Provigil and parkinson's

Common Questions and Answers about Provigil and parkinson's

provigil

FATIGUE ALONE SHOULD OF BEEN ENOUGH,IF IT'S A GOOD PCP HE WILL GET YOU THE PROVIGIL. MY PCP HAD TO CALL AND EXPLAIN THAT I COULDN'T TAKE THE RITALIN AND THAT I NEEDED THE PROVIGIL. IT'S POLITICAL MUMBO-JUMBO ,BUT THEY PREFER A CHEAPER,GENERIC MED FIRST BEFORE A HIGH PRICED ONE. HANG IN THERE,PAST RECORDS SHOULDN'T BE NECCESARY,CONSTANT FATIGUE SHOULD OF BEEN ENOUGH. DARN INSURANCE COMPANIES.
Because I have a pacemaker, I can't have an MRI. Tests done include a CAT scan, two EEG's and a PET scan, along with lots of blood and urine work. All "normal." Although the clonazepam has helped the chorea, the other symptoms remain. I also take Provigil for the fatigue. My current doctors insist that I don't need further testing. My sister was dagnosed with MS in her thirties and is treated currently (she's 54). I have two aunts with Parkinson's.
Yes, there are some drugs that can help, and perhaps its time to talk to the doctors about them One that jumps into my mind immediately is Provigil and its new sister drug Nuvigil (drug name: Modafinil). Other common drugs for fatigue are Amantadine, and Pemoline. That gives you some drug ideas to research and talk to your doctor about. As for your daughter - good for you to recognize the sacrifices she makes.
In researching Provigil, I found a couple dopamine agonists (mostly for RLS and Parkinson's), but they are used off-label for depression. Mirapex or Requip might be a good compliment to what I'm taking. So I might try one of those with Provigil or Strattera + Zoloft + Gabapentin. They all seem somewhat harmless, or at least lower in side effects. Now I'm just rambling, sorry...
Yesterday at the grocery store, My legs kept trying to give out on me and would barely hold me up, and the eye pain and burning in my face has been nonstop. Does stress mess with the MS this badly?
As an alternative, the research team suggested another stimulant that is not a member of the amphetamine group-modenafil (ProVigil). These findings and suggestions may help doctors caring for co-infected PHAs to reduce the distress that sometimes occurs when patients are treated for HCV infection. REFERENCE Jones K, Talal A, Ferrando S, et al. High prevalence of fatigue and depression in HIV/Hepatitis C co-infected patients treated with pegylated interferon/ribavirin.
I do have a line showing an injury or minor stroke in the left cerebellum, he doesn't think that is the issue with balance and dragging my R leg. He will not rule out Parkinson's but doesn't want me to dwell on it as there is nothing further to do for testing. He would like me to---laugh here----LOL walk with two ski poles on uneven surfaces, as he thinks this may retrain/help maintain my balance. It actually sounds logical to me.
Amantadine did zero for me, you may as well drink Starbucks all day!!! The best one is Provigil - now that does work.
I have also ran out and have been without it for several days and the side effects are awful lots of vertigo and nightmares,I have also gained weight and just don't feel like when I do take it like I and suppose to which is 99% of the time that it is all that great . My Dr. told me nothing about how difficult it was to come off of and I am pretty upste about it, sorry I dont have any answer for you but if you figure it out let me know thanks!
I asked my primary for provigil and she said "NO! We give that to patients who have narcolepsy!" LOL...I'm thinking, "and yeah?" She said I'd have to wait for my appointment with the MS Specialist. @ Julie that is wonderful news!!!! This gives me hope!!! Ahhh to rid of the fatigue!!!!!!!!!
It'd be nice if I could get off of the beta-blockers, though, because I think they are causing some of the fatigue and not allowing me to lose any weight (I didn't gain weight until I stopped taking Provigil, which actually made me feel awake, and started taking Propranolol for migraines back in September 2008). I looked into Kikuchi disease, and the main reason I'd hesitate in saying that I have it is that my lymph nodes didn't show any necrosis, nor were they really enlarged.
Because I have a pacemaker, I can't have an MRI. Tests done include a CAT scan, two EEG's and a PET scan, along with lots of blood and urine work. All "normal." Although the clonazepam has helped the chorea, the other symptoms remain. I also take Provigil for the fatigue. My current doctors insist that I don't need further testing. My sister was dagnosed with MS in her thirties and is treated currently (she's 54). I have two aunts with Parkinson's.
Clear CT scan and two EEG's. Am now taking Provigil for immense fatique and have begun feeling swelling in my right eye. Am waiting on appointment at UVA (for 6 weeks now). Am taking Prozac which does seem to help the depression. My 52-year old sister has had MS for 15 years; two close aunts have Parkinson's. What do you think?? I have a stressful job that the symptoms are beginning to intefere with.
The newest cousin of Provigil is Nuvigil and some of our members are on it. I hope this helps and I hope you stay with us.
My neurologist doesn't think it's MS but won't offer an opinion. Provigil and Prozac help, but not with jerking and leg weakness. Thanks for any advice.
I sleep for nearly 10 hours, and still wake up feeling tired and have to take a nap in the day. I have been on Provigil (sp) and I find that the days I do take it, it's brilliant, but boy to I know it the following day. Have you come off Tysabri yet?? if so maybe this is the reason?? Just a thought.
I am on Provigil and it helps me stay awake during the day. Today is a day that it is not helping alot but I think that is cause I have been out doing things all day and that exhausts me.
I hate to say this, but "normal" MRI and blood tests, and your resting tremors, are consistent with Parkinson's. Has your doctor been considering this? Check out this link: http://www.umm.edu/parkinsons/diagnosis.htm and the links in the sidebar at that site. They recommend seeing a specialist in movement neurology. Maybe the MedHelp Parkinson's group can help you too. I hope you find your answer soon.
anti depressant and going to ask for provigil or something for energy. maybe i will just ask to be switched to something else.
I did research Nuvigil and found that Provigil is basically the same and available as a generic. Any thoughts on that or any of the other meds? I've been getting better for the last few weeks (basically since the lumbar puncture--go figure) but slowly. I can work almost full-time again, though I'm exhausted when I get home and basically do nothing else. I don't want this to happen again! I guess no one does.
The FDA recently issued an adverse symptoms warning about Provigil that it can cause serious rashes and psychiatric issues.
I've asked doctors to help me cut down they say no you don't need to but every month it's refill time and now they want to put me in an inpatient rehab with reviews you wouldn't wish on hitler. Texas is insane, doctors no longer care about first do no harm or just being human they've become lackluster, they've become too detached and want a specialist to do everything. Get a refund for the MD cause you do not want to be in a help people field. SICKENING!
My doc wrestled around what appeared, due to symptoms, to be MS, or a mimic. After only two years, I was diagnosed with Parkinson's and Fibromyalgia.
I then went to NYC to see an MS specialist who did a spinal tap and blood work--all normal. He said I didnt have ms, and it took me months before I started to believe him. Bladder problem went on until right after I gave birth to my first child. It waxes and wanes a little now, but most of the time my bladder feels normal. (bladder symptoms were feeling like i had to urinate all the time even after emptying). About 5 years ago I woke up from a deep sleep and my vision was distorted.
My main symptoms are constant exhaustion, both physical and mental (not restored by any amount of sleep), brain fog (constant), gastrointestinal (constant pain, bloating, nausea, etc), ataxia (poor balance and coordination), neck, shoulder and lower-back stiffness, increasing depression and anxiety, waning and waxing body numbness, and on, and on, and on... So, here's my question: Do I have Lyme? I was recently diagnosed by an LLMD, so the answer may seem obvious.
I add a couple of Tablespoons to my drinking water every single day and it gives me an extra hours worth of energy. My mother and husband are now using it and they are now sharing the same results.
The sensation only lasts a few seconds, but sometimes it does it over and over for several minutes. I have had these before, but it was very few and it very infrequent, but they have returned and now are happening every day. I have googled this and all I can find is withdrawal from antidepressants, or something related to MS. I have never taken antidepressants, and I haven't been on anything else recently either.
2, going back to #1 after my second opinion said its probably a virus and prescribed me Provigil for fatigue. Neuro #1 is convinced it's MS despite, the previous negative MRI, will see what happens tomorrow.
I'm 42yrs old, mother of adult son, but have had undiagnosed symptoms off and on for years. From Joint pain and swelling to lymph node swelling and tenderness to now currently weakness (heavy feeling) and constant tiredness. I was diagnosed about a year and a half ago with a dead gallbladder which was removed...and it was dead. But now my PCP is testing for Autoimune and Viral/baterial infections: Mono, Lyme, Celiac and Lupus. I won't get the test results for another 24hrs or so.
Been temporarily dx'd with migraine assoc vertigo and parkinson's associated dyskinesia. I did see a 3rd neuro, whose first question was "have you always been fat?" - that was also her last. Tried to see 2 who would not even see me without being already Dx'd. Now I hold out hope for this new neuro - I know good ones exist.
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