Trigeminal neuralgia association of canada
Common Questions and Answers about Trigeminal neuralgia association of canada
trigeminal-neuralgia
This link goes through a lot of the available procedures.
http://www.umanitoba.ca/centres/cranial_nerves/trigeminal_neuralgia/manuscript/index.html
A good neurosurgeon or facial pain specialist should be able to give you information about all the procedures available and what would be recommended in your sister's case.
Another good site is http://www.fpa-support.org/ -- the Trigeminal Neuralgia Association.
I've only had trigeminal neuralgia since Dec 17, 2008 and am 47 years old. I was told I'm "fairly young" for this disease, but I also have multiple sclerosis, so that may have been a contributing factor. Your son is much younger than me and that may be a big factor in what a doctor may advise.
My advice is that your son find a doctor who specializes in TN, preferably at a teaching hospital in the nearest big city.
Hi, This may be Trigeminal neuralgia as you have typical one sided facial pain extending to temple and eye( ophthalmic branch of trigeminal nerve may be involved) and sore gums of the teeth of same side (maxillary branch of 5th nerve). Trigeminal neuralgia may have a triggering factor like recent history of tooth extraction, touch, cold breeze or hot sensation etc. which you need to evaluate and avoid.
I am a 51 year old woman suffering from vagal glossopharyngeaal neuralgia (its much like Trigeminal Neuralgia but much less common. The pain comes from irritation of the 9th and 10th cranial nerves) My pain has become nearly constant and spikes whenever I am talking, eating, riding in a car. Neurotin, Tegratal, and Lyrica do not help. I have seen four neurosurgeons. The concensus seems to be that I need skull base surgery to cut the 9th nerve and a couple strands of the 10th.
The Facial Pain Association (formerly known as the Trigeminal Neuralgia Association) has a page on their website where you can look up health care providers by state. http://www.fpa-support.org/providers/index.html
You can also call TNA directly at 1-800-923-3608 or 352-331-7009.
Also, if you look at their Medical Board of Directors -- it lists various doctors in different areas of the country.
My mom has been diagnosed with atypical Trigeminal neuralgia after 3.5 years! of suffering & given medications for conditions that she did not have! To watch her suffer is unbearable. She is 75 & does not tolerate the medication & too old for surgery as she is not in good general health.
Does anyone of any neurologists who inject BOTOX? I heard it provides some kind of temporary respite from the pain... Or, Acupunture practioners who specialise in facial pain?
Thanks!
The Facial Pain Association (formerly The Trigeminal Neuralgia Association (TNA)) is a 501(c)(3) non-profit voluntary health organization, serving patients worldwide who suffer from neuropathic face pain, including TN, their families, and the physicians, dentists and healthcare providers who treat them.TNA receives no Federal or State monies. Our primary sources of funding are contributions, membership fees and revenue from the sale of our books."
I find it very helpful.
I have it on both sides of my face but never at the same time. It is constant throbbing and ripping feeling in my jaw, aching teeth, and burning throat. I have been to see so many specialists over the years and the closest i hav gotten to a diagnosis is possible atypical neuralgia. Now I have noticed a small pea sized lump on my jaw just in front of my earlobe. It is hard and semimoveable when i do move it it makes my eye twitch or sends a shock to my ear.
Traumatic trigeminal neuropathy is generally not associated with trigeminal neuralgia. However, both entities may be responsive to pharmacologic intervention. Seeing a neurologist or orofacial pain specialist misadvised.
Does anyone out there have neuralgia pain along with their TMJ or TMD pain??? I've been tested for trigeminal neuralgia several times and they are telling me I don't have it, or facial neuralgia, yet it fits the description according to the pain I am having. My pain is extreme, and I am taking various meds that are making me sick... Wondering if anyone else is in this position..
seekandfind46..
From my research, sometimes MRIs don't show the nerve compressions. Was it a "thin-slice" MRI? Was it T-3 magnets? Both of these items help make the MRI more accurate.
The drugs are annoying -- there are many different types -- some have less side effects than others. There are also things you can do to counteract the nausea and fatigue.
Did you ever get a reply? Sounds like Trigeminal Neuralgia Type 1 or Atypical. There is help for this! Same needs used for seizures help condition and pain attacks. Tegretol is one but many more. Thank you
Neurologist treats TN. Studies happening now.
This may be Trigeminal neuralgia as you have typical one sided facial pain extending to temple and eye( ophthalmic branch of trigeminal nerve may be involved) and sore gums of the teeth of same side (maxillary branch of 5th nerve). Trigeminal neuralgia may have a triggering factor like recent history of tooth extraction, touch, cold breeze or hot sensation etc. which you need to evaluate and avoid.
I am just wondering how long you have suffered from Trigeminal Neuralgia before the MVD Operation became an option. Thank You.
t imagine tattooing eyebrows could cause trigeminal neuralgia but I imagine it could set of peripheral neuralgias. Any surgery or invasive procedure can nick a nerve.
The trigeminal nerve lies across your face, and you would generally have pain in other areas than your nose. The pain also doesn't present as you described here. Does your nose hurt when you sleep?
Hint. When you see the neuro, don't use the term trigeminal neuralgia.
Kelly, while this could be a flare in dental problems it could also be a brief episode of trigeminal neuralgia. From what I know you would rather have a root canal than TN, which is so painful that it has been nicknamed "the suicide pain."
I'm glad you're feeling better- I hope it continues.
This may be Trigeminal neuralgia as you have typical one sided facial pain extending to temple and eye( ophthalmic branch of trigeminal nerve may be involved) and sore gums of the teeth of same side (maxillary branch of 5th nerve). Trigeminal neuralgia may have a triggering factor like recent history of tooth extraction, touch, cold breeze or hot sensation etc. which you need to evaluate and avoid.
The nerve that goes under the tongue is called the lingual frenulum nerve and could be it has neuralgia, but it is also part of a BRANCH of nerves that serve the ear, eye, nose, scalp, and mouth, and if that collection is bothering you, which since your eye and nose are involved, that would be called trigeminal neuralgia, I've put a website below. Other more remote possibilities are diabetic neuropathy, anemia, and referred pain from the heart.
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