trileptal for seizures

My son takes Trileptal for his Epilepsy...(he is 16)...it's affecting his memory more and more; does anyone else here take this med and have similar problems? His dosage is 900mg/twice a day. Any lower dose and his seizures return. This has been the only med that has been able to control his seizures. He has frontal lobe epilepsy with seizures that only occured in his sleep (with a couple of rare exceptions). Thanks for your help.

I have been on it for only 5 months. I have had no lasting problems so far. It has completely stopped my seizures. I have TLE. Yes I was also told the same thing about being on it forever... I don't know how long the drug has been out in the US. Guess we need to do some research. Stay in touch.

He was prescribed Dylantin which was switched to Keppra. His neurologist recently added Trileptal to balance his levels because he was having seizures so often. His therapist also prescribed him Celexal and Elavil for depression medication due to bipolar disorder. Now it seems that the 2 anti-depressants have a side effect of seizures, which causes him to seize more than usual. Should the 4 meds be mixed, Keppra, Celexa, Elavil and Trileptal?

My daughter was a thin child, who took Tegretol for seizures, and gained a large amount of weight in a short time. We stopped the medication, but the weight did not reduce.

Thanks for the reply. I have never cmopletely blacked out, only partially. The hand shaking was really weird, and seizure was the first thing that came to mind. Do my symptoms sound like something that could casue this? What does this medication do that you mentioned above?

All his test came back normal except for the EEG which was abnormal. The doctor said alot of kids have seizures for unknow reasons and they usally outgrow it as they get older. Now that we have a new doctor he says my son has complex partial seizures that start in his frontal lobe. He said its hard to say he will outgrow it becuase when you have seizures that usually start in one area you usually have them through your life. Is that true??! Or does he not just want to give me false hope?

Which meds are best for which seizures? What does everybody else taking? Is it working? Does it make you sleepy? Side effects? How much do you take? Do you like it? Was it the first one you tried? Did you have to try many to find one that you liked?

I currently take Trileptal for Partial Seizures (my seizures are well controlled with it) but whenever I miss 2 doses in a row (which I obviously try not to), I experience numbness and tingling in my face and head. I know these are symptoms of MS and I know Trileptal can be used for MS patients to help with nerve issues. I guess my question is should I see my neurologist? Is it possible that this face numbness/tingling sensations are symptoms of MS? FYI I am a 33 yr old female.

Ok so, I have been taking the's meds for like 2 months now. I am taking 150 mg of Zoloft and 1800 mg of Trileptal daily. I have been very emotional, like it's that time of the month but it's not, for the last week and for like 2 days now, just randomly I smell weird as ****... Like I was warming up some pizza rolls and it smelled like sweaty day old gym clothes and then I heated up something else and it smelled like day old pissy clothes... Is this normal??

said they were complex partial seizures and she went on dilantin and depakote then keppra and ended with trileptal and now on keppra and trileptal...seizures still are not controlled and she goes through cyles of increased seizures and memory loss and headaches and seizures seem to be getting more frequent and the keppra is terrible...and now they want to try lamitra or zonegran...every mediceine is so disruptive to her and do not control the seizures..

I have tonic-clonic seizures, and absence seizures generally. I have headaches that cause blurry vision. I see these color blobs that move in my vision that shouldn’t be there, they don’t show any connection to stimuli so I don’t have synesthesia. I’m on levetiracetam aka keppra and clobazam aka onfi.

I'm going to answer with a personal story. At 5 1/2 years old, my daughter started having seizures--many every day. Otherwise, she was perfectly normal. Now she's 12 1/2. She's had anywhere from 3 to 300 seizures a day. We tried about 6 different kinds of medicine. They worked for a few days or weeks somewhat, but she always went back to her usual 6-10 a day. Once we combined two anti-seizure meds and she had more seizures.

She is currently on Keppra (3 in the am)250mg, also one Trileptal 300 mg, then the same dose for the pm. I am trying to be the best mom I can by talking up this new findings with everyone I know and don't.. Could it be solved another way cause she is still experiencing the seizures ..and with all those meds going into her pore little body?? Could someone please help me if you have experienced anything like this or know of posibble other tests that I should be asking for??

She began taking Trileptal and it worked well for her for about 4 years and then she began having break thru seizures. It made her tired, but other than that she did well on it. She then tried Lamictal which made her feel terrible. Awful stomach pains. Now she is on Keppra XR and still on Trileptal as well. Working through side effects.

He went from 75-100 seizures a day, including drop seizures. He has been seizure free for 1.5 years. That was the best team of doctors I have ever met. We went to 8 before someone could find out what was wrong with him. So, its scary but the surgery is the best thing we ever could have done. He is now able to start learning, and he came off of all medication except for 75 mg of zonegran. He was on 1400mg a day. It has made a huge difference. Hope this helps.

I am taking Trileptal for Trigeminal nerve pain. It has worked well for me. I do think it makes me a bit sleepy though. But the relief I am getting from pain makes it worth it.

Hi ggreg, Thanks for the reply. My Dr. Took me off all my Meds and so the only Meds i am currently on is the Ativan 1mg and there tapering me off of that also... ever since i was placed in the hospital the day i had (2) Grand Mal Seizures the Dr. put me back on Ativan and i had no Seizures again since. But when the Nuro.

I was dx with temporal lobe epilepsy (TLE) a few months ago and taking Trileptal (450 mg per day), it seems to be working pretty well for me (I was having simple partial seizures and still have some aura on occasion, I will be talking to my neurologist about this on the next appointment). My neurologist was not able to tell me what caused it, I don't think I ever had a head injury. He did say that my severe complex sleep apnea made it worse, but was not the cause.

will chantix efect the use of all my meds for seizures/hiv.

DOES ANY ONE TAKE TRILEPTAL FOR BIPOLAR ??? IF SO HOW MUCH AND FOR HOW LONG HAVE YOU BEEN TAKING IT??

Thanks for using the forum. I am happy to address your questions, and my answer will be based on the information you provided here. Please make sure you recognize that this forum is for educational purposes only, and it does not substitute for a formal office visit with your doctor.

I am 23 and have been suffering from intense migraines for about 12 years. Seizuresfor about 3 years, but this isn't about the seizures.

What do you take the trileptal for?

I havent heard of seizure meds being used for MS. Although I am on Keppra now for a week due to recent seizures. I have been wondering all along if I have MS although testing thus far has not proven so. Erica mentioned side effects, I have to agree: i couldn't take trileptal and now seem to be having some problems with Keppra and am on a very very low dose 125mg twice daily, supposed to increase tomorrow but think I will wait another week before I do.

I am now on Trileptal for now to see how my body tolerates that. WHatI need to know is if there are any other tests that can be run to confirm if in fact those spikes or discharges are complex partial seizures. The only physical manifestion I presented with was a tremor in my right arm. I am confused and discouraged with the lack of information I am being given. I've not eaten a real meal in over two weeks, my body is weak, the headaches and nausea are not very uplifting.

My five year old grandson had his first seizure on 3/21 and surgery to remove a benign left frontal astrocytoma on 5/11. Before the surgery he started on Keppra to control the seizures which did not work. Then Trileptal was added but still did not work so Depakote added finally mostly kept the seizures to a few minor ones a day. After the totally successful surgery to remove the tumor he was kept on the Depakote as a precaution for an undetermined length of time.

Trileptal for seizures

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