Seizure xyrem
Common Questions and Answers about Seizure xyrem
seizure
This is not a question, but a comment. My husband has been on Xyrem since the fall of 2005. He now has a considerable amount of central sleep apnea and is being removed from Xyrem to prove that the apnea is indeed coming from the drug. He was diagnosed with narcolepsy, but I have never been real convinced of that because he has always been sleep deprived and depressed. The depression he would not admit until just the last year, and with him it is an "off-limits" subject.
I've had fibromyalgia for 5 years now and the insomnia part is out of control. Saw a new sleep doc, and I don't know how I can do what he wants me to do! I did a sleep study - I had, as they put it, extremely light apnea only when I had nightmares. But since my doc wants to try me on xyrem, he said I have to use a bipap - and just found out yesterday that he needs what he calls "full compliance" - which in his words is having it on 7 hours straight, every night, no matter what.
BUT, I have had SO many medical problems during the last couple years with these stimulants, that I am literally TERRIFIED to take this Xyrem! A lady called me from Xyrem letting me know the process before shipping this medicine, and I mentioned to her that I have an EXTENSIVE family background of heart related problems. I have not had them myself but it follows both sides of my family (both my grandparents, both my parents, and my brother who is only 28 (and a year and a half older than me)).
ve been incredibly stupid and smoked a joint earlier, without putting any thought to the effect it would have on my xyrem intake prescribed for narcolepsy). I had quite a bad reaction (couldn't walk at one point), so it won't be doing it again. I'm now concerned about how long I'll have to wait until I can use xyrem again. I'm guessing the within 24 hours s a massive no no, but how about the next night (48 hours)?
but now when im off the xyrem i have insomnia. which i dont understand if i am narcoleptic? Please give me some advise on what i need to do concerning this med and what i can do if i stop it where my sleep is concerned. When i'm on xyrenm i can stay awake all day, but when i'm off i can not sleep at night and sleep all day and totally exhausted. PLEASE HELP!
About a year and a half ago I did a sleep study and was diagnosed with narcolepsy. First, they advised me to try several different stimulants, but each one made me go insane. I shook constantly, I went from smoking a little less than a pack a day to 2 full packs a day, I talked constantly, I was panicky, etc. Then, my doctor suggested Xyrem. Here's where things got bad. I took it as prescribed, slowly building up my dosage, until I got addicted to the feeling it gave me before I fell asleep.
I'm here! Xyrem--ghb same thing. Yes tried to get clean I just want more and more and more and more how do i stop!!!!!!!!!!!!!!!!!!!!!!
maybe i'll have to try those. i take xyrem. It throws me for one heck of a loop i feel so stoned when i'm on it its the same as GHB. But i still cant sleep. I have such a hard time but then i'm tired all day. i need something that will make me sleep. I think i need some heavy meds that will wORK!!!!
My only suggestion is please don't mess with Xyrem they say its a mircile drug I am telling u its the devil make sure you really research it i promise your symptoms will become worse. Even the long term effect are horrible please watch what they want to put you one ask for a week to research what ever they decide to put you on.
ve been diagnosed with narcolpsy. same symptomd as you now i take xyrem and i still cant sleep at night this *****.
However, no one has been able to answer the question about improving the stages I need to. I take Xyrem at night now so that I have two four hours blocks of solid sleep. The first 2 weeks I took it, I felt better than I had in over 10 years. (I was on Xyrem during the last two sleep studies.) After that, I returned to the unrefreshed sleep.
I don't drink alcohol and I make sure that I don't eat at least 2 hours before I go to bed.
I do appreciate your respose.
The doctor at the sleep disorders center tried me on Xyrem. My insurance company paid for the Xyrem, so I tried it. For about two months I awoke refreshed and felt fantastic; then the Xyrem became less and less effective, until it did not work at all. During a productive night's sleep, growth hormone is being made.
I take Xyrem for narcolepsy - my sleep issues are controlled. The cold feeling can happen anywhere it is less than 75 degrees. So it is more a going out thing since our house is 75 degrees and I am comfortable here
Leaving the house and going places is the issue, in the summer everyone has their Air Conditioning cranking, and in winter no one has their thermostat set to 75.
i had always heaard that xyrem was the best thing for sleep for fibro, but it is really hard to get---then i read that if you can't get xyrem, baclofen is the next best thing.
i still don't sleep fantastic, i wake up way too early, but i don't wake up feeling like i have been run over by a truck anymore, either, except on a rare occasion.
i also take vyvanse, which is an add medication. it has done wonders for me as far as my energy goes.
When we seen her pulmonologist they put her on a medicine called xyrem and I can honestly say that has been a blessing. Her cataplexy is controlled as well as her sleep she still has to take provigil during the day for a stimulant. But the best thing about the drug is u take it at night in 2 doses then by morning the medicine is out of your system so no unwanted side effects. You might want to check with your doctor about it and you can go to their website for more info it is www.xyrem.com...
my parents had been to the vet and when I got home I sat with him while he suffered 4 more seizures I decided that I could not see him suffer and we went to vet and tio got the jag to sleep as u can imagine has been upsetting. my question is I found out when he took the first seizure When I was home with himhe struggled to do a poo outside and it looked strange.
I don't think people who have a seizure remember the seizure, but he definitely had something. Maybe it's a thyroid problem. He needs to be seen, but an ER is the slowest, most expensive and least efficient way to do it.
It does still fit the description of a seizure. Not all seizures involve paddling, slobbering and loss of bladder control. Those are basically what are considered to be grand mal seizures. Petite mal seizures can be anything from a twitching of the head to a state of catatonia for a brief time, which sounds more or less like what your girl had.
Please let us know what the vet says when you do get to take her in.
Good luck to you!
my 16 yr old son who suffers from autism cerebral palsey ocd servere to profound hearing loss and epilepsy has suffered 3 seizures in 2 weeks, 1 tonic seizure may 2, 1 grand mal may 7 and 1 grand mal may 17. he is now taking 1000mg depakote. his depakote level is 105 (he weighs 98 lbs) since his last seizure on may 17 he now cries for hours before he falls asleep, and wakes during the night crying. i think his meds r affecting him. can u please give me an idea to help him?
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