Trigeminal neuralgia association support group

Common Questions and Answers about Trigeminal neuralgia association support group

trigeminal-neuralgia

Avatar n tn From my research, sometimes MRIs don't show the nerve compressions. Was it a "thin-slice" MRI? Was it T-3 magnets? Both of these items help make the MRI more accurate. The drugs are annoying -- there are many different types -- some have less side effects than others. There are also things you can do to counteract the nausea and fatigue.
Avatar n tn By ATN -- do you mean Atypical Trigeminal Neuralgia? If so, there are 5 different types of surgery. There are also medications -- mostly anti-seizure medications normally used for epilepsy -- that are used to control the pain. Problem with the drugs is, they can cause other problems (kidney/liver) and regular blood tests are necessary. A facial pain specialist is the best doctor to seek out or a neurologist.
Avatar n tn I've only had trigeminal neuralgia since Dec 17, 2008 and am 47 years old. I was told I'm "fairly young" for this disease, but I also have multiple sclerosis, so that may have been a contributing factor. Your son is much younger than me and that may be a big factor in what a doctor may advise. My advice is that your son find a doctor who specializes in TN, preferably at a teaching hospital in the nearest big city.
Avatar f tn Dear susanjillian422, What you are describing sounds so very terrifying and painful! Have they checked you for trigeminal neuralgia? That's what that sounds like to me (Im a nurse by the way). I hope you can find relief soon, as losing your vision is one of the worst things that can happen to someone.
Avatar f tn The Facial Pain Association (formerly The Trigeminal Neuralgia Association (TNA)) is a 501(c)(3) non-profit voluntary health organization, serving patients worldwide who suffer from neuropathic face pain, including TN, their families, and the physicians, dentists and healthcare providers who treat them.TNA receives no Federal or State monies. Our primary sources of funding are contributions, membership fees and revenue from the sale of our books." I find it very helpful.
Avatar n tn I know someone who was recently diagnosed with TN and also has a lot of pain. It is a difficult condition. There is a forum on medhelp for Trigeminal Neuralgia where you can find support and hear others' stories. Just click on Forums in the blue menu bar up top, and scroll down to the Ts. I hope she finds relief soon!
738075 tn?1330575844 I woke up with Trigeminal Neuralgia last Thursday morning. I knew that was what it was, because I had it once seven years ago. This time it's SO much worse! I told myself I'd "tough it out" for the weekend, even though I did put in a call to my neurologist. By Sunday, it was so bad, I was in tears! I told my DH "just take me out back and shoot me like an old horse!" I was kidding, but kinda serious, too!
404715 tn?1233829631 Not having any doctors here to help me I went out of town to an emergency where they then put me on tegretol and told me I most likley have trigeminal neuralgia and set up an appointment with a neurologist.I was on tegretol for two weeks and waiting to go to my neurologist appointment but the pain was still unbearable so I went to the emergency in my city where they changed my meds and put me on neurotin which took a week to work and most of the pain is gone.
Avatar m tn The Facial Pain Association (formerly known as the Trigeminal Neuralgia Association) has a page on their website where you can look up health care providers by state. http://www.fpa-support.org/providers/index.html You can also call TNA directly at 1-800-923-3608 or 352-331-7009. Also, if you look at their Medical Board of Directors -- it lists various doctors in different areas of the country.
Avatar n tn Has anyone seen a relationship between trigeminal neuralgia and chronic migraines?
Avatar f tn I am a 51 year old woman suffering from vagal glossopharyngeaal neuralgia (its much like Trigeminal Neuralgia but much less common. The pain comes from irritation of the 9th and 10th cranial nerves) My pain has become nearly constant and spikes whenever I am talking, eating, riding in a car. Neurotin, Tegratal, and Lyrica do not help. I have seen four neurosurgeons. The concensus seems to be that I need skull base surgery to cut the 9th nerve and a couple strands of the 10th.
Avatar f tn Presently taking gaba pentin for trigeminal neuralgia. As many of us struggling with issues, I have been doing a lot of research online. One thing I discovered was a 2013 study on people with Hashimoto's who also have trigeminal neuralgia. A woman on another site stated that after switching from synthroid to the natural form of thyroid meds, her numbness and pain has ended. I wanted to keep this short, so it's just the basics.
624326 tn?1223829190 There is a fabulous site of the Facial Pain Association that deals with the various types of facial pain and is dedicated to the treatment of them. For MS (my forum) this is Trigeminal Neuralgia and Atypical Trigeminal Neuralgia. fpa-support.org I hope this also has good info for you.
485259 tn?1519047026 All the information is endorsed by the Trigeminal Neuralgia Association. This was also recommended to me by my neurosurgeon at Wake Forest Baptist Hospital as well as a very knowledgeable fellow TN sufferer. www.endthepain.org or now know as www.fpa-support.org (Facial Pain Association) Hope you learn something!
Avatar n tn I have had symptons from trigeminal neuralgia for the past 5 years. Last April ina a 2 week period, every day the pain escalated. I lost 9 pounds. I am on carbomazapan, which stopped the lighteninglike pains from shooting down my face, but when I touch near my right eyebrow or put moisturizer and or makeup on and even brush my hair it is still painful. I am constantly pressing on my nose to try to relieve the pain.
Avatar f tn Did you ever get a reply? Sounds like Trigeminal Neuralgia Type 1 or Atypical. There is help for this! Same needs used for seizures help condition and pain attacks. Tegretol is one but many more. Thank you Neurologist treats TN. Studies happening now.
Avatar f tn I believe I have some trigeminal neuralgia also. At least my chiro says I do and with as bad as my TMJ is I wouldn't doubt it. I also have a really bad neck so I wonder how many symptoms are from those two alone... It's hard to be in limboland isn't it? I don't even know what kind of Dr. to see next.
378497 tn?1232143585 A related discussion, <a href="/posts/Trigeminal-Neuralgia/vague-symtpoms-related-to-trigeminal-neualgia/show/2710425">vague symtpoms related to trigeminal neualgia</a> was started.
Avatar m tn Traumatic trigeminal neuropathy is generally not associated with trigeminal neuralgia. However, both entities may be responsive to pharmacologic intervention. Seeing a neurologist or orofacial pain specialist misadvised.
Avatar m tn I have been to see so many specialists over the years and the closest i hav gotten to a diagnosis is possible atypical neuralgia. Now I have noticed a small pea sized lump on my jaw just in front of my earlobe. It is hard and semimoveable when i do move it it makes my eye twitch or sends a shock to my ear. is it possible that is what is causing my pain as I have this lump on both sides of my face. Thanks.
Avatar f tn Does anyone out there have neuralgia pain along with their TMJ or TMD pain??? I've been tested for trigeminal neuralgia several times and they are telling me I don't have it, or facial neuralgia, yet it fits the description according to the pain I am having. My pain is extreme, and I am taking various meds that are making me sick... Wondering if anyone else is in this position.. seekandfind46..
567677 tn?1246767776 Hi neuralgia--yes, the connections and overlap between fibromyalgia and autoimmune disorders, the connections with stress, etc. are interesting (and confusing). Too much for me to figure out. :) I wouldn't say I have trigeminal neuralgia as it typically occurs, because I have had very little in the way of pain.
467070 tn?1224625377 As Sanjay said, prior dental procedures are often a cause of trigeminal neuralgia. The exact mechanisms for TN are unknown. There are treatments for your pain and I suggest that you see your doctor or neurologist.