Rebif and alcohol

Common Questions and Answers about Rebif and alcohol

rebif

REBIF AND ALCOHOL CAN MAKE ONE LETS SAY A CHEAP DATE. THE REBIF INTENSIFIES THE ALCOHOL CONTENT AS IN ONE DRINK CAN = THREE IN A PERSON.ESPECIALLY WHEN AN INJECTION AND ALCOHOL ARE COMBINED IN A 24 HOUR TIME PERIOD. ITS ALWAYS BEST TO NEVER MIX ALCOHOL AND MEDS.FIRST TALK TO YOUR DR. I MUST ADMIT THAT I LIKE THE OCCASIONAL TANGERAY AND GIN.
They were high, so at that point my neuro instructed me to go off all meds and supplements, and no alcohol, stayed on Rebif and they remained high when test was repeated. Went off Rebif, stayed off other meds and alcohol, they returned to normal, and remained so after I started other meds again and consumed alcohol again. This is how we could be certain it was Rebif causing the prolem.
I've been on Rebif since the begining of Aug, and lately I'm having some miner issues (i was going to add to Cali1892's post, but I didn't want to hyjack it).
Hi Frog, i love the stuff. I have taken Avonex, Rebif, Copaxone(sp), and back on Rebif. The side effects are minimal and something tylenol can take care of. The three days a week bit is nice and I think you will like it. As much as something like that can be liked. You may have some extra perspiration at night but turn up the fan a tad. Hope it works for you well...
companies are truly working against doctors orders - I'm sorry to hear this. I'm on Rebif, and I have had some stinging, but not much. Key is to let the alcohol dry and that way you don't get sting from both. Room temps to minimize that sting possibility. The needle is super sharp, and super thin. Goes in like butter. If you let it dry, uou probably won't get the sting while the needle is going in. So, if that thought scares you - you can reduce that chance.
I've been on Rebif, 4 and 1/2 months. I started on Copaxone, but after 6 and 1/2 weeks, we found out that my "side effects", were actually a severe allergy to it, The Rebif auto-ject is easy to use, and has the finest needle. I don't even feel it go in. And that is saying something, because I am 5'2 and weigh 77#s. I take an Advil for Migraines 1/2 hour before I inject. (I didn't get them until I was on it for just over 3 months.
Hey Jess, Excellent choice. I've been on Rebif since 07, and found the flu-like to be super tolerable. I've had the flu, and there is no comparison to me. I was a bit achey, and did get headaches. I pre-medicate with naproxen (500 mgs) and find it to be enough for me. It's true that you adjust after a couple of months of being on it.
I wasn't expecting to hear this, and never thought to ask what "quite elevated" means in terms of actual levels. I emailed the nurse and hope she will respond with this info. In the meantime she said my neuro wants me to repeat the liver test tomorrow; not to wait another 3 weeks as per the normal schedule. So I have that set up and will hope for the best, and in the meantime, stay at 22 mcg.
I've actually never heard of a neurologist suggesting zero alcohol consumption, so this really isn't a game-changer for most of us on a clinical level. And any correlation of alcohol consumption with lower risk of developing MS is a loooooong way from being borne out on a causal level. "The impact of alcohol, which may directly suppress various immune responses, on the risk of developing MS has been investigated in 2 case-control studies and 1 prospective study.
Restarted Rebif and only Rebif, stayed off the other meds, alcohol, etc, and liver enzymes shot up again after only a weeek or two. So I stopped and immediately started Copaxone. This was nearly 5 years ago. I've had no side effects other than the inital site reactions and one minor IPIR episode. On Copaxone my attacks went from 4 in a little over a year to 1 every 2-3 years on average.
I was in this bottom 3% and after two attempts, ruling out any other possible culprits (normal baseline, then no alcohol, supplements or any other medication for the trial run on Rebif), I went off Rebif at the advice of my neuro, who treated this all very seriously, and went on Copaxone June of 2008. My liver enzymes promptly returned to normal, and I am tolerating this med well ; it has no neg effect on the liver.
We have a MS after hours group here that meets once a month and we all have a drink or two, some have more. Negative- alcohol is a depressant Positive- in moderation, alcohol has some stress relieving properties.
It is a very personal choice and the best thing is to listen to your body. I do not think alcohol does me any good although I enjoy a drink now and then but when on meds, the liver has to work hard enough each day processing this without the added complication of alcohol. I am sure that others will give their suggestions.
Sarah - Friggin is right. And, some other choice words. aaaah Least were not alone in our discomfort - misery does love company, lol Have you had much relief from that combo? Lis - I don't know if I contributed to the burning because of itching it or what? It's not burning so much now - just the pinch and itch. In addition to Rebif, I take naproxen or ibuprofen daily, and every couple days a tizanadine. Though only been been on those intermittent the past month. I'm definitely ornery!
I cleanse the area with soap and water or do my shot right after a shower. The only reason that alcohol preps are used in hospitals and doctors offices is because they are FILLED with germs. Depending on where I give my injection, depends on the skin reaction. I get very slight reactions in my lower belly. The back of arms are sensitive as are my leg area, so that's where I seem to have hot welts. The area just below my waist in the butt area, seems to tolerate the shots the best.
Hi, T. Oh,ok, so she's the ORIGINAL Wicked Witch of the West. (wink) I suspect they were trying to kill something (maybe you?) with the 1500 mgs at a time. So, how did the PA treat you? Did you tell the Neuro that she called you a 'drug seeker'? Is anyone left alive in the practice? :) Not sure I understand his thoughts on about it naturally. I'm glad he was nice and refilled the pain meds.
Other meds I take regularly are gabapentin and amitriptyline for neuropathic pain; side effects and symtpoms do not worsen with alcohol. In fact sometimes alcohol helps to alleviate the pain in my left hand; the pain doesn't remit entirely, but the tight, constricting sensation seems to relax a bit, temporarily.
NO - I FEEL GROGGY AND HUNGOVER A LOT - BUT I DIDN'T HAVE ANY ALCOHOL Do you notice that a few sips of alcohol is all you need to feel tipsy? (a bit OT) YES - I JOKE THAT I CAN SMELL IT AND GET HIGH - I'M A CHEAP DATE I GUESS I AM AT THE POINT IN THIS WHOLE PROCESS OF DEALING WITH THINGS THAT I'M NOT SURE IF I NEED TO PUSH MYSELF AND DEMAND MORE OF MYSELF AND STOP BEING SO AFRAID OF WHAT MAY HAPPEN - should i be the old Nike add and JUST DO IT?
Hi I would go out and get myself so drunk on Monday if i drank alcohol i spoke with my best friend today and she is going to be here with me, basically I chose here because i do not want to look like an idiot in front of her, I think one major problem is the reality of being diagnosed has finally sunk in and the terror started, Before i heard that the drugs were on the way, I got away with thinking, everything was going to be OK, and that the symptoms would just go away and that they would f
As far as those crappy feelings at six weeks in your body is still getting use to the med. These interferons are acidic (I'm on Rebif) and this can cause the burning initially and after injection and the redness. But, I'd think they would need to make sure it's the med. What are you using to clean the area? Alcohol? This can be harsh for some too.
I was disheartened that the shot was more difficult than Rebif, but I will suck it up and get used to it. Anything that might help stave off more symptoms is worth a few minutes of discomfort each day. I really hope I tolerate it better than Rebif. At least the liver thing won't be an issue with Copaxone.
I have only been on Rebif since March and have felt the same way since I started it. I was diagnosed and my neuro immediately put me on it. "Flu like symptoms" sounds so mild doesn't it? LOL! Like you, I always feel like ****. Persistent nausea...headaches....I get the fever/chills thing, and then sometimes get what my family refers to as the "malaria chills" - involves your whole body....really strong shaking. Very impressive....
I'm glad you have a diagnosis finally so you can start your Rebif and fight back! I was almost happy when I was diagnosed. That lasted a day or so and then it started hitting me that I will spend the rest of my life fighting this disease. I wish you good luck and more good days than bad!!
Not that long ago I was bicycling, hiking, walking, and doing aerobics and step classes. I loved being active. I was never the person to give into pain; in fact I was more likely to ignore it. I rode competitively for years, even riding in the Grand National. Little did I know that there would come a day that I wouldn’t have the strength to even lead a horse. I can’t do any of those things now.
I have been on Rebif for about 4-5 weeks now and am doing M,W,F injections and just started the 44mcg doses. Seems that each time I give an injection the experience is different. Sometimes it barely hurts and sometimes it stings soo bad going in. I am having a really hard time with this and feel silly because I'm a nurse myself..but last wednesday it hurt so bad I had to sit there and cry...
It certainly doesn't happen to everyone and even those who have experienced it, go on to give injections without the reaction. If alcohol was the culprit, we would see it with other injectable drugs as well, and we don't. Alcohol can sting if it is tracked into the tissues because it hasn't been allowed to dry completely before a needle pierces the skin. Many people use soap and water to clean their skin before injections. That is totally acceptable.
Great job!! Doing it manually is much more difficult just for psychological reasons, at least it was for me. So kudos are definitely in order. I don't think you have to worry much about the depth of your shots. I have found that depending on the medication that you have been prescribed that the length of the needle changes.
IT HAD TO BE EMOTIONAL,EVEN THOUGH WE KNOW WHAT THEY ARE LOOKING FOR THAT FINAL DX,STILL IS A SHOCKER. MS IS LIVEABLE AND WE HAVE OUR GOOD DAYS AND BAD DAYS. REBIF IS WHAT I'M ON,I TAKE IT AT NIGHT BEFORE I GO TO BED,WITH TYLENOL AN HOUR BEFORE HAND,THAT WAY ANY SIDE EFFECTS I SLEEP THROUGH. I WAS VERY FORTUNATE THAT I DIDN'T HAVE ANY SIDE EFFECTS FROM IT LIKE THE FLU-LIKE SYMPTOMS AND SO FORTH. WITH REBIF IT COMES WITH AN AUTO-INJECTOR YOU DON'T EVEN SEE THE NEEDLE.
I feel extremely fortunate, and hugely appreciative of my hubby's new job and benefits.
Now my lifestyle (don't cringe) includes smoking 1-1/2 packs a day, and I drink also. Frequently, but not much, and beer vs. hard alcohol. No illegal drugs whatsoever. Please keep in mind that because I've been on Lipitor for the last 10 yrs. that I've had my blood drawn every 3-4 mths. and there was never a liver problem before now. Why have the liver enzymes along with the LDH skyrocketed???
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