Tysabri adverse effects
Common Questions and Answers about Tysabri adverse effects
tysabri
Friday I called my neuro to find out if they want me to do a washout period on Tysabri, as they are considering me for the new drug out in March. I've ben on Tysabri almost a year and JC+ from the start
The nurse told me my test showed 1.03. which means nothing to me.
Anyone know anything about this test?
If you look at this data and read the commentary, you will find that relatively few of the trial participants experience ANY adverse effects, and that most of these are transient. Only a handful go off the drug (including some on placebo) because of negative effects.
What is far more important is how effective the drug is in fighting MS. All of the approved MS drugs show effectiveness well over placebo. *This* is what you should be focusing on.
Sorry to hear that you are having Tysabri side effects. I've had 4 infusions and no ill effects at all.
My sister has been using tysabri for 10 months and is doing extremely well! I can ask her any questions you want.
As the patient pool grows, I fully expect there will be more reactions and adverse effects that will come to light. Any time you tinker with the immune system to that degree, all bets are off to a certain degree.... :)
How long were you on Rebif and what kind of problems did you have on it? I am on it and feel terrible every day, and my symptoms keep on coming. For me, I weighed everything very carefully....like I said, this has not been an easy decision by any means.
m about to start Tysabri. I know there are some risks, side effects etc, but I trust my new Guru.
( . How long also does it take to notice the drug is working for you .
I'm on my 5th year of Tysabri, and have no side effects. Like Kyle mentioned, I do kind of "crash" about 4 days before my next infusion. I was diagnosed RRMS, but I wouldn't be surprised if I were SPMS in this stage of the game. Tysabri is approved for use with patients with SPMS.
said Novantrone could have serious adverse effects and felt too early to pull out the big guns such as this. Went back to my neuro, it was like the conversation about Novantrone nevr happened, I still dont understand that, anyway put me on Copaxone and I have been relatively stable, one major but brief relapse of ON which I recovered from quickly. The site reactions were painful at first, now I barely feel a thing, have not had lipoatrophy, and no post injection reaction they warn you about.
They found out the reason people contracted PML was because they were taking Avonex/and the other MS medications with Tysabri. I think the Tysabri has given me a second chance at helping slow my disease progress, but with out it I would be on no MS medications to slow the disease. I did alot of research before I decided to start the medication and the one resource that helped me make my decision was reading the Tysabri diaries on line.
www.msrc.co.uk/index.cfm?
Recently diagnosed with MS (November) and they are starting me with the drug Tysabri. Trying to find out what to expect and if it is helping others with their symptoms?
All new to this, really have no idea what I need to know or ask? Just looking for someone with some insight on what I will experience.
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