Trigeminal neuralgia disability

Common Questions and Answers about Trigeminal neuralgia disability

trigeminal-neuralgia

Eventually, after being given artificial tears, which did nothing to help at all, I was diagnosed with trigeminal neuralgia. I now take amitriptyline 10mg in the evening and this helps enormously. I am now getting the symptoms recurring and breaking through. I also suffer buzzing and pressure sensations in and around my left ear. Is this the effect of the amitriptyline? I get odd numb sensations in my lips, which come and go.
I have also been turned down for state insurance (according to them, we're RICH) and Disability - but I'm going to try Disability again. I've spoken with many people on Disability, and they all had to appeal a few times before they were enrolled. I have young children who want me to play with them outside, and I'm afraid to. But I am determined to figure out a way to get through it, and even if I live with it forever, I need to find the way to control my life again.
the consensus seems to be atypical trigeminal neuralgia, but a couple of them think there's still possibility of myofascial disorder or TMJ (my films are normal, I have no problems opening or moving my jaw). I have a custom dental splint, which is not helpful. The neurologist says my brain MRI is normal. No OTC or narcotic pain meds or SOMA help the pain.
Now, I have been diagnosed with Trigeminal neuralgia, after a month in pain. Screaming and wanting to just die from what I thought was dental, when the teeth issue was ruled out, I went back to the emergency room, this time I was put on neurotin, presnindone and dulodid. This all seemed to help for like two days, then the pain was worse. The doctors look at me like what am I supposed to do for you. They basically let me suffer in pain for three to four hours before they tell me off.
If the X rays are fine, then I guess TMJ is a possibility. What about Trigeminal Neuralgia? This sounds more like TM than TMJ to me. Let us know what the dentist finds. Did the Lyrica help the pain?
My retina surgeon first referred me to a neurologist, who thought it was atypical facial pain/trigeminal neuralgia. I later confirmed this diagnosis with with a neuro ophthalmologist at Univ of Pennsylvania. He said this is rare but he does have 2-3 patients who have experienced this same situation. I had severe side effects from the neuralgic meds that were prescribed and had to discontinue them.
Sorry to hear about your symptoms. Trigeminal neuralgia can be quite debilitating if the pain is not adequately controlled. Your symptoms do sound like they could be atypical trigeminal neuralgia (TN), but it's possible that there may be nerve damage from your prior sinus surgeries which is a bit different than TN. Be careful with repeat sinus surgery as there is a chance that it may make things worse.
I live in GA and was denied the first round, even though I had a dx of MS, vertigo, migraines trigeminal neuralgia, . They stated I was still able to work. So I guess it does matter who is reviewing your case. I have a private company handling my claim ,which was provided by ex-employer. They do a WONDERFUL filling out all the paperwork. etc. PM me if you would like their name.
I am a limbolander but that is one of my concerns in case they have not diagnosed me correctly, since I have many positive results but so far they feel it is just Trigeminal Neuralgia. Have a great day. Amers FYI JJ; To get to the article stop and paste up to just http://www.medscape.com/viewarticle/719310 I tried the entire thread and it did not work but it went right to it with above one..
I was variously diagnosed with cluster migraine, chronic secondary cluster migraines, atypical facial neuralgia for 18 years.
Received some interesting info from a friend that may help the TN community about the Social Security Compassionate Allowance. Here's a quote from the website: "Social Security has an obligation to provide benefits quickly to applicants whose medical conditions are so serious that their conditions obviously meet disability standards.
Friends , haven't been on in a long time due to still waiting on insurance for a MRI ordered from my MS specialist for possible DX and Bi-lateral Trigeminal Neuralgia. Well after more then 3 months of waiting on insurance I have been denied again :( my husband is on disability due to being Deaf and he gets medicare and help from the state, my children get assistance through the state but me the mom and wife denied everything !!!!
Since you have a headache too, possibility of pinched cervical nerve, trigeminal neuralgia, temporal arteritis, benign intracranial hypertension, hypothyroidism or diabetes causing neuropathy etc too should be looked at. I think you should discuss these possibilities with your doctor and get a referral for an ophthalmologist and a neurologist. It's important to urgently consult a doctor. Take care!
29pm in Atypical Trigeminal Neuralgia Atypical Trigaminal Neuralgia  (ATN), or Type 2 Trigeminal Neuralgia , is a rare form of Trigeminal neuralgia, a disorder of the fifth cranial nerve. This may also be the most misdiagnosed form of neuralgia. The symptoms can be mistaken for migraines, dental problems such as TMJ, musculoskeletal issues, and hypochondriasis.
4 months ago my stomach lining disappeared and I had all these burns then most recently 2 months ago I was told in an ER I had trigeminal neuralgia which is a very painful nerve disorder in your face. I am only 31 years old. I have been to every hospital and did almost every knee jerk reaction test by most of the neurologists in my area, took a Lyme test and been too mayo clinic. Too me it as if my body is attacking its self.
OT -- occupational therapy PT - physical therapy IVIG--Intravenous immunoglobulin RLS--Restless Leg Syndrome IPIR--Immediate post-injection reaction (a reaction that is possible with Copaxone IVIG-Intravenous immunoglobulin LDN--low dose naltrexone TM--Transverse Myelitis TN--Trigeminal Neuralgia UTI--Urinary tract infection ADEM--Acute Disseminated Encephalomyelitis CNS--Central nervous system PNS--Peripheral nervous system SNS--Somatic nervous system ADA--Americans with D
I have so many kinds of pain from atypical trigeminal neuralgia to osteoarthritis, to bad disks, to a narrowed spinal canal, dessicated disks, a synovial cyst in my neck, a tarlovs cyst in my sacrum and my psychiatrist has just been abusive as heck and the pain management people all want to do some steroid injections and one has actually lectured me on being thankful for everything I have in life.
Currently on a Long Term Disability for Migraines, Trigeminal Neuropathy, Occipital Neuralgia, LBB Left Bundle Branch Block (heart) and Fibromyalgia, I am exhausted.... Have tried numerous meds now Insurance Company is saying they wont cover as a medical disability due to medical evidence. I have fought this for about a year and stand losing my job of 23 years. Can anyone give me some support and help me to determine where to go from here.
I've been on Copaxone since then (2003) and didn't have any other symptoms, until 2008 when I got Trigeminal Neuralgia -- which may or may not be caused by my MS (the doctors can't agree). The National MS Society suggests exercise and a low fat diet. I lost 130 pounds, changed my lifestyle and am physically fit. MS can be controlled with medication like Copaxone. I don't even worry about it.
Sorry, forgot the link http://74.6.238.254/search/srpcache?ei=UTF-8&p=trigeminal+neuralgia+mold&type=yahoo_avg_hs2-tb-web_us&fr=yhs-avg&u=http://cc.bingj.com/cache.aspx?q=trigeminal+neuralgia+mold&d=4536125583589582&mkt=en-US&setlang=en-US&w=431baff8,3fb61336&icp=1&.
I have a daughter that is 17 and was diagonsed with Trigeminal Neuralgia and Multiple Cranial Neuropathy. She has the trigeminal neuralgia on the left side of her face. She is in so much pain it is unreal. We have been to see a Neurosurgeon in our state however he says that since there is more than one nerve effected that she is not a canidate for surgery and her meds do not even help. Within the last yr her hearing is going downhill real fast.
can you list some? ON - optic neuritis TN - Trigeminal Neuralgia LP - spinal tap (lumbar puncture) EP's Evoked Potentials VEP- visual Evoked Potential SSEP -SomatoSensory Evoked Potential EMG/NCS - Electromyography/Nerve Conduction Studies CRAB drugs - Copaxone, Rebif, Avonex, Betaseron LD - Lyme Disease LDN - Low Dose Naltrexone anyone else? Burbanchick, can you list a few more? Do you also mean, non medical ones like, ?
Additionally, a few years back I started having trigeminal neuralgia that has eventually subsided to infrequent acute bouts. At the time the neurolgist noted some brain ventricle abnormalities - could this also be related? I ask because all of these symptoms do present quality of life issues, most notably the effects of highly disturbed sleep. Would any of this information help a doctor come up with a solution to the symptoms that disrupt my sleep?
it is called Trigeminal Neuralgia Support and it is on Facebook. Good luck to you. Someone will be able to point you in the right direction.
Also, as you have been diagnosed with depression, make certain you check your disability particulars. Some limit long-term disability benefits to two years if it's a mental diagnosis. If the company that offers the policy gets wind of the mental treatment, they may latch onto that diagnosis and try to box you in. Tread carefully. Also, It may prove beneficial to take short-term leave under FEMLA if that is available to you, but you will use up vacation and sick days.
Google. Google says it is a neurologic condition called Trigeminal Neuralgia. Google says it is caused by demyelination of the fifth cranial nerve (CN5.) So now I see the key words: Cranial, Demyelination, and Nerve. I call the Neurology clinic and make an appointment. (OK, I'm a little slow. I did eventually get the hint.) Back to see my Neurologist. We did the question and answer thing, then he proceeded to twist my lower jaw and poke around inside my mouth for a while.
Each doctor I saw gave me a different diagnosis stemming from Trigeminal Neuralgia, brain tumor, MS, and Lupus, and that is because many of the symptoms are the same. I also had Cervical Stenosis which was treated with surgery in March because it was causing me more pain and discomfort and is related to some of the symptoms of the Chiari. The Cervical Stenosis was not diagnosed until I was being seen for the Chiari to discuss possible surgery.
Fibromyalgia, 4 brain lesions, fatigue, trigeminal neuralgia (left side facial,head,,jaw, neck,arm pain), dizziness, off balance, incontinence at times, leg weakness, short term memory loss, and confusion...I have had no definite diagnosis..the last neurologist told me to go home and live my life...he said I have no idea why you have lesions or the symptons you do...what a jerk...this has been going on for years...I seem to be in and out of remission, many years ago ( approx. 25)..
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