Prednisone and vasculitis
Common Questions and Answers about Prednisone and vasculitis
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I have vasculitis and was in the hospital on 150 mg IV Solumedrol for 1 week and have been on 80mg a day since Oct. 6th. I have the abd bloating, moon face and hump neck and shoulders. I know it is the side effects but was wondering if anyone has any ideas for relief of it. My back hurts as well I do use a heating pad on it and sometimes it helps but the neck, shoulders, and stomach are so uncomfortable. Does anyone do anything that helps with this?
My disease has been primarily hereditary (50% of my family has had autoimmune disease of some type) and stress. Through treatment combining prednisone and Imuran I achieved nearly 5 years remission. With my father's diagnosis of mesothelioma this year, my disease has returned.
Although vasculitis can be contained to skin, nerves and muscle, it is important to control it. Staph infections in an ulcer can lead to very serious complications.
a dermatologist prescribed prednisone starting july and tapered off on november 2007 and they disappeared for a time but would show up once in a while (even when i was on prednisone). the doctor would increase my dosage of prednisone (and thus lengthened the tapering off process), that's why i ended up taking it for about 5 months. however, i still have them.
aside from prednisone, is there any other treatment that is available for me?
Treatment for Churg-Strauss syndrome includes glucocorticoids such as prednisone and other immunosupressive drugs such as azathioprine and cyclophosphamide. In many cases the disease can be put into a type of chemical remission through drug therapy, but the disease is chronic and life long.
The doc want to put me on prednisone for two weeks prior to starting treatment, in order to deal with Cryoglobulinemia and associated vasculitis. Does it make sense to take the prednisone? I thought that tx is a way to get rid of the cryoglobulins. I was also under the impression that prednisone may lead to increased viral load, and that is the last thing that I would want before starting tx.
I have vasculitis for over a month now and the prednisone is not helping much. The flares occur almost every week. I had some blood work done and the only ones that came out abnormal are: ASO 800 iu, ESR 100mm/hr, Monocytes .11 (limit is .7)
Now my question is, can this be caused by HIV 7 years AFTER a possible infection?
Please help for peace of mind. Thanks to those who will answer!
If it is truly Vasculitis it can be a serious condition and is not cured by showers or baths of any sort. You need to find the right doctor to diagnose the cause of the vasculitis. If you have hep c this may be an indication that you have cryoglobulinemia. Typically the vasculitis outbreaks come and go but this does not mean the underlying disease if there is one is gone.
My 70 year old mother has been recently diagnosed with polymyalgia, anemia and vasculitis. She has headaches and jaw pain and recently developed double vision. I'm suspecting that she has giant cell arteritis but she has not had a biopsy to confirm this yet. She is currently in hospital and for the last 3 days her prednisone has been increased to 60mg per day. She no longer has headaches but still has slight jaw pain and double vision.
he also pointed out the purple spots on my shins and feet and said the spots might be Leukocytoclastic vasculitis. the spots range in size from a few mm to about 20 mm. prior to treatment i did not have these purple spots. the hep doc suggested i go back to the derm and have one of the spots biopsied, which i did. we are awaiting the pathology report.
has anyone else developed vasculitis during treatment?
were you prescribed oral steroids or other drugs for the vasculitis?
I have been put on Cellcept and Prednisone. They are going to wein me off of the Prednisone once I am up to the highest dosage of Cellcept which is 2000mg a day. I am starting at 500mg for 5 days, then 1000mg for 5 days, blood work, and then 2000mg.
Most websites don't speak specifically about vasculitis of the eyes. All autoimmune disease tests came up negative. I want to know more about this disease.
I am taking 100mg/day of oral Cytoxan for Vasculitis and am really losing a lot of hair. I have been on it for 4 months and will probably be on it for another 4 months. This is the 2nd time I have been on a round of Cytoxan, but the 1st time (20 years ago) my hair just thinned a little. This time it is really coming out. I was under the impression that taking Cytoxan orally did not cause significant hair loss. Has anyone else had experience with oral Cytoxan and hair loss?
Yesterday morning, he woke to the rash considerably larger, darker red, more itchiness and some spreading to the other ankle and shin. He ceased the compression and went back to the doctor yesterday afternoon. Doctor still believed vasculitis, but still couldn't be sure, suggested continued compression/steroid cream. He woke up this morning with rash now spread to right thigh, abdomen and underarms with even more redness and discoloration to the original lesion.
Excerpts from MedicineNet -Vasculitis Symptoms, Causes, Diagnosis, Treatment, and Types...
"Vasculitis is a group of uncommon diseases, which result in inflammation of the blood vessels.
Yesterday morning, he woke to the rash considerably larger, darker red, more itchiness and some spreading to the other ankle and shin. He ceased the compression and went back to the doctor yesterday afternoon. Doctor still believed vasculitis, but still couldn't be sure, suggested continued compression/steroid cream. He woke up this morning with rash now spread to right thigh, abdomen and underarms with even more redness and discoloration to the original lesion.
My mother has a kind of rash for about a week now which a doctor said that it is Urticarial Vasculitis. Another doctor said that it is Erysipeloidal Cellulitis and seemed very sure of himself. The problem is that she has some problems in the lower part of her left leg (some small boils - ulcers of 1-2 cm in diameter).
I'm really bad at describing the disease, so i've taken some pictures.
Methotrexate, Azathioprine, and other drugs that are used more widely in treating other rheumatic diseases are also used to treat non-life-threatening vasculitis and are useful as steroid-sparing agents - if your doc would go along with that.
There are some new drugs that are developed for treating other autoimmune and inflammatory diseases and these are sometimes subsequently investigated in vasculitis.
I am currently on a large prednisone taper and not feeling any better except fever is gone. I also have restless leg syndrome and anxiety. I am going to see a rheumotoligist but earliest appoint is 2 months out. I have a good family doctor but he has told me that he is out of stuff that he can check. I have been through 3 1/2 months of this and my next doctors appointment is 2 months away should I look into another route beside a rheumatology work up?
s a form of vasculitis, and is an auto immune disorder. He came down with it a little over a year ago and was on prednisone for a year. He is better now, and had his last dose of prednisone about a month ago, but I know he probably still has a high sed rate and high CRP. Is there any danger in having high inflammation? He doesn't want to continue the meds as long as he can tolerate the discomfort, but I'm concerned about his inflammation rate.
Brief use of prednisone followed by 6 months of interferon alfa has produced clinical and liver function test improvement, but relapse of liver disease and vasculitis often occurs when interferon alfa is stopped.
All information contained within the Johns Hopkins Vasculitis Center website is intended for educational purposes only. Visitors are encouraged to consult other sources and confirm the information contained within this site.
Been off all muscle relaxants and prednisone for 3 weeks now. I will schedule complete opth exam to rule out any underlying eye problems and do you mean physical therapy might be warranted given whiplash diagnosis and still recurring problems?
good day,
my brother 21 years old is recently diagnosed with retinal vasculitis. We didn't know what causes it, right now he is under medication prednisone and imuran... However, we are trying to figure out the underlying cause of this sudden disease...
What I do know is that I have had Hep C for about 37-38 years and that my metabolism changed after I had Systemic Vasculitis. And I know that when I was diagnosed in July 2011, my liver biopsy showed Grade 2, Stage 2.
I did find an article which is quite good and I will copy and paste it in the next post.
Digestive issues, swelling, nosebleeds and vasculitis are not generally central nervous system problems and thus not MS, but pain, numbness, tingling, tremors and difficulty walking are often MS symptoms. However, there are lots of other diseases and conditions this could be, and they have to be ruled out. This can be a long process, but it's worth it, particularly now that your husband is having a second attack.
Hi Willa - The prednisone and "other drugs" have different jobs. Prednisone treats current inflammation. It is often current inflammation that causes symptoms. In your case it may be that your lack of coordination is the result of inflammation. The prednisone reduces the inflammation and you feel more coordinated. Prednisone will not help with the underlying cause of the inflammation.
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