It can be very difficult to find a doc that knows of
SOD. Much like that Mystery Diagnosis show on DH, most
SOD patients go through a lot of problems while they are trying to figure out what is going on.
where are you guys from? You need to find a GI who specializes in diseases of the pancreas, or at least knows of SOD and can refer you to someone who does. Major centers that I trust are in North Carolina, Minnesota and Indiana.