multiple Sclerosis drug Tysabri, sold by Biogen Idec Inc. (BIIB) and Elan Corp. PLC (ELN), citing a much higher number of rare brain infections than previously disclosed.
Avatar f tn t think I would trade procedures, even being JC+. Every drug has a risk and PML is the only one associated. No one on ONLY Tysabri has come down with PML, only those on TWO or more drugs. Go to Tysabri's website and download the Patient Information Sheet and read it. The nice thing is that its not considered under your regular "drug" section of insurance but under outpatient procedures........
572651 tn?1530999357 I've been tested twice in the last year, and they were both negative. Since you can acquire JCV at any time, I opt to have my status tested once a year since I'm on Tysabri. There is also a Tysabri antibody titre available, now. I plan on doing that once a year, too, although development of Tysabri antibodies is relatively rare.
216354 tn?1262871346 I am a no doctor. I have been to talks by MS Specialist and the thing is Tysabri can be a very affective drug but it does have a big risk. Personally your mother and her doctor have to do a risk analysis and she has to decide what is best for her. There is no right or wrong answer.
382218 tn?1341181487 Which disease modifying drug therapy are you currently taking? With the recent addition of several new treatments, and as I ponder making a change, I'm curious as to how many here are on the various DMDs available. Also interested in those taking something not on the list (eg Novantrone), and whether you have been on more than one DMD and if so, why?
Avatar m tn Tysabri is a more potent drug that the initial ones many people are offered -such Rebif, Avonex, or Copaxone - and it sounds like your neurologist wants to treat your MS agressively. that is a good thing. I would have a talk with the doctor and ask all your questions, including what type of MS does he think you have. It would be highly unusual for someone with PPMS to be offered a disease modifying therapy because they haven't been proven to be effective for that form of MS.
Avatar f tn I have had MD for 18 years. Been on Avonex, Betaseron, Tysabri, and now Tecfidera. Unfortunately, I'm also on lots of other medications, mostly due to terrible central pain. My neurologist made me stop the Tysabri after 24 infusions because of safety concerns. I felt my overall best while on Tysabri and have asked him if and when I might be able to go back on the monthly infusions. He does not have an answer for me at this point.