Tysabri benefits

Common Questions and Answers about Tysabri benefits

tysabri

1486292 tn?1291066898 Does anyone have information on Tysabri? I haven't been told much on it, although I have been told by 3 different doctors I should take a look at it. I would like to know what others on it experience or experienced while on it?
1827617 tn?1317703371 My new neuro suggested Tysabri based on increased lesions on Interferon (Rebif). Any persons out there on Tysabri that could share their experience?
1842804 tn?1319756311 It seems to be that most folks on tysabri find a noticeable increase in energy and decrease in symptoms after 3-4 infusions. I've also read that the benefits of the tysabri wear down a bit and you may feel not so great the week right before your next treatment. I hope it goes well for you and the tysabri makes a difference.
572651 tn?1530999357 I am conducting my own, personal study on the benefits of Tysabri in conjunction with SPMS.
Avatar f tn Repeat testing at three months after the initial positive result is recommended in patients in whom antibodies are detected to confirm that antibodies are persistent. Prescribers should consider the overall benefits and risks of TYSABRI in a patient with persistent antibodies." As to what comes after Tysabri, for me it's RItuxan (rituximab). After 20 infusions Tysabri stopped working. I switched to Rituxan about a year ago and it seems to be doing the job.
4848471 tn?1372238752 htm) The risks and benefits of continuing treatment with Tysabri should be carefully considered in patients who are found to be anti-JCV antibody positive and have one or more of the other known risk factors for PML. Patients with all three known risk factors have an estimated risk of PML of 11/1,000 users. The risk factors are: The presence of anti-JCV antibodies. Longer duration of Tysabri treatment, especially beyond 2 years. Prior treatment with an immunosuppressant medication (e.g.
Avatar n tn I had been on Tysabri for 22 month's and just recently stopped. I was wondering if any new info. is out there on the drug Rituxan for MS? I have SPMS with RRMS. I was in a study 3 yrs. ago at UCSF and did really well on Rituxan. However, Rituxan is not an approved drug for MS and at that time my insurance would not cover it so I had to discontinue taking it. Or should I just take a break for awhile and not take any ms med"s?
1831849 tn?1383228392 It involves only one patient so far, and that patient is still alive. Despite ahving not used tysabri, they had used an interferon just before Gilenya, and steroids both before and during the Gilenya treatme t. Worth keeping an eye on this story, for sure.
1475492 tn?1332884167 Hi SS - Congrats on your move to Portlandia. Even bigger congrats on getting back in your running shoes! Keeping our bodies as strong as we can is really important. As to Tysabri's healing powers I'm not so sure. I am sure that it is effective at dramatically slowing the progress of MS. I'v had 18 infusions and Tysabri is the only DMD I've used. Since starting Tysabri I've seen no appreciable worsening of my MS. If I can stay where I am now I'll be very happy.
Avatar f tn They found out the reason people contracted PML was because they were taking Avonex/and the other MS medications with Tysabri. I think the Tysabri has given me a second chance at helping slow my disease progress, but with out it I would be on no MS medications to slow the disease. I did alot of research before I decided to start the medication and the one resource that helped me make my decision was reading the Tysabri diaries on line. www.msrc.co.uk/index.cfm?
294425 tn?1288528395 This person was previously on Tysabri for 3 years, and was JC positive. There is no information yet as to how long of a wash out period they had before starting Gilenya, how long they were on Gilenya before getting PML, what kind of symptoms they were experiencing, or any info yet about the condition of the patient.
Avatar f tn My first DMD drug was Tysabri and I have been on it almost 2 yrs, and was JC+ from the start. Tysabri is very good at lowering relapses, but of course, does not correct anything already there. You may continue to have relapses or attacks, it is not 100%, but does a good job. It is not usually a first drug, as you have been told, but your doctor had a good reason or he would not have put you on it As Kyle said, let your doctor know…….
Avatar m tn The injections only work 33% if started at the beginning stages of Relapsing Remitting MS. There is Tysabri an infusion and their are drug trials for oral medications. Sometimes they can even use chemo but it is rough stuff. Unfortunately to date these are the only proven treatments. Some people go to other countries to get stem cells. The problem is stem cells can't repair damage they can only in some cases slow future damage but usually only for awhile.
572651 tn?1530999357 You might find this of interest- I have always wondered why we startt out wit hthe weakest drugs to treat our MS instead of going at it as agressively as possible - Biogen Idec and Elan Submit Applications for First-Line Use of TYSABRI in anti-JCV Antibody Negative Patients with MS http://tinyurl.
1115136 tn?1258778476 Hello, all! I was originally diagnosed with primary progressive multiple sclerosis in May 2007, when I was 26 years old. That diagnosis was changed to progressive relapsing multiple sclerosis in October 2007, when I had an exacerbation. My neurologist has never been completely comfortable with my diagnosis, because I don't display "typical" MS in many ways. My first MRI showed more lesions along my cervical spine than in my brain, but my spinal tap displayed (?
Avatar f tn My doctor said that I should she the benefits after my six infusion of Tysabri, but I do not feel cvonfortable with that statement. If someone have any information about this situation, please send it to me. I am planning to switch from Tysabri to Copaxone. Thank you!
Avatar f tn m trying to figure out our new crappy health benefits that start on Jan. 1 (I guess at least I have benefits). I think they said in our meeting that injectables (ie Copaxone) cost $250/month and the other prescription drugs are about $60/month each. I'm afraid I'm going to have to figure out which med I can live without since I have about 6 different prescriptions. :-( I have a cardiology appt Thurs and another doctor's appt on Fri.
Avatar f tn Many people who come off of Tysabri have been put on Gilenya pills. You would have to get checked first for heart issues, immunity to chicken pox and maybe one or two other things, and have an eye exam to rule out macular edema (swelling). Then of course you have to get approval from insurance or proof that you could afford the pill. Once that happens, you get scheduled for a 6 hour appointment for your first pill. They keep you on an EKG to watch for lowered heart rate.
198419 tn?1360242356 As of March 2008, more than 26,000 patients were on Tysabri® worldwide. Since the re-launch of Tysabri in July 2006, no new cases of progressive multifocal leukoencephalopathy (PML) have been reported. PML is an often-fatal viral infection of the brain. Data from the PLEX study suggest that plasma exchange may be an effective procedure for accelerating the removal of Tysabri from the blood if PML infection is suspected.
Avatar f tn m cancer free, still taking Tysabri and have been approved for SSDI. I have a limited time each day of being fully conscious because the medication wears off quickly, so if you don't hear from me for a day or two it's because I'm not cognitive enough to function normally. Thanks again for being such great friends and I hope to continue to meet more people on the forum everyday.
Avatar f tn I just want everyone to know that for every good story about tysabri there is also some bad ones. And for those of you that don't know: there has been two more cases of PML ( a potentially lethal brain virus) from tysabri. I knew that risk when I took the drug, but after having such a bad reaction the word "risk" takes on a very REAL meaning. The risks are REAL. Be careful. Be educated. Be proactive about your own health because no one is going to look out for YOU as much as YOU.
Avatar f tn I have had MD for 18 years. Been on Avonex, Betaseron, Tysabri, and now Tecfidera. Unfortunately, I'm also on lots of other medications, mostly due to terrible central pain. My neurologist made me stop the Tysabri after 24 infusions because of safety concerns. I felt my overall best while on Tysabri and have asked him if and when I might be able to go back on the monthly infusions. He does not have an answer for me at this point.
Avatar f tn Are any of you on Tysabri? My doctor has suggested that I consider starting Tysabri treatment. His neurology practice runs a TOUCH infusion center. I've been on Copaxone for four years and have just had my first flareup. My recent MRI shows progression of MS with T2 hyperintense white matter lesions in the pons of the brainstem and the frontal lobe. Several of the older lesions have increased in size. Five years ago I was on Avonex. I had multiple flare-ups the whole year on this med.