Trigeminal neuralgia treatment forum

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trigeminal-neuralgia

Avatar f tn i have a reaserch on mangment of trigeminal neuralgia , but i cann't know until now which the best medical or surgical treatment and i couldn't found which have high rate of recurrance.
Avatar n tn I may have trigeminal neuralgia in the mandibular branch. Severe pain in the lower gum area but it is on both sides which has my PC doctor, my neurolgist, my pain management dr, my neurosurgeon and my accupuncturist all baffled. Meanwhile, I am on Lyrica, which is becoming ineffective, Vicodin, which does not help much, and Ambien to knock me out at night to get some sleep. Is anyone out there who has experienced such a problem that can head me in the right direction? I am losing hope.
Avatar m tn Traumatic trigeminal neuropathy is generally not associated with trigeminal neuralgia. However, both entities may be responsive to pharmacologic intervention. Seeing a neurologist or orofacial pain specialist misadvised.
485259 tn?1519047026 I think it is very important that you include Shingles on your site. It links to Trigeminal Neuralgia. Also consider Post Herpetic Neuralgia. There are many people suffering right now that could be helped by information and to have support and know they are not alone, and even better, get treatment immediately and be thankful to call themselves lucky to avoid the complications that can arise from misinformation and delayed diagnosis or misdiagnosis.
Avatar f tn Symptomatic trigeminal neuralgia is usually caused by multiple sclerosis or by tumours arising near the trigeminal nerve root. Differential diagnosis of trigeminal neuralgia: Cluster headache - Longer-lasting pain; orbital or supraorbital; may cause patient to wake from sleep; autonomic symptoms Dental pain (e.g.
Avatar f tn Your symptoms do not exactly match the clinical picture of trigeminal neuralgia but you should continue with the treatment and do notgo in for complicated details.The treatment consists of medicines, surgery, and complementary approaches. For more information refer http://www.ninds.nih.gov/disorders/trigeminal_neuralgia/detail_trigeminal_neuralgia.
Avatar f tn Do you think this can still be Trigeminal Neuralgia? Is a neurologist the best type of Doctor to seek treatment from? Thank you again.
Avatar m tn I suffer from trigeminal neuralgia and am currently taking BACLOFEN to help with the pain. I was treated with the Gamma Knife about a year ago without success. A friend also had TN and was treated with an alcohol shot to the face that had to be repeated about 4 weeks later. That was over 10 years ago and he has had NO pain since. I can find only passing references to the alcohol shot to the face. My question is where can I go to get this alcohol shot to the face?
Avatar n tn I know someone who was recently diagnosed with TN and also has a lot of pain. It is a difficult condition. There is a forum on medhelp for Trigeminal Neuralgia where you can find support and hear others' stories. Just click on Forums in the blue menu bar up top, and scroll down to the Ts. I hope she finds relief soon!
Avatar f tn I have been suffering for 2-1/2 years with oral facial pain. It began on the left and is now bilateral. I get severe, constant pain in the upper gums, teeth, cheeks, temples, jaws, neck. At times there are sharp twinges, but mostly it is a deep, constant ache. I have had close to pain-free moments, but just when i think I'm cured, it flares up. I have had 2 diagnosis. TMJ with osteoarthritis of the jaw joints and cervical spine. The other diagnosis is from a neurologist.
Avatar m tn Does Trigeminal Neuralgia worsen with age. I've tried Tegretol but the pain has some back agaiin after about a year and is very, very intense. It is like a needle made of glass penetrating the right side of my nose and going into my head. What is the best treatment for this and can it be cured completely. This discussion is related to <a href='/posts/show/894401'>Trigeminal neuralgia more help</a>.
Avatar f tn Hello, In your case, I think that it can be trigeminal neuralgia. Trigeminal neuralgia is very painful swelling (inflammation) of the nerve (trigeminal nerve) that delivers feeling to the face and "surface" of the eye. Trigeminal neuralgia causes severe, short-lasting (only a few seconds) facial pain on the side of the affected nerve even by slight touch. Mostly affects elderly females. May be caused in multiple sclerosis also.
Avatar n tn Does anyone know an Acupuncturist who specializes on the relief of pain from Trigeminal Neuralgia in the UK/ France/Germany?Brussels? Any feedback on this appreciated.
624326 tn?1223829190 There is a fabulous site of the Facial Pain Association that deals with the various types of facial pain and is dedicated to the treatment of them. For MS (my forum) this is Trigeminal Neuralgia and Atypical Trigeminal Neuralgia. fpa-support.org I hope this also has good info for you.
Avatar n tn Hello, From your symptoms the possibilities of trigeminal neuralgia and temporal arteritis need to be ruled out. Trigeminal neuralgia is painful swelling (inflammation) of the nerve (trigeminal nerve) that delivers feeling to the face and "surface" of the eye. Trigeminal neuralgia causes severe, short-lasting (only a few seconds) facial pain on the side of the affected nerve even by slight touch. Mostly affects elderly females. May be caused in multiple sclerosis also.
Avatar f tn Trigeminal neuralgia can come and go but your statement suggests that you probably had some type of nasal surgery or what is called percutaneous stereotactic radiofrequency rhizotomy, an effective treatment for trigeminal neuralgia and one with lasting benefit. Thus the pain that you are now experiencing is unlikely to be related to the trigeminal neuralgia, as you yourself suggest.
Avatar f tn org/posts/Multiple-Sclerosis/Attack-of-trigeminal-neuralgia--OMG/show/2646953#post_12856616) I moaned about it, but I have to say it was excruciating. Fine now, at least from that standpoint. The standard treatment is Tegretol (carbamazepine). It turns out I can't tolerate that, as a reasonably effective dose wiped out my balance and had me staggering all over the place. It also almost destroyed my platelet count, which was down to 23.
Avatar n tn i have been treated for tmj for 5 years with no relief and then i had an arthrocentesis done and still no relief. now my doc tells me i have trigeminal neuralgia and is going to give me an injection into that nerve. what i want to know is there side effects of this injection? and can trigeminal neuralgia cause pain in the back of the head where the skull meets the spine. i have had continuous pain there worse then ever. i am now on neurontin and baclofen and it helps extremely.
Avatar m tn There is a chance of a misdiagnosis here if Tegretol is not working. It is the gold standard for treating trigeminal neuralgia. If it is not working, it may possibly be pain of some other cause. The neurologist may be able to help you sort this out.
Avatar n tn In all probability, you are suffering from trigeminal neuralgia. For medical treatment of trigeminal neuralgia several types of drugs are tried either singly or in combination. These are anti-epilepsy drugs such as valproate, carbamazepine, lamotrigine, phenytoin, gabapentin, and pregabalin; muscle relaxants such as clonazepam and baclofen; tricyclic antidepressants such as carbamazepine, amitriptyline, and nortriptyline.