Trileptal for seizures

Common Questions and Answers about Trileptal for seizures

trileptal

I recently lost my health insurance but must take Trileptal 600 mg for my seizures, do you know of any help available? Thank you!
I have been on it for only 5 months. I have had no lasting problems so far. It has completely stopped my seizures. I have TLE. Yes I was also told the same thing about being on it forever... I don't know how long the drug has been out in the US. Guess we need to do some research. Stay in touch.
My son takes Trileptal for his Epilepsy...(he is 16)...it's affecting his memory more and more; does anyone else here take this med and have similar problems? His dosage is 900mg/twice a day. Any lower dose and his seizures return. This has been the only med that has been able to control his seizures. He has frontal lobe epilepsy with seizures that only occured in his sleep (with a couple of rare exceptions). Thanks for your help.
She has had a recent onset of seizure activity since March this year. She had 3 seizures in March and was placed on Trileptal and then on Nov 1 2007 she had a small break through seizure and they upped her medication. I would like to know the percentage of a chance to outgrow the seizures.
I had an abnormal eeg(havn't had seizures for 20 years though) and I have recurrent depression and forgetfulness. Also, do you think that partial seizures could cause depressive symptoms?
I need advice! I have been on Cymbalta 60 mg a day and Trileptal 1,200 mg a day for a few years for bipolar depression and cuz of an insurance issue, I had to stop them cold turkey about 4 days ago. Besides the usual depression/anxiety feelings, I'm having tingling in my fingers, toes and lips, and my blood pressure which I usualy have to take meds to lower, is now dangerously low.
He has a few (maybe 4) clustered episodes per year where his cheek jerks for a few seconds and he slurs his speech, usually soon after awakening in the morning but sometimes during the night as well. For about a year he has been taking liquid Trileptal: currently 6ml in the a.m. and 8ml in the p.m. (the concentration is 300mg/5ml.) About 2 weeks ago, his dose of Trileptal was increased from 6ml twice a day to the present dosage (because he was still having some mild break-through seizures).
The prior hospitalization before this one they placed her on trileptal, along with phenabarbital, she was experiencing some of the negative side effects (edema) and had several bad seizures causing her latest hospitalization, she has been in the hospital for 5 weeks now no seizures but they refuse to release her cause her trileptal level will not get above 2 (normal range is 10-35) but she has been at this level now for 5 weeks and no seizure activity do you think it's the combo of her meds?
I know all these drugs are pretty much the same and their for people with seizures and doctors now give it to people with chronic pain like me! Well I have tried all but not for more than a month. With Elavil I didn't like the way it made me feel. Neurontin and Trileptal I didn't take it long b/c I noticed nothing. I just started taking Lyrica 75mg 3x a day started about almost 2 weeks ago.
Hi, I am 16 years old now, and I have been having seizures since 10 years old. It was about a few years until the doctor said that my seizures was gone and that we could lower my medication. It was not until the last two years that I start having these seizures again, but this time these seizures are easily controlled. There is one type of seizure though that really shocks my parents and I is when I have one, I will feel that I need to barf.
gp) (m-migraines, s-seizures, p-psych, h-heart, gp-general/other pain, a-anxiety, n-nausea) I keep a journal for these very reasons. I couldn't recall these things if I didn't. I have been doing a lot of research about all of the medicines that could help, including off label uses. Some of them I took for other causes but noted that there were no changes in my migraines while I was on them. I have tried all of them for atleast 2 weeks each, if not more.
We were referred to a pediatric neurologist who gave us a prescription for Diastat, as the seizures have been over 5 minutes. She also gave us a script for Keppra, to be filled if there is another seizure. Our insurance won't pay for the brand, but I have read about only bad experiences with the generic. Does anybody take the generic? Or do you all stick with the brand for any meds? We will likely pay for the brand and hope to only have her on it for a year.
He sees a peds neurologist and has been on Trileptal for the past 18 mo. 2 previous post-ictal EEGs showed no findings, but a 1yr follow up EEG after the last seizure showed: nothing during awake,hyperventilation or photic phases, but "drowsiness is characterized by the synchronization of the post. bkgrd activity. As the pt. becomes drowsier and loses his alpha rhythm a L.occ.focus is easily idetnified with the presence of theta range activity w. phase reversal at 01.
Ive tried to eliminate any possible causes that could have led to him having seizures. The circumstances for my boy when he had his were, constipated/withholding stool for 3 days, wife drinking LOTS of caffeine (shes exclusively breast feeding mind you), I had seen that my wife gave him water on 2 seperate occaisions, my wifes mother fed him green beans (which people in my family are allergic to).
I also previously mentioned that i had started trileptal for seizures, well that was horrible also the nausea was unbelievable waking me at night from a sound sleep. Thats it couldn't take anymore called doctor now switching to Keppra. Took first dose this morning, starting at a very low dose of 125mg twice daily then increasing. Please keep in touch and wishing you all the best feel better.
She has seen specialists and they tell her that they can find no reason for the seizures. However, it seems that they happen after she has had beer or wine which can make her dehydrated. As soon as she feels the "aura" begin she drinks water and can sometimes keep it from happening. Not so two days ago. I heard her cry out and then heard her fall to the floor. When I got to her she was having a seizure and I think it lasted about 2 minutes, from start to finish.
I have partial seizures myself, and have just recently started taking a medication called Trileptal. You may want to ask the Neurology or Epilepsy communities here on MedHelp. They will likely have more information to offer about your troubling symptoms. You should also see a Neurologist. Do you have low blood pressure or other autonomic symptoms?
At first I thought it was associated with bad dreams, because I always awoke to an intense thought or situation in my mind. Yet, as I searched for more info on the physical sensations I ran across temporal lobe seizures. I had a severe car accident around 4 years ago in which I fractured by skull, but theses symptoms have started recently. Could I be experiencing these seizures?
This all took about three months. For the next three months, she's had almost no seizures except for very small ones during the day--you can't even tell she's having them and they only last a few seconds. When she inadvertently gets gluten she has more. She still also has some smaller seizures just at night, but she's so much better. She doesn't fall, she doesn't have to wear a helmet anymore, she can go up and down the steps by herself, etc.
All his test came back normal except for the EEG which was abnormal. The doctor said alot of kids have seizures for unknow reasons and they usally outgrow it as they get older. Now that we have a new doctor he says my son has complex partial seizures that start in his frontal lobe. He said its hard to say he will outgrow it becuase when you have seizures that usually start in one area you usually have them through your life. Is that true??! Or does he not just want to give me false hope?
All his test came back normal except for the EEG which was abnormal. The doctor said alot of kids have seizures for unknow reasons and they usally outgrow it as they get older. Now that we have a new doctor he says my son has complex partial seizures that start in his frontal lobe. He said its hard to say he will outgrow it becuase when you have seizures that usually start in one area you usually have them through your life. Is that true??! Or does he not just want to give me false hope?
I am now on Trileptal for now to see how my body tolerates that. WHatI need to know is if there are any other tests that can be run to confirm if in fact those spikes or discharges are complex partial seizures. The only physical manifestion I presented with was a tremor in my right arm. I am confused and discouraged with the lack of information I am being given. I've not eaten a real meal in over two weeks, my body is weak, the headaches and nausea are not very uplifting.
I am now on Trileptal for now to see how my body tolerates that. WHatI need to know is if there are any other tests that can be run to confirm if in fact those spikes or discharges are complex partial seizures. The only physical manifestion I presented with was a tremor in my right arm. I am confused and discouraged with the lack of information I am being given. I've not eaten a real meal in over two weeks, my body is weak, the headaches and nausea are not very uplifting.
If you stop the tegretol you should follow a drug level of lamictal to make sure you are therapeutic (have enough in your blood). If concern for seizures arise after the tegretol is removed then your doctors may consider depakote, which works for seizures and bipolar disorder (however depakote has many side effects as well including increasing the drug levels of lamictal, so this should be done cautiously with professional help). I hope this has been helpful.
it is a good question i started having seizures just a couple months before i turned 30 never a sign or any indication that led up to my first g mal but ive been diagnosed with bipolar borderline personality disorder and ptsd and for my seizures ive been tested and tested to see where they might be comin from ive always have joked sayin its my mind short circuiting cause i just process way to much at one time but after readin up on my mental diagnosis im really beginning to wonder because im now
i do not doubt that some people have had seizures, i know that i haven't been prone to them at all. if i am setting myself up for seizures in the future, i should know that too. despite the long duration i've been on it, no seizures at all. i highly recommend nicotine replacement therapy -- patches. you will feel awful, 21mg is the strongest dose, it'll be rough, but you'll get through it.
It's possible that they do represent true seizures and should be evaluated with an EEG, perhaps even more prolonged monitoring if the seizures aren't captured on routine EEG. 300mg of Trileptal is half the normal dose and is likely not at a therapeutic range. This may need to be adjusted if your neurologist feels that you are actively having seizures.
My 3yo son has been having several seizures daily for 6 months. A recent VEEG showed they were complex partial coming from frontal lobe unilaterally.What is % of children outgrowing this type of seizure? Is keto diet effective for this type? What is prognosis of surgery on frontal lobe? At what age do children not recover as well -speech- from surgery? His speech is slightly delayed, especially receptive speech, but his expressive speech has made great improvement with therapist.
(so the symptoms did have something to do with her AVM) They put her on Trileptal. She has been on it for 1 week. We are not seeing any changes yet, but I know it can take a couple weeks. We are waiting patiently. We have the best Doctors. All of them have been great. I am just wondering how common this is, long term effects, odds of controling these kinds of seizures, & is there any support groups out there for teens & moms who have been through these kinds of problems.
As I was in the emergency room with my husband for his heart attack, I dropped down right there and had my first seizure. I had one more seizure 6 months later. Both of these times were very stressful situations and my husband is in law school full time. I work more than 12 hours a day mind you as well. I had two EEG's and they both came back normal. My MRI did come back with an osteoma of the sphenoid wing 6 x 4 mm.
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