i put my trust in doctors,as people should,but i was fobbed off,because
pulmonary hypertension in children is so rare,it was overlooked..my daughter also suffered with her bowels..hirshbrungs disease..and she suffered..but it wasnt found till her post mortem. i could go on forever about what should of and could of been done,it still haunts me now,nobody was held accountable,and if you knew my story then somebody should of.. but i lost her in 1996,and my life has never been the same since..