Trigeminal neuralgia treatment forum

Common Questions and Answers about Trigeminal neuralgia treatment forum

trigeminal-neuralgia

Hello Samah, Welcome to the Pain Mangement Forum. I am sorry that you are suffering with trigeminal neuralgia. It is a painful condition that can be challenging to control and treat. It takes specialists in Neurology and Neurosurgery to determine the most appropriate treatment to relieve each patients pain. The goal is to avoid facial numbness as much as possible. Successful treatment for the disorder should allow patients to resume an active life.
I suffer from trigeminal neuralgia and am currently taking BACLOFEN to help with the pain. I was treated with the Gamma Knife about a year ago without success. A friend also had TN and was treated with an alcohol shot to the face that had to be repeated about 4 weeks later. That was over 10 years ago and he has had NO pain since. I can find only passing references to the alcohol shot to the face. My question is where can I go to get this alcohol shot to the face?
Hello, I have been diagnosed with atypical trigeminal neuralgia, which my neurologist believes to be caused by inflammation of two front teeth in my lower jaw and the surrounding bone following a root canal treatment and multiple root end surgeries on those teeth. It took 8 months for the diagnosis (I went to see several doctors during that time because of lasting pain until finally I went to see the neurologist).
I need answers, does Trigeminal Neuralgia pain last this long? All the websites say it's an intense pain lasting only a few second or minutes, this has been several weeks now and in the last 4 days has gotten to where I can't function. Some one have any answeres?
I have Trigeminal Neuralgia,,,I also was diagnosed with MS. I am now in LD treatment., and TN is a very common symptom of LD...funny that it also affects those with MS. My MS doc prescribed a seizure med that didn't help me,,, my lyme doc on the other hand prescribes antibiotics and for the first time my TN is improving. The abx brings the TN back, but for shorter periods...this "revisiting of symptoms " is how we know we are getting better.
.I was diagnosed with trigeminal neuralgia 8/10.had a MVD performed 1/11. after surgery my neuro told me that a vein had fully bonded to the nerve as well as a thckening of my archanoid membrane which had wrapped around the nerve as well. He killed the nerve and removed what membrane he could. ever since surgery most of the sharp electrical pains were gone and i woud occasiony geta little zing or ping in my face along the trigeminal pathway.
From your decription it sounds like you have a vascular proliferation disorder (sturge-weber) that affects the trigeminal distribution and is causing your trigeminal neuralgia. It also sounds like you have had quite an extensive workup for your pain, and I am not sure I will be able to add much to what you have already had. One thing I dont think you mentioned is gamma-knife treatment.
There are differences between trigeminal neuralgia and Paratrigeminal Neuralgia one being that I do not feel pain if something touches my face. Now I don't know what classifies you as having "atypical trigeminal neuralgia." I do have a request for information in with a Dr. Kauffman in Manitoba who deals specifically with the "Neuralgia's" and I am hoping to hear from him in the next week or so.
Go to the forums home page.....
I have had trigeminal neuralgia for almost 5 years. I have had MVD, Gamma Knife, Nerve Blocks and 4 days ago I had Balloon Compression. I have taken just about every medicine you can think of and am on ALOT of medicines. In addition I have migraines with cluster variance (this is what my neurologist diagnosed it as) whatever they are they are horrrible. I have high blood pressure, fibromyalgia, Crohn's disease, TMJ, Interstitial Cystitis, Reflux.
When I get the pain its sometimes seems to shoot down my back and along the front of my chest as well if it's really bad. Ive been told by my doctor its probably Trigeminal neuralgia but im only 17 and Ive seen a lot of info on it all saying that onset of TN in young adult suggests MS, How comon is it for TN to be a first symptom of MS in young people?
I have had Trigeminal Neuralgia for about a year now. At first it was severe, more the type 1 classic and mostly the horrible pain was in my head. Later spread to my face. Now I have been diagnosed as type 2 or Atypical TN with the constant pain with the occasional episode of breakthrough stabbing pain of the classic type. What makes me different than the average case is that originally shingles was suspected although I never really had sores, only a slight red mark on my scalp.
Corticosteroid treatment may be prescribed to reduce inflammation and drugs to suppress immunity. Trigeminal neuralgia which is a severe stabbing pain like electric shocks, presents intermittently and can interfere with chores like eating and sleeping. There is intense muscle spasm accompanying the facial pain which is mediated by any of the 3 sensory divisions of trigeminal nerve. this has to be considered in the light of multiple sclerosis because nerve pain syndromes can be a part of this.
One is a condition called trigeminal neuralgia. This is a type of pain that comes and goes on one side of the face and is severe and sharp when present. When there is no pain, most people are symptom free. It is in the distribution of the trigeminal nerve, hence its name. The pains are usually on the cheek and jaw regions. It usually occurs in people older than 50 years of age. Triggers can include washing the face, shaving, smoking, talking, brushing teeth, etc.
Your pain level, medications you take, and anything at all about managing this condition!! After my first episode of Trigeminal Neuralgia, I took Gabapentin 100mg 2x-3x a day for 3 months. The pain gradually got better and I reduced my pills to 1x a day. The pains then went away for 3 months, and I continued with 1 pill each evening. When I tried to reduce to 1/2 pill each day, I would start having some minor pain.
my daughter has had 2 surgeries for pituiatry tumour, radiotherapy, she still has remnant tumour, (Acromegaly) but also has facial ear and neck pain, which prof says is because tumour is pressing on trigeminal nerve, tried amytrplin, never worked, 3 weeks ago prof put her on Pregabalin, small dose then up to 300 a day, within a few days of upping the dose, she has been in more pain than ever, crying, agitated, and said she thought she had pain before, but now this is unbearable, they have told
Thanks for using the forum. I am happy to address your questions, and my answer will be based on the information you provided here. Please make sure you recognize that this forum is for educational purposes only, and it does not substitute for a formal office visit with a doctor. Without the ability to examine and obtain a history, I can not tell you what the exact cause of the symptoms is. However I will try to provide you with some useful information.
One is a condition as you mentioned called trigeminal neuralgia. This is a type of pain that comes and goes on one side of the face and is severe and sharp when present. When there is no pain, most people are symptom free. It is in the distribution of the trigeminal nerve, hence its name. The pains are usually on the cheek and jaw regions. It usually occurs in people older than 50 years of age. Triggers can include washing the face, shaving, smoking, talking, brushing teeth, etc.
Can TMJ be responsible for eventually causing trigeminal neuralgia or atypical facial pain? Many thanks for this very informative forum. Allan ========================================================================== Thanks for the question Allan. As you know we have answered many questions on TN in the past and you can review those for general information. I did a literature search and found no papers linking TN with TMJ.
In multiple sclerosis, the problem is related to ABnormal excessive demyelination of the same (trigeminal) nerve, and on occasion trigeminal neuralgia or neuralgis of one of the other cranial nerves is the first symptom (in retrospect) of multiple sclerosis. Treatment for this condition consists of medications, including Tegretol (carbemazepine), Dilantin (phenytoin), Lioresal (baclofen), and occasionally other medications.
Re: MS and trigeminal neuralgia [ Follow Ups ] [ Post Followup ] [ Neurology and Neurosurgery Forum ] [ FAQ ] Posted by CCF MD GS on March 09, 1998 at 15:35:44: In Reply to: MS and trigeminal neuralgia posted by Debby on February 28, 1998 at 08:13:28: : Hi - I have 2 questions: 1 - I have tn bilaterally but had it first on the right side of my face.
Re: Re: Re: Re: Atypical Trigeminal Neuralgia [ Follow Ups ] [ Post Followup ] [ Neurology and Neurosurgery Forum ] [ FAQ ] Posted by CCF MD mdf on May 21, 1998 at 12:56:14: In Reply to: Re: Re: Re: Atypical Trigeminal Neuralgia posted by Barbara Atkinson on May 04, 1998 at 12:55:36: : : : : : :Hello out there. I am in PAIN and I don't know what to do! I woke up one morning with ringing in my right ear. I waited a few days to see if this ringing would disappear.
underlying cause of your trigeminal neuralgia, other treatment options include Dilantin, another drug similar to Tegretol, and baclofen. Surgical options for resistant cases include injection of glycerol into the nerve, or damaging the nerve with a radiofrequency device that destroys the pain generating nerve fibers--- but at the expense of leaving you with permanent numbness in each of the treated divisions of the nerve.
Both were normal but I still have all the same symptoms and am in pain. The Dr. did dx me with trigeminal neuralgia. The Tegretol is not working as good as it did in the beginning. Why is that? I take 200mg 3 times a day. By the time I'm ready for the next dose, the pain is starting to hurt pretty bad. Also, I have been having the weirdest sensations in my face. It feels like a bug is crawling all over my face and I can't get rid of it. I rub my face but the sensation is still there.
Re: trigeminal neuralgia and head trauma [ Follow Ups ] [ Post Followup ] [ Neurology and Neurosurgery Forum ] [ FAQ ] Posted by CCF MD GS on March 09, 1998 at 12:17:38: In Reply to: trigeminal neuralgia and head trauma posted by Richele Brafford on March 03, 1998 at 17:40:21: : In Nov. '95 I was involved in a car accident. The car I was in was not equipped with seatbelts.
I think it is very important that you include Shingles on your site. It links to Trigeminal Neuralgia. Also consider Post Herpetic Neuralgia. There are many people suffering right now that could be helped by information and to have support and know they are not alone, and even better, get treatment immediately and be thankful to call themselves lucky to avoid the complications that can arise from misinformation and delayed diagnosis or misdiagnosis.
However I will try to provide you with some useful information. Glossopharyngeal neuralgia has a similar pain sensation as that of trigeminal neuralgia. This type of neuralgia is rare and is usually one sided. The pain can be felt in the throat, tonsillar region, back of the tongue (not front), and even the ear. The pain can be triggered by various activities such as laughing, chewing, coughing, speaking, etc. The treatment is similar to that of trigeminal neuralgia.
Re: trigeminal neuralgia followed by general parathesia [ Follow Ups ] [ Post Followup ] [ The Neurology Forum ] [ FAQ ] Posted by CCF NEUROSURGERY MD on October 07, 1997 at 11:37:19: In Reply to: trigeminal neuralgia followed by general parathesia posted by Tracy L. Jones on September 30, 1997 at 21:57:07: : One year ago, I was diagnosed with trigeminal neuralgia. After treatment with prednesone, the symptoms lessened from 8 to 2 on a scale of 1 to 10.
52:16: In Reply to: Trigeminal Neuroma posted by Mark Fingerle on May 21, 1997 at 00:35:54: : Greetings: I am trying to assist a Latin Ameirican patient with right trigeminal neuroma. Two prior surgeries has not solved all the problem. This apparently is a complex case. What is your experience with this? It has been suggested that Dr. Madjid in Hannover Germany is a world expert on this surgery. Any thoughts on this or best place in world to receive treatment? Many thanks!!!
Has anyone on this forum been suffering from Post Herpetic Neuralgia...tongue burning sensation...as a result of trigeminal nerve involvement during a bout of shingles. I've had this since February (shingles in January). Nothing helps relieve it and tried to enroll in a clinical trial, but couldn't because of Chronic Kidney Disease and arthritis pain. Any suggestions for relief would be greatly appreciated. Presently am taking 600 mg of Gabapentin. Thanks in advance.
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