Topamax for pseudotumor cerebri
Common Questions and Answers about Topamax for pseudotumor cerebri
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then wrote me a script for Topamax. I had an adverse reaction to the Topamax, so i made another appt with the neurologist. he spent even less time in the room with me this time, did NO exam and just wrote me another script. Non of the meds have helped my headaches, and i keep looking up symptoms of pseudotumor cerebri, and i have MOST of the symptoms. some of the things i wouldnt have thought were related are listed as symptoms. i have daily headaches and migrains like 3 times a week.
I went to my regular eye doctor who sent me to a retina specialist. The retina specialist thought that I had pseudotumor cerebri and sent me to the ER. I had a CT scan of my brain, which was normal. I was told to follow up with a neurologist. I then went to a neurologist who ordered a lumbar puncture to check the opening pressure of my spinal fluid to rule out pseudotumor. They are also testing my spinal fluid for MS.
I was diagnosed with Pseudotumor Cerebri May 31, 2009. I first had 3 spinal taps and it went undercontrol and I had some vision loss in my left eye and I've learned to deal with it. My doctor that was treating me tapered me back off my dose of Diamox in March of 2010. This september I got the same stabbing headache again and it was back.
my daughter has pseudotumor cerebri. She is on 100 mg of topamax and has been since August of this year. About a month ago she started have severe muscle spasms in her calves, thighs, arms and face. Not all at the same time, but bout 5-6 times a day sporadically. They alst seconds to minutes.
She has been checked for low potasium, kidney failure, all blood work. Everything looks fine. These are very painfful for her and wondering what they could be.
I have been recently diagnosed with Pseudotumor Cerebri. I was diagnosed after my MRI came back normal, and my Lumbar puncture showed an opening pressure of 30. I was informed that I have swelling of my right optic nerve and do get headaches occasionally. I am 5-7" and weigh between 125 to 130 pounds. My opthalmologist prescribed Diamox ER 500mg twice daily for treatment.
For years I have been having headaches as well as sharp pain in my right ear, tender to touch as well as stabing pain in my head disbursing outward. I have had spot in my vision as well as floaters and they have not been able to get my vision 20/20 in years. The best was 20/40. I also have pain running down my neck and shoulder and into my jaw. Most of the time it feels like its inflammed. It even hurts to turn my head sometime.
Here came Oct of 2008 and my neuro finally had diagnosed me with PSEUDOTUMOR CEREBRI. After all the pain I am scheduled for LP shunt on Feb 2009. Everything went well with an on and off headaches but I learned to control until Nov 2009 when the shunt got dislocated. I got the shunt revised. When the revision was done my headaches continued and another surgery was made to unclog the shunt on Feb 2010.
2 years ago I was dx with pseudotumor cerebri after being admitted to the hospital for 3 days for severe headaches. I was feeling like crap my head was hurting like I was being stabbed with a huge knife the pain was so bad I was vomiting.they did the whole workup mri ct scans lumbar puncture blood work... My radiology reports and blood work were all clean according to my neurologist my lp came back with 2 oligoclonal bands otherwise normal slightly elevated pressure.
hi i have pseudotumor cerebri and i was wondering if it could cause sleep problems i have a hard time sleeping i wake up most of the night with fast heartbeat and sweating im awake most of the night not even tried and when i finely get to sleep i wake up with my heart pounding and sometimes hard breathing
Daughter-in-law recently diagnosed with pseudotumor cerebri. Had lumbar punction again today and the pressure was at 44-48. She was exposed to concentrated odor of moth balls several weeks ago and became ill and has continued to have problems and now has turned into this result. Could the moth ball exposure be the cause of the pseudotumor cerebri?
All o0f the symtoms you listed, wrere very typical with pseudotumor. Thsre is a grteat support group on yahoo, for people with pseudotumor cerebri. They controled my symptomes with diamox, a med, but had to eventually put a shunt in to control the high pressure. I think my shunt or part of it, is failing, but having problems with dr's taking me seriously. I am going back to the dr. tomorow, if I can even walk, I am in such horrific pain. Hope this helps. Please let me know how you are.
Some medications that have been used for headaches associated with pseudotumor cerebri include amitriptyline.
Thank you for using the forum, I hope you find this information useful, good luck.
I have pseudotumor cerebri (2002) and chiari malformation 1 (Dec 2011). On March 29, 2012 I had my 1st seizur in my sleep I couldn't wake up I could hear everything. I have been tested and the drs call them non epaliptic-spelled wrong sorry. I don't just have them when I'm sleep, I can be walking, or in the middle of a convo, in the tub, washing and folding clothes. They just come from nowhere.
I recently had an lp shunt put in because of pseudotumor cerebri. I woke up from the surgery with my head feeling the best it had in six years. It has only been a few weeks since the shunt was placed but I am starting to feel a lot of tightness in my head. Is this normal? I also feel sometimes like my tail bone is bruised. Weird I know, so I was wondering if anyone else feels this way. This shunt is alot more uncomfortable then I thought it would be.
I have pcos and I just find out the I have Pseudotumor cerebri the way I find out about the pcos becuase because I when to my doctor and I have a lot of hair in my face and body where only a man should have and don't get my period like 10 years ago and about the Pseudotumor cerebri I when to the eyes doctor to get my glasses and the doctore send me to the hospital at first they tough that I had meningitis I got a spinal tap but after that I can't walk fast get mad or even pick up an
I have had issues over the last 15 years and just saw a video on pseudotumor cerebri or Intracranial Pressure and for the first time have thought maybe thats whats causing my head pressure. If anyone can knows anything about this i'd love some feedback on if it sounds like i just have anxiety or something else. Well below is the timeline of my story
-at 17 i started twitching my head and doctors said i had a tic disorder or tourettes.
To our knowledge, there have been no reports of pseudotumor cerebri in adults with Lyme disease. We report the development of pseudotumor cerebri, which was treated with serial lumbar punctures for the control of symptoms, in a 37-year-old male after he had completed doxycycline therapy for confirmed Lyme disease.
My experience is that some people can recover from pseudotumor cerebri, but the majority needs treatment. It requires the installation of a shunt and some times, also optic nerve fenestration, to prevent vision deterioration.
Have you seen an ophthalmologist?
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