As you may know it gets complicated to coordinate care with Chiari. Also, my chiari specialist in Great Neck,
NY, Dr.Roger Kula.I am looking for a primary care who KNOWS about chiari, doesn't TREAT it, but has seen it before. Sometimes I feel like I am speaking a foreign language to my current primary care doctor. =/ So for the last several years since neurosurgery, I have been acting like my own primary care doctor- which is NOT working out well.