Topamax for essential tremor

Common Questions and Answers about Topamax for essential tremor

topamax

My question is what has been the experience to change to Topamax? I'm getting ready for my annual check up and would like to discuss this with my PCP. Thank You.
I have had undiagnosed essential tremor for about twenty years unilaterally in my hand, and six years bilaterally in both hands. I have also had diagnosed TN. Recently I had a major change in symptoms, with tremor (postoral, intention, and resting) in chin, neck arms, and foot, as well as jerky movements, such as trying to move a computer mouse and my hand jerks in that direction by about six inches too far. Or, my leg will jump for no reason.
How long does it take for topamax to take affect for essential benign tremor? This discussion is related to <a href='/posts/show/459355'>How long before meds take effect!</a>.
When essential tremor (ET) significantly interferes with daily activities, long-term drug treatment is needed. Drugs most commonly used to treat essential tremor include beta-blockers (propranolol) and an epilepsy drug called Mysoline (primidone). Topamax (topiramate), another drug used to treat epilepsy and migraine help some people.
The beta blockers I take (I'm prescribed atenolol [Tenormin] and propranolol [Inderal] for my tremor, and coincidentally, I am on clonazepam for anxiety issues (though if it I didn't have essential tremor, I wouldn't take it daily ― I don't need it so often for my anxiety anymore) and I'm also on topiramate/Topamax which is an anti-convulsant that I've been told by my doctor shows that it can help tremor from ET.
have been told multiple answers-anxiety, essential tremor, somatoform. I feel both my wrists w/slight tremor when they’re under my pillow when going to sleep or when arms folded. Top Neuro/MDS said this isn’t disease, don’t have PD/MS, specific positions like under my pillow can be ET-not rest tremor-says most everything to go away-states symptoms are from herniated discs C5/C6, C6/C7-bulging,stenosis-time should heal.Am I being told this so we can wait to actual PD symptoms present?
I've had multiple tests and have seen two neurologists. One diagnosed MS, the other essential tremor. There is a brain lesion on MRI, but it is not characteristic (looking) of MS, according to the report. All other symptoms have been mild and my main problem is the shaking and uncomfortable, swollen, feeling head. History: In addition, I've had a history of seizure since 1995 (a total of 3). I also sustained a mild concussion in an auto accident as a teen 30 years ago.
) in my calves, along with benign familial tremor. I tried propanolal for several years, which decreased the severity of both problems. Unfortunately, the respitory side-effects from the medicine forced me to discontinue it. Any suggestions on different medications that I might try? Also any thoughts on someone somewhere specializing in myokymia? Thank you.
I've been on Topamax for about a year now at 75mg x 2 day i can put up with most of the side effects but the last few weeks i've been getting hair loss. i did not know this was one of the side effects of Topamax and the only way i found out was by going on the web , i think we should get told more about this side effect of topamax it's not nice seeing your hair washing away every time you want to wash your hair.
I have been on Topamax for 2.5 years now for Seasonal Affective Disorder(SAD). The current dose is 400mg for more than half that time. Many years ago I was on Lithium and gained 200lbs during the 6 year period that I was taking it. But after I went off the drug and went to a natural regimen, found that my body would not allow me to lose any substantial amount of weight without gaining it back. I carried this weight for 15 years.
So, I thought it was from my Topamax. My Dr took me off of my Topamax for a while, and it wasn't my Topamax. And the burning sensation is unbelievable. And the crawling sensation that goes through my head like there are bugs running through my scalp. People keep telling me to get tested for MS, but if MRI's can come back normal even if you do have MS why bother? Then someone told me that some migraines can mimic TIA or mini strokes.
I have been put on Topomax, Proponolal, Primidone and Lamactil and reacted very badly to all. I am working with one very good neurologist who seams to think I have an essential tremor but is not sure. All tests MRI, CT and EEG come back normal. My muscles hurt so much on my left side at times that my hand curls up and my left foot turns in. Me regular doctor thought I had dystonia but the Neurologist said no. I only started having these effects after I took the lexapro.
There are several medications used to treat essential tremor, including propranolol, topamax (which it sounds like you are on for headache so that might be useful for the tremor too at the right dose), mysoline, and others.
Causes of tremor can be stress, anger, fearcaffeine and cigarette smoking. Essential tremor is the most common tremor and is rarely seen at rest and becomes apparent when trying to do something like reaching for something. This type runs in families and has no underlying cause. other causes of tremors are drugs, brain, nerve or movement disorder, alcoholism, low blood sugar, multiple sclerosis overactive thyroid can cause a postural tremor.
Regarding treatment options for essential tremor, as you may know the dose of inderal you are on is not that high and it could be increased further if your symptoms are not well controlled. Also, there are several medications that can be used in addition to inderal, many of which are anticonvulsants such as topamax. Discussion of these medication options with your neurologist is recommended; sometimes patients with essential tremor require more than one medication for tremor control.
org/posts/Brain--Body-Fitness/Mother-of-3-trying-to-get-back-into-shape/show/1817742 Head shaking and essential tremor in my head Hello, I was diagnosed with an essential tremor in my head. The shaking starts from the middle of my neck up, and my head shakes in a up and down motion. I was prescribed preprapanol and topomax (topamax). Those medications did not work for me. I am desperate for a relief of this. It has effected my life. I am only 18 !!
Todays went to see my doc and he has ordered EEG for me. Funny thing he said that am ALREADY taking TOpamax for my migraines which are not working. The dosage were HIKED just before this happend. So he said this might have been a side effect. My hands shake A LOT. like visibly. Seizure took place 8 days ago and my migraines are terribly regular and bad. Still exhausted. Could it be a part of being epileptic/ ?? My neorology is not taking me as seriously as things are taking place......
The tremor you describe is similar to what is called essential tremor - this is a benign tremor that is usually runs in families (ask if any family members had it) It can get worse over a long period of time, and is usually controllable with medications. It may get worse during periods of stress.
I saw my neurologist for the second time, this past week. He was surprisingly pleasant and amiable, unlike the first time around. Unfortunately, this didn't mean he knew what was going on with me...but I think he knows it's something neurological that "started the fire", so to speak, because he asked to see me again in 6 weeks, following the second MRI of my head (and pineal cyst).
And effect your GI tract? I started taking topamax in April 100 mg a Day for essential tremor and went off it 3 weeks ago and since then I have lost 15 pounds and my CT scan shows problems prominenent distention of stomach and gastropaeresis with partial gastric outlet obstruction, in addition little contrast was seen in colon.
Hi, I was on Inderal for around 30 years for benign familial essential tremor (Dads side of the family). During the last 10-12 years I started getting ocular migraines (non headache) about 3 or 4 times a year. When I developed autonomic hypotension the Inderal was stopped due to the BP lowering effect. That was 3 months ago. Since then I have developed migraine with aura and , yes, nasty headaches and vomiting with it.
I've been sick for awhile (2yrs) with extreme fatigue, swollen joints, essential tremor favoring my left arm, occasional night sweats, general feeling of malaise, bad headaches, inability to concentrate, brain fog, muscle weakness, dizziness, and ventricular tachycardia, mostly attributed to subclinical hypothyroidism, yet my symptoms haven't gone away despite thyroid hormone treatment and normal TSH levels, so I think something else is going on...I'm just not sure what.
the last I thought was a stroke and got an MRI.) Neuro #2 8 years later said all my neuro issues were essential tremor & migraines together. Then when I got ON he said I had MS, then took the MS dx away when my LP was negative even though I now had 20+ brain lesions. Neuro #3 (my 2nd opinion when I was told I had MS) said I had definite MS & started me on meds.
Neurontin is a safe and effective treatment for pain. There are many patients with painful neruopathy who use Neurontin for many years. Typically the side-effects include sedation, dizziness, and imbalance. Therefore, I do not see a problem with you continuing with Neurontin use, as long as you are tolerating the previously mentioned side effects.
I have talked to the neurosurgeon who did the surgery and he shrugged his shoulders and said I have no idea and sent me back to my neurologist. He gave me a series of injections in both shoulders and the pain stopped for a couple days but then came right back. Then we tried massage therapy, it helps but only for a short period.Then I have to go back to the massage therapist again and again, my insurance will not pay for that.
It seems to help some of my symptoms, but I still wonder if I'm too far along for it to make a big change. It is prescribed for PPMS and has shown some positive results in slowing down the progression of MS. I just take it a day at a time and pray for good things. I try not to let my health consume my every waking moment, but as is human nature, I long for a dx, as much for validation as for peace of mind.
I took the Topamax for almost 3 weeks, the smoke smell stopped and the ache was almost gone. I did not take it for 3 days thinking that I was having side effects and the ache, pressure returned worse than before and the smoke smell returned as well. I returned to the doc and I am now back on Topamax. The symptoms I was having could be related to my back problem. We will see what happens. I hope this helps someone out there.
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