Trileptal and trigeminal neuralgia
Common Questions and Answers about Trileptal and trigeminal neuralgia
trileptal
I have been diagnosed with trigeminal neuralgia. When I first started taking trileptal the pain completely went away and I was sure I was cured. But only within three weeks I was woken up with the same pain again, though not as severe as before. The pain has made all my top left teeth extremely sensitive which is normal with the condition but now, the left side of my palate is also swollen. I am not sure if this has anything to do with the neuralgia or not.
One of the causes of Trigeminal Neuralgia could be tumors. The Trigeminal nerve and its branches touches many parts of the face including the sinuses. (Google Gray's Anatomy (bartleby.com) for good diagrams of where the Trigeminal Nerve is).
I personally have not heard that TN loosens teeth -- although pain in the teeth and gums (because of all the areas the nerve touches) is common.
My sister in law is diagnosed with trigeminal neuralgia ... she is currently on Pregalin 75 for 6 weeks ???
I have typical Trigeminal Neuralgia and had a Gamma Knife treatment 6 months ago. I was told to begin weaning off my medication (Trileptal). Since reducing the medication by 150 mg, I am once again experiencing TN pain triggered by chewing, talking, washing my face, etc. Is this normal when weaning off anti-seizure medications used for TN?
I am currently getting many other treatments for my migraines which work fairly well. And currently my trigeminal neuralgia is down to a dull roar, but it was at pain levels of 10 at times. I took Trileptal which gave me the worst migraines that I have had. Had to stop it, but it took care of the terrible mouth pain. What about you?
i believe that i have trigeminal neuralgia but i do not know what tests are done to confrim this . can you tell me what tests have to be done so i can ask my physician to ruin these tests or demand they run them ? i have been so sick for so long . i literally have been to 25 -30 doctors to find out what is wrong with me . and every test comes back negative except that a test came back positve for fungal aspergillosis .but they do not say anything about treating it .
Which medication are you on? All of the anticonvulsants can cause side effects, but some people report they get used to the drugs after a few weeks.
Be aware that the drugs used to treat TN can cause depression -- as if dealing with the diagnosis isn't depressing enough!
They can also make you drowsy. My doctor suggested I take a NoDoz with the daytime doses. But talk to your doctor, because caffeine can be a trigger for some people.
People describe a "brain fog" feeling.
Hi, Thank you for your question. Trigeminal neuralgia may have a triggering factor like recent history of tooth extraction, touch, cold breeze or hot sensation etc. which you need to evaluate and avoid. Drug of choice for trigeminal neuralgia is carbamazepine but as the dose may vary according to severity therefore I would advice an oral medicine specialist consultation or at least a physician to confirm this diagnosis and get you treated accordingly.
I am a sax, flute, clarinet player with Trigeminal Neuralgia. Very annoing to have daily pain when practicing my proffesion. Have been taking Carbamezapine and lately Gabapentine, which both cause Erectile Disfunction. Have read that Oxcarbazepine does not have this side effect. Have not convinced my neurologist to let me switch meds. What success have people had using Oxcarbazepine for TN, and does it also cause ED? I don't want to use either carbamezapine or gabapentine if possible.
I've had TN now for 46 years. At age 9 I was the youngest to have it, but now there are babies with it (so sad). Docs tried lots of things, and every drug. By the time I was 16 they created Tegritol (carbomezapine) . By the time I was 21 they had perfected decompression surgery, which didn't work.
When she was almost done with the medicine she started having facial pain on the same side of ear infection. Has had MRI and taken meds for the neuralgia to no avail. Seeing Neurologist tomorrow. My question is why did an ear infection cause this? Could it be a vascular compression problem? That would be the easiest to fix with long term results.
My wife has been taking Tegretol 200mg X 3 tines a day, this has caused her to be disorientated and nauseous & still in pain, she is trying Trileptal 300mg X 3, whilst cutting out the Tegretol. My question is how much Trileptal can she take ??????
Sorry to hear you're dealing with TN pain. Have you discussed other medications with your doctor? Everyone reacts differently to the various drugs available. Maybe another drug in combination with Trileptal would control your pain.
What imaging test did you have? MRI? MRA? CT? If you have a compression, is MVD surgery an option?
I've heard many stories of nasal infections causing increases in pain. If you search on Grays Anatomy on bartleby.
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