Trigeminal neuralgia brain tumor

Common Questions and Answers about Trigeminal neuralgia brain tumor

trigeminal-neuralgia

Dear Friend, Trigeminal Neuralgia is a really painful condition.However the lesion in your white matter may not linked with the same.If , after numerous MRI's nothing conclusive has been found about your brain's white matter lesions,then it's better to pause the things. However the alarming thing is the sporadic weakness in your legs.I would suggest you to get a MRI screening of the full back.Maybe it will reveal more findings rather than multiple brain MRI's. Let me know after your MRI is done.
Hi- I posted in here a while back about a removal of a brain tumor (pilocytic astrocytoma) in the mentencephalon area, September 2004. Before the surgery, I was unable to go in the car or watch tv, my left eye hurt, and I would get sick nauseous, dizzy. After the surgery, I woke up and I had no feeling on the left side of my face.Directly after the surgery, I was kinda looking past everyone, gazing, it was hard to move my eye.
I had a brain tumor removed (pilocytic astrocytoma, temporal bone area) about 2 years ago now. Ever since the surgery, the left side of my face has been numb, from my temple to the edge of my jaw line. I had pains in my face during the two years and people assured me that it was nerve regeneration (is that possible?) so I didn't think much of it.
These effects are believed to be caused by dental procedures, infection, demyelinating diseases, or compression of the trigeminal nerve (by an impinging vein or artery, a tumor, or arterio-veinous malformation). An interesting aspect is that this form affects both men and women equally and can occur at any age, unlike typical trigeminal neuralgia, which is seen most commonly in women. Though TN and ATN most often present in the fifth decade, cases have been documented as early as infancy.
Would someone who has Trigeminal Neuralgia please help me out with the progression of this condition. For about a week now - I have numbness above my left eye that seems to have gotten worse everyday - first my eyebrow, then my forehead and now my skull. I have a low grade headache at times and when I lift my eyebrow, pain shoots up my forehead and skull, although not intense pain. I went to see my PCP and he thinks it is Trigeminal Neuralgia and wants to do an MRI.
Although there is a correlation between trigeminal neuralgia and MS especially in young women, that doesn't automatically mean that if you have TN, then you'll have MS. Having said that, your many symptoms do warrant looking into by a neurologist. If they are able to find something objective on the exam or have a high suspicion for MS, then the next step would be an MRI of the brain.
I was just diagnosed with trigeminal neuralgia after several painful days of unbearable facial pain. Although I had all the standard symptoms of trigeminal neuralgia my pain seemed to last much longer than the less than 2 minute epidoes as described in medical text. The night I went to the ER it had been going on for over an hour. I also have NF1 but have never had a MRI or CAT scan. After going to the ER I was referred to neurologist.
I am a 34yr old female who recently developed left sided trigeminal neuralgia (TN). I was seen by a neurologist who wanted to put me on an antiepileptic drug. I really don't want to take this drug because of the side effects and have been told by multiple people that these drugs make you into a "zombie" and that is not acceptable for my job. I got a MRI and it came back "normal." A few days after my MRI, my TN went away. One and a half months later, it has come back.
Welcome to the Trigeminal Neuralgia Forum! Here you will find a wonderful group of people, who have TN, suspect they may have TN or are being currently being diagnosed. We are all patients, not doctors and are here to support and share experiences and information with each other as we navigate through all the challenges TN presents to both ourselves and those in our lives.
Im sorry for not getting back to all of you I had a bad week. I was referred to a new Dr as mine was retiring and this Dr doesnt believe in Narcotics so I was taken off the vicodin--cold turkey. this Dr would not even give me enough to taper off. The only thing that works for the pain but what was worse was the withdrawls for 3 days. Needless to say I am seeing a new Dr this week.
Hi, I also have sinus problems..allergies to trees/grass. I've been to 5 major hospitals/new york/new jersey. Three doctors told me trigeminal neuralgia...but an office visit to ENT Dr. at Mt.Sinai/Head of Dept,, he told me if I had trigem. I would jump off the roof...and was told same by Neurologist's secretary...You couldn't take the pain. I was sent to a cardiologist who has trigeminal neuralgia and he said he was misdiagnosed for 2yrs. with sinus problems. He also asked me..
We ended up seeing several more doctors, dentists and oral surgeons until finally someone mentioned Trigeminal Neuralgia. We ended up going to a neurologist and he prescribed Tegretol, eventually working her up to 800 mgs/day. This seemed to work for about 3 months and now the pain is back worse than ever. She has excruciating headaches every single day, the right side of her jaw, lip, nostril and roof of her mouth burn.
Sorry to hear about your symptoms. Trigeminal neuralgia can be quite debilitating if the pain is not adequately controlled. Your symptoms do sound like they could be atypical trigeminal neuralgia (TN), but it's possible that there may be nerve damage from your prior sinus surgeries which is a bit different than TN. Be careful with repeat sinus surgery as there is a chance that it may make things worse.
There also could be an underlying reason for them but since you had the CT and the CT was clear, pretty much brain tumor is out. There is trigeminal neuralgia that can focus on a side of the face, but that can come and go too. Did you tell the ENT about the ear?
I saw neuro and i said i am dying ,, he thought nothing bad was wrong as many do they said anxiety until they saw MRI w lesions on my brain both sides.. not tumor , maybe not MS they don;t know.. Afraid of lumbar , etc/.... I can understand your upset. I never felt head pain like this. It comes and goes now and is not as bad ,,but i worry it will return worse. Keep seeing neuro , good to seek second opionon. I didn;t take any pain meds one doc tried to give i am afriad of them..
He says it's POSSIBLE that it could be an aneurysm or small tumor or even trigeminal neuralgia. I am going in a few days to have another MRI (brain, rather than cervical spine) and contrast (veins/vessels). He also started me on a six day pack of steroids, in hopes of it just being inflammation, but I think that was already considered by the other doctor. Still looking for anyones ideas, thoughts or experiences. Thank you!
Thus it is at the very least theoretically that viral infection of the trigeminal nerve might be a rare cause of trigeminal neuralgia. One would also expect symptoms associated with the motor branch of the nerve as well, however, if this were indeed the case. Specifically, you would also have trouble chewing on the side of the pain, and would notice your jaw pushing toward the side of the pain when you opened your mouth or were eating.
Hello Dear, There Could be different causes for the headache like trigeminal neuralgia,tension headache,head injury,sinusitis etc What is your age?Was there any head injury? Is there any memory loss?Are you hypertensive?You should get your blood pressure levels monitored to rule out hypertension.If the pain is periodic with nausea,vomiting ,it might be a migraine headache.You should consult a physician and find out the cause so that the treatment can be decided.
Welcome to the Trigeminal Neuralgia community. I'm not a doctor. So I don't feel qualified to answer your questions. Community leaders are just patients themselves. You may want to post your question in the Neurology community or check out the experts section where you may get an answer from a doctor. From my own experience with TN, MRIs are used to rule out other problems such as Multiple Sclerosis or a brain tumor causing pain.
But since i have my symptoms i feel feel like **** and it's getting worse each week. Am i suffering from a trigeminal or any other kind of neuralgia... I know some neuralgia can be linked to emotional stress but the only that stress me out is my medical condition. I now get panic attack , general anxiety and all sort of unpleasant things... I passed some x-rays of my neck and a CT scan and everything was fine...
That test came back negative, and I'm being treated with Elavil for the Trigeminal Neuralgia. My doc said that it was a old antidepressent that seemed to work better for Trigemial Neuralgia than for depression. My sed rate had been up to 129, which all my docs were worried about. Have any of you had yours checked lately? As I was reading all these posts I was wondering if any of you have been checked out by a Rheumatologist.
im having righsided face pain and head pain,,,,,,,could be sinus but im afraid its a stroke or brain tumor if my brain was ok last year should i worry about something being wrong with it now?
My husband had been wondering if my bipolar symptoms could be caused by a brain tumor as a friend of ours recently discovered a tumor was causing her to behave similar to bipolar. I thought he was being silly until this phantom odor started, and I started reading about what could cause it. I thought maybe it was related to the dental work or the medication mix. But everything I've read online says to see a neurologist, because phantosmia can be caused by tumor or seizures or medication.
Its best to see a doctor as it could be caused by many things. As Rumpled said, migraines And other such conditions like Trigeminal or Occipital Neuralgia... both can be treated with a Medication as can migraines. Its most likely NOT to be a Brain tumor. I had occipital neuralgia...I had the twitching and spasming, my eye would go funny. I couldnt even brush my hair. It felt like millions of sharp needles sticking into my head at a certain spot.
i have some other undiagnosed health condition, currently being evaluated for a neuroendocrine tumor or functioning digestive disorder. could something like these cause neuralgia that is influenced by light? symptoms are as follows: last 2 years: hair loss (grows back in, but doesn't stay in the hair follicle long. about 2" tops before the hair falls out again.) very dry eyes. can't keep teeth clean. EVERYTHING sticks to them. have to use a metal dental tool to get it off.
If I had to guess, I would say you have trigeminal neuralgia or 5th nerve palsy. I found this - *not to say this is what you have, but just that it covers a possibilty* "The pre-operative MRIs of 68 patients without the diagnosis of multiple sclerosis who were operated for typical TN between 1998 and 2003 were retrospectively reviewed Four of these showed hyperintense lesions in the pons on T2 MRI sequences. No patient had prior surgery.
I have got other forums also (Arthritis , Back and Neck Surgery, Back and Spine Surgery, Brain Tumor Forum, Headaches , Hip Surgery, Knee Surgery , Neurology/Neurosurgery, Rheumatoid Arthritis. Trigeminal Neuralgia), where you can post other related queries.
a left frontotemporal craniotomy and left temporal lobectomy (many years of refractory epilepsy initiated by a brain tumor.) I have tried everything under the sun for pain relief, but no luck. Only time has helped somewhat. Motor cortex stimulation (MCS) has been suggested. Does anyone who has symptoms similar to mine (central pain syndrome and atypical facial pain) have this implant? Any success? My pain involves constant pressure, tightness/squeezing, some burning/freezing symptoms.
When I eat anything acidic, the anterior 2/3rds of my tongue burn (only on the left side) I have 2 Trigeminal Neuralgia from(Primary care/facial nerva specialist), Atypical/Secondary Trigeminal Neuralgia diagnosis (primary care Dr), and am curious what trigeminal neuropathy is or if anesthesia dolorosa applies in this situation. I've researched and everything is blending together, overlapping symptoms.
I have got other forums also (Arthritis , Back and Neck Surgery, Back and Spine Surgery, Brain Tumor Forum, Headaches , Hip Surgery, Knee Surgery , Neurology/Neurosurgery, Rheumatoid Arthritis. Trigeminal Neuralgia), where you can post other related queries. Regards..
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