Topamax and ms

Common Questions and Answers about Topamax and ms

topamax

Avatar f tn So recently I went to see a neuro about my constant headaches and while in the ER he told me that I did have MS (since I have brain lesions and spinal fluid was positive.) I have no physical signs of MS except recently I have blurry vision in my left eye alot of the time. I also get headaches if not everyday than every other. So he started me on Topamax for the headaches, it has been miserable with the side effects and I'm not taking anything to help the blurred vision.
Avatar f tn Hi there, I am currently Taking 200mg topamax a day for migraines have been for about 2 months now, stared on 25mg and built up to 200, but have Been on the 200 for 2 months.
359574 tn?1328360424 I'm on Topamax. I hope this isn't something that I have to look forward too.
1276940 tn?1564515084 I am a 41 year old woman that has been experiencing INTENSE dizzy spells for the past 2 weeks. I have never come so close to passing out. My last spell was this past Saturday (11/7/15) I don't get a headache or anything and it seems like the spells last forever!!! I have also been having a swallowing problem. This has surfaced in the past couple months. I get choked very easily. Infact I have had to quit taking one of my daily meds because I just can't swallow the pill anymore.
Avatar f tn The last time I saw the MS neuro he felt that the lesions or spots that he called them were from migraines and my age. I have been on Topamax for the last 8 years (for migraine control). One of my previous neuros tried to stop the Topamax due to my complaints of cog. trouble, but I ended up with daily headaches. Even on the topamax I will have a ophthalmic migraine about once every 3 weeks, but without any resulting headache. I haven't had a migraine headache in several years.
Avatar n tn I have a cousin who was diagnosed with MS at age 22, so it is very worrisome. I have taken Topamax for migraines before it and it really helped.
Avatar f tn I have gone on a variety of medications. Mine turn into migraines and I vomit for up to 18 hours. I have permanent, vertigo and double vision since early childhood, and now have ON, which contributes to them. Mine can be so bad I hope I am having an aneurysm and it will be over once ace and for all. I have been to headache Specialists who could not help. I tried Topamax which has helped others but did not work for me. I take a variety of anti seizure drugs to lessen them.
Avatar f tn I suffer from classic clincial symptoms of MS - numbness and burning in my arms, legs, feet and hands, numbness in the right side of my face, blurry vision in the right eye, dizziness, clonus in the left foot....I struggle to walk, stay exhausted, have trouble sleeping, have throat constriction and feel like I'm choking, but no lesions showed up on my brain MRI.
429700 tn?1308007823 Are my migraines which I have had since childhood almost as long as I have had MS related to MS I do not know? Many MS Specialists still do not link the two. But many MS Specialists dismiss things they can not solve easily. I kinda think in my case when the nerves on the left side of my face which is my MS side get inflamed by anything it sets off the MS ergo a migraine. This is just my opinion. For me it is usually a change in weather, barometric pressure or my sinuses that sets it off.
Avatar f tn He was given Topamax. It made him PSYCHO. He became aggressive, abusive, loud, and very frustrated. After a while we could not distinguish between real symptoms or side effects from medication. NOT a nice drug. Some people say it helped them but my son was affected by all the side effects this drug had. When they weaned him off, I could see the difference within a week. He is still ill but not so psycho.
Avatar m tn Lyrica is still one of the newer ones but works really well. I take Topamax and Lyrica. I take Topamax for headaches and Lyrica for neuropathic pain. My pain is well controlled but they do have their side effects.
Avatar m tn Has anyone experienced massive hair loss while on steroids? Mine has been falling out since last spring fairly steadily. I started on 40mg of prednisone a day in the beginning of January. Then was put on Topamax about five weeks ago. At that point, my hair started falling out three times more than before. I'm talking my hands are covered every time I wash it, plus there is hair all over the bathroom floor, counter top, etc., by the time I'm done in there.
Avatar f tn s nice reading all the stories on this site and I found the MS walk in my area in March that my fam and friends are doing with me.
1252074 tn?1271541709 No I haven't been diagnosed with MS, my primary still thinks this is MS, (but he's known me for 20+ years, too and actually is aware of this deterioration more than anyone else) part of the problem is that we're having a hard time getting my medical records sent up here from FL, where I was put on Dilantin. The hospital's staff down there in Medical Records are super slow about sending them out.
1558393 tn?1299070031 Any way my great family doctor is slowly taking me off the Keppra. I go back in two weeks and he is going to try Topamax. Does anyone take this? If so does it work with your headaches? Do you have any side effects? Also has any of you been approved for disability for your Chiari? I did not want to quit my job if there was no hope.
Avatar f tn I am glad you are at least getting the support of a Celebrate Recovery group, but am sorry you are not able to get "formal therapy" right now. It's really great though that you are taking the initiative to go to that group though. That's a big step in itself that you are doing it for yourself you know? Do you have insurance by chance? I know that's a bit of a personal question but insurance does usually help with therapy and such.
Avatar f tn Imitrex I believe is taken as a last measure if nothing else helps. So try topamax first and even though it took me a long time for my body to over come the side effects it actually helps. And with the support of thus ccommunity I stuck with it because I was frustrated with it all and rready to throw out the medication.
1364259 tn?1298661181 Had a headache now since May, all regular tests have come back normal, been ckecked for lupus MS and a hodge podge of things and still no results ..now they are talking about this athena test ...other sypmtoms are considered separate because they started later except for legs swelling. On Topamax 75 mg 2x day for it and still no results. can't use imitrex...bad reaction to it what does this test do to help find my problem and why does it cost so much!
Avatar f tn My eyes became very dry (had no side effects on topamax the first time) and irritated, I read about glaucoma and was seen by a specialist the next day, he looked and pressure tests Etc and said there was inflammation and dryness, I stopped the topamax and the eye drops got the inflammation down over the next week. However ever since then I've felt the same as I did when this all first started.
800958 tn?1237725315 I have been on Topamax for 4 years for my migraines. The Opthamologist said that I have a muscle weakness problem and need to have an MRI. I went back a week later and she did other tests on my eyes which showed that I see different colors in each eye. She asked me about seeing halos and lights and I told her that I did and that it was from the lazer surgery (I thought that the lazer had burnt the irisis of my eyes and that was the reason for seeing the lights).
Avatar f tn I am on topamax now and some side effects are hard to deal with. my dr is decreasing my dosage. my side effects are that my arms and legs are numb and tingling like pins and needles and I am very tired I have diahreea alot. you have to stay in contact with your doc while on the medication.
Avatar n tn Referred to neurologist who prescribed Topamax and 24hr EEG. Three hours after taking first dose of Topamax 25mg I was rushed to hospital after waking from sound sleep with nausea, severe muscle spasms, and loss of speech. Muscle spasm and exaggerated twitching stopped after about an hour. Told to not take Rx anymore until after EEG. Spasms and speech loss continued on and off daily with brain fog and extreme fatigue being constant for 3 weeks.
5857909 tn?1375628784 I have reduced quite all my medication and I feel like slowly back to being the person i used to be I am currently taking only 50mg of Topamax and I can say that the pain disappeared almost completely and the goal is to be free of this medicine at year end. Also I have feelings of anger, because I think I've been taking Topamax for over 10 years without any sense. I think I have found what was the source of all my chronic pain and Topamax was not helping me at all.
284078 tn?1282616698 Fortunately, God was on her side because she was smart enough to stop the Topamax and go to the emergency room before she developed an attack of acute narrow angle glaucoma (symptoms severe eye pain, headache, nausea, vomiting, almost complete vision loss.) Her ocular pressure was actually only slightly elevated and with cessation of the Topamax, her pressure returned to normal in a day, while it took over a week for her vison to return to normal.
975514 tn?1324997938 I've been taking Topamax for about 2.5 months and since then noticed some issues with my left eye. Within a month of being on Topamax my left eye seemed very dry, so I thought I was suffering from allergies (which I do have). I purchased some over the counter allergy eye drops, which caused my left eye to dilate, which scared me. Being cautious, I went to see a optician for a basic check up because I know about the possible Glaucoma complication with Topamax as well.
Avatar f tn Has anyone ever responded to the original questions posted in 2010? I am curious. I have been taking 300 mg Wellbutrin and 200 mg Topamax since May 2016 and have lost approx 30lbs. I wasn't aware of the side affects and my doctor said as long as I feel fine there is no reason to run tests. I just want to make sure others are having this same significant weight loss.
Avatar f tn Oh and vistaril too.
Avatar f tn My eyes became very dry (had no side effects on topamax the first time) and irritated, I read about glaucoma and was seen by a specialist the next day, he looked and pressure tests Etc and said there was inflammation and dryness, I stopped the topamax and the eye drops got the inflammation down over the next week. However ever since then I've felt the same as I did when this all first started.