Trigeminal neuralgia without pain

Common Questions and Answers about Trigeminal neuralgia without pain

trigeminal-neuralgia

I have had an ECG and my thyroide tested because there is thyroid and heart decease in my fathers side of the family,both tests were fine.
Doctors 1st couldn't know what it is but after 2 months a doctor told me its a Trigeminal neuralgia or what is known by facial pain. He gave me Tigirtol (2 tablets a day -200mg) a day and it was like magic for 1 month but after that we has to increase it to 3 then to 4 then to 6 for a short period of time but it didn't stop. So we phased out from Tigirtol and shifted to Nuronteen which was good but for a short period of time where the pain came back and much more sever.
Thank you for your question. Although without being able to examine you I can not offer you the specific advice on diagnosis and treatment that you need, but I would try to provide you some relevant information about your health concern. Drug of choice for trigeminal neuralgia is carbamazepine but as the dose may vary according to severity therefore I would advise an oral medicine specialist consultation or at least a physician to confirm this diagnosis and get you treated accordingly.
Does anyone know an Acupuncturist who specializes on the relief of pain from Trigeminal Neuralgia in the UK/ France/Germany?Brussels? Any feedback on this appreciated.
Wow, sorry, I missed this. It is a favorite topic of mine after learning a great deal about it when I had it. Trigeminal Neuralgia is literally a "pain syndrome of the Trigeminal nerve. This nerve is the 5th Cranial Nerve and supplies most of the sensation to the face. There is one on both sides. The Cranial Nerves are nerves that emerge directly out of the brain or brainstem.
I have Trigeminal Neuralgia and I had the surgery Microvacular Decompression done and the pain went away. I am pain free for over 1 year now.
I do have days without head pain and enjoy every moment but 90% of the time I have some pain whether it is a dull roar or a 10+ on the pain scale. It was recently mentioned to me that this sounds like Atypical TN. I am going to talk to my Dr about that possibility when I see her after the first of the year. When they get bad they usually wipe me out and it takes days to recover from the fatigue and so forth. Not sure if his helps but thought I would throw it out there.
Terrible burning in the left shoulder, numbness of the arm, hands, pain in left leg, and symptoms of TN and occipital neuralgia. My pain is constant. I have only suffered the true TN pain twice....but the burning, face swelling, aching, stabbing pain is always there. It has made my life completely different. I'm afraid to go anywhere because of the severity of the pain and my quality of life has gone way way down the hill! I go to a neuro surgeon on 2/17 to see about possible surgery.
My aunt has trigeminal neuralgia and she has been having attacks that are closer together and more sever she is treating them with pain meds, but she is having to take more of them and more often. We have tried to talk her in to having surgery, but she is very hesitant. She is worried that she will be paralized on some or all of her face and arms. Is there a surgery that does not have these affects, but will help her symptoms without having to have additional surgeries?
For those of you with trigeminal neuralgia, would you mind me asking you what it feels like? I have been assuming, for a while, that what I have in my face is bilateral trigeminal neurlagia. But, perhaps I'm wrong.
Hi, guys. I hadn't looked at this site for more than a year. STN is a new categorization. Clearly my TN is STN also. This does not mean that we don't a form of Trigeminal Neuralgia. The "Powers That Be" have conferred and determined that they will separate TN from MS from the classic TN which is caused from Compression of the nerve. This makes sense and does NOT change what we have been saying about TN, its incidence in MSers or its meaning.
A stoke event would have been picked up on MRI, especially the T2 weighted and FLAIR images. You might have had trigeminal neuralgia as your sedimentation rate was up. Without examining you I can't say for sure. About fixing your heart, if you have no right-to-left shunting of blood through the foramen ovale you wouldn't need to have the patent foreman ovale fixed.
I woke up with Trigeminal Neuralgia last Thursday morning. I knew that was what it was, because I had it once seven years ago. This time it's SO much worse! I told myself I'd "tough it out" for the weekend, even though I did put in a call to my neurologist. By Sunday, it was so bad, I was in tears! I told my DH "just take me out back and shoot me like an old horse!" I was kidding, but kinda serious, too! Monday was excruciating, and I got to see my neuro in the am.
I suffer from trigeminal neuralgia and am currently taking BACLOFEN to help with the pain. I was treated with the Gamma Knife about a year ago without success. A friend also had TN and was treated with an alcohol shot to the face that had to be repeated about 4 weeks later. That was over 10 years ago and he has had NO pain since. I can find only passing references to the alcohol shot to the face. My question is where can I go to get this alcohol shot to the face?
I started on Gabapentin, which didn't work for me, then Tegretal which made me a zombie and didn't help the pain, until finally my 6th doctor gave me Trileptal which controlled the pain completely. It's a learning experience to get the dosage level and timing of the doses correct.
As far as I know, TN does always cause pain, though there are often periods without pain. There is also Atypical Trigeminal Neuralgia, where there is a constant dull pain with occasional zaps and zings of truly electric pain. I think it's most common for TN to be one-sided, but it can occur on both sides. People with MS are more likely than the general population to have it on both sides; I forget the ratio.
but if i sleep on the left side, many times i can sleep all the night without pain, unless i touch my trigger zones. i have read somewhere that Trigeminal neuralgia almost never happens when we are sleeping but for me it is not the case. mine is especially active when sleeping. sometimes it is only active when i sleep. I have also read that Trigeminal neuralgia usually attacks people that are older than 50 but i was 19 when it first started. so is this Trigeminal neuralgia or something else?
Your clinical presentation can be a significant clue to formulate a diagnosis. Neurologist probably can diagnose trigeminal neuralgia without problem. If your neurologist can not make a definite diagnosis of trigeminal neuralgia , you probably don,t have trigeminal neuralgia, in stead, you probaly have something beyond neurologist,s recognition, such as, atypical odontalgia, atypical or pre trigeminal neuralgia, mid face segmental pain, or neurovascular orofacial pain.
Through similar pain mechanisms as those involved in post-traumatic pain in a limb, post-traumatic neuralgia in the trigeminal distribution can result from trauma to any branch of any of the three divisions intra or extra-cranially.
Hi, Thanks for writing in. Trigeminal neuralgia can occur due to aging, damage to the myelin sheath of the nerve or a tumor compressing the trigeminal nerve. However in most of the cases cause cannot be found. Occipital neuralgia can occur due to damage to the occipital nerve due to trauma, physical stress, repeated neck flexion, contractions and extensions and due to benign tumors of bone. It is difficult to pin point the exact cause without clinical examination.
I have been under much stress since my husbands heart attack and open heart surgery. He has Congestive Heart Failure and Cardiomyopathy. As a result my Trigeminal Neuralgia pain has broken through my medication. I have been taking neurontin, baclofin and dilatin which contained the pain. My question - what are some new medicines (beside Lyrica-I can't take it) which would work with or without neurontin? I would like to go to my doctor with some ideas. Thank you.
One of the conditions that can cause pain as you are experiencing is called Temporal Arteritis. Trigeminal Neuralgia and Atypical Facial Pain also fit. There are other tests the neurologist may recommend. Many patients I have seen have experienced complete remission of their symptoms without surgery. Some forever, some for many years. Don't get discouraged. Simply because the MRI was negative does NOT mean your condition is caused solely by stress.
I looked it up on the internet and found that I had the symptoms of both Trigeminal Neuralgia and Occipital Neuralgia. I did not believe it to be a coital headache because it wasn't active enough, but it could be. Also, I successfully masturbated and experienced an orgasm properly while lying on my side. The pain has mostly gone away, but not completely. Also, it sometimes comes on its own [the feeling of trigeminal neuralgia], especially when I am in the light.
Trigeminal neuralgia would be a consideration for your tooth pain, but as your neurologist has rightly acknowledged, there are atypical characteristics to your symptoms. The pain in trigeminal neuralgia is usually characterized by brief episodes of severe pain with pain free intervals in between. The pain may also be triggered by trivial stimuli such as talking, brushing teeth, eating. The diagnosis is largely clinical (meaning based on history and physical exam).
How successful are botulinum injections to treat atypical trigeminal neuralgia? My pain is centered in my left upper gums but spreads throughout the left side of my face below my eyes. Throbbing pain with knife-like pain are the usual problems. I always have some pain. Wearing glasses triggers intense pain. I've tried numerous medications with limited success.
I have met a few people with this condition who are effected a bit differently but I was at the point where even a breeze on my lower chin would send me jumping. I could not eat, talk, drink or do anything without pain 24 hrs a day and that was it. I had the MVD surgery July 1997 and I haven't looked back. I just got a call for follow up and was so pleased to report no pain in 12 years.
Different sites give different explanations. Nevertheless, terrible pain is terrible pain (which I'm fortunate not to have). I think you should see the pain management doc ASAP to explore all your options. I do hope that others here can help and that you soon get relief.
I was diagnosed with Trigeminal Neuralgia about 10 years ago, and two years ago had a Micro-Vascular Decompression operation that did not fully solve the problem. I am on low daily doses of Carbamazepan (300-350 mgs) and luckily have 'precursers' (i.e., little electric-like shocks) that warn me before the full-blown pain occurs. I have now developed strabismis, where my binocular vision is 'out' because one eye tracks higher than the other.
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